Please download our newly updated ‘PoTS on a Page - GP Guide’ to take to your #GP if they do not have knowledge of #PoTS.
You may wish to ask them to perform a ‘stand test’, which is described on this guide.
https://t.co/rwIIDNfvEm
#TeamGP#MedTwitter@RCPhysicians@theRCN@rcgp
Curious about trying out some new dietary changes for #POTS, #Dysautonomia, or #chronicillness but unsure of how to go about cooking and meal-prepping with low energy?
Check out my new video: https://t.co/LI8O80qTpf
Autonomic nerves regulate our heart rate, blood pressure, digestion, dilation and constriction of the pupils, kidney function, temperature control, and much more! People living with dysautonomia have trouble regulating these systems, which can impact the entire body!
Did you know that mold can have a negative impact on your health, especially for those with #POTS, #Dysautonomia, and #chronicillness?
Check out the images below for more info.
Shame is a strong feeling that has a hold on many with #ChronicIllness, #Dysautonomia, and #POTS.
In this video, I explore shame and what can be done to lessen it.
https://t.co/NACIzZyfbm
Excellent session at the #LCPForum on #LongCovidKids
‘We need to teach children to pace using age relevant language that they will understand
Recognise that children will need ongoing support with this
Believe children
Validate their symptoms
Let them know that they have a voice’
TODAY IS THE DAY WE PROTEST! We are gathering at the White House & online from our beds to demand bold, urgent governmental action for the millions of people living with #MECFS#MyalgicEncephalomyelitis, #LongCOVID, & other infection-associated, complex- chronic diseases.
Swedish researchers just published the first #POTS symptom score, based on the 12 most common symptoms reported by 1000s of patients in the Big POTS Study, a collaboration between Dysautonomia International, Vanderbilt & Univ of Calgary. This is progress!
https://t.co/bTD5Xlz5HQ
Are you suspecting you might have #POTS and wondering what the diagnostic process looks like?
Check out the images with the info below. Also view some tips and more info here: https://t.co/vU2UWHkw20
#Dysautonomia#LongCovid
@PollyAnnaWrites@thisisinsider@rosadona Great article raising awareness about dysautonomia. It took me almost 5 years to get diagnosed in 2017. It's still sad to see that it takes this many months in 2021.
Good study that confirms what we know from clinical practice: brain fog in #POTS is a function of hyperadrenergic state and is improved by oral bolus of water. Would be interesting to find out the effect of IV saline bolus vs. oral water on brain fog.
https://t.co/gvsRnK6GjE
This is a great initiative. Make sure to check out the video.
Jasmeet speaks about her journey with #PoTS as well as the impact it had on her career.
More stories like this need to be told.
Please watch this video of Jasmeet, one of our Peer Support Volunteers, who has kindly shared her story of living with #PoTS.
Please email [email protected] if you would also like to share your PoTS experience.
https://t.co/Qj7Wqtqjkt