Tuning into “Redesigning prenatal care to meet the needs of our patients” at #ACOG2022! Did you know that traditional #PNC involves 12-14 in person visits and this practice was developed without evidence? #GeneChat
@ebonkowski@GeneticCouns The Precision Medicine Answers for Kids Today Act is part of the Cures 2.0 package. I'm happy to help answer any questions or potentially direct you to the right people
@ebonkowski@GeneticCouns Hi! There are various bills addressing the coverage of genetic sequencing tests. I would suggest looking into the Precision Medicine Answers for Kids Today Act, which is a compromise bill between the Advancing Access to Precision Medicine Act and Ending the Diagnostic Odyssey Act
Very important statement written by many members of the NSGC Public Policy Committee! Great to see it published. @GeneticCouns#GeneChat
https://t.co/QypRi0EUZn
hi #GeneChat it’s me yelling about repro things again. tomorrow is the last day for member comments on NSGC’s repro position statement. @jayaramansheela @jayq_GC@jobrown_ & i want to do right by you all in revising this statement so PLEASE send comments! 🤘🏻
BREAKING: The Supreme Court allows abortion clinics to continue to pursue their challenge to Texas' near-total ban on abortions.
https://t.co/uIydz88kz8
Attention Iowa, Maryland and Mississippi!
If you or someone you know lives in any of these states please consider completing this brief survey (https://t.co/fFFBMhHONa) which allows advocates to indicate their interest in supporting RUSP alignment legislation advocacy efforts.
Why is this case important? Because emotional injury (e.g., humiliation) is often the primary harm from intentional discrimination. If victims can't recover these damages, many could not vindicate their rights (essentially gutting private enforcement of federal civil rights laws)
The chair of the House science committee, Rep. Eddie Bernice Johnson (D-TX), announced today that she won't run for reelection. "I will retire, and let me assure that I will also recommend to you whom I feel is the best to follow me," she said at a Dallas press conference...
Such amazing work done by @RepSwalwell on the Precision Medicine Answers for Kids Today Act, which is in the Cures 2.0 package! It would improve access to genetic and genomic testing for so many undiagnosed pediatric patients across the United States! #gcchat#Clinicalgenetics
THANK YOU to @RepSwalwell for his work on the Precision Medicine Answers for Kids Today Act! Let's keep working to eliminate barriers to genetic and genomic testing for kids!
DeGette and Upton say they'd like to fast-track Cures 2.0 and ideally pass it by the end of the year (tho they know that's unlikely due to the busy schedule).
"We don't want to wait," Upton said.
@DickinsonStephi Hey! During my grad school experience, I did multiple non clinical patient facing rotations in industry, public health, and federal lobbying. Happy to talk to any prospective students about my experiences. Feel free to dm me!
@DevinShuman I personally enjoyed these podcasts as a pre-gc student: @mendelspod and @beaglelanded. Really helped me get familiar with contemporary genetic issues.