@DUPleader@moneillsf will any info be coming to update those shielding? I understand it can change and it’s initially 12 weeks but we’ve been left very much in limbo.
Ryan Wallace (47), father-of-two who put off seeking emergency medical help after experiencing heart attack symptoms because of the lockdown has urged others not to do the same. Thankfully our cardiac support team have been able to offer help too. Read more below. #covid19
@mlchealth I’m waiting in a hospital in @setrust to be discharged to an outpatient appointment in @BelfastTrust on monday (they’ve no beds over weekend) which now isn’t happening.. so much anxiety about what happens next.
Today is International #Behcets Awareness Day. Behçet's is a rare, complex and lifelong condition. Here at Behçet's UK we strive to secure the best care for all patients, and assist their carers, parents and relatives. Find out more at our website https://t.co/sM8knTkgVt
@DavidAttwood12 As someone with a rare disease and a massive amount of secondary care input my GP is always the person I want to go to, even when super busy makes time to listen, she knows me as a person not a rare illness, the GP is the continuity and been there from the start. #soimportant
@HelenRSalisbury Ive a rare complex condition and a consultant said last week, I could read through all these notes but I want to talk to you about it instead. Him leaving the computer screen and realising I’m knowledgeable in my condition and treatment was invaluable.
@tescomobile bought a 3GB data bundle.. it’s increased my limit on the app but it also put my usage up 3GB as it when on.. any idea why his has happened? I’ve basically paid for nothing.
Sent to @setrust A&E by GP was seen, xrayed and treated in 50 mins even tho the place was packed and a follow up for 3 days time. Big thanks to the hardworking staff! #nhs
@DrAmirKhanGP@DailyMirror I attend hospital regularly for a rare disease, it really adds up esp when I could be across 3 hospitals in one trust over the same day for different specialties. When you’re already off work sick it’s an added pressure, even discounted rate for appts & treatment
Delighted to introduce this new award and announce the winner on behalf of the Patients Group. Thanks to Janette Connor for nominating and joining us today to celebrate excellence #TeamGP