Jeff Madelone

Let's Kick ALS...Together we can find a cure!
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[Jeff Madelone @JMadelone]

@racing_als @alsadvocacy @ALSTDI @iamalsorg @AnswerALS @alsassociation @TeamHendrick @TargetALS_fdn @hendrickperform Jeff Madelone - my best friend and true warrior lost his 20 year battle with ALS in April of 2021 at the age of 46.

[Brian Wallach @bsw5020]

In exactly one week @US_FDA and @BrainstormCell will meet to discuss NurOwn.

The ask from the ALS community is simple: Give NurOwn an Advisory Committee Meeting like every other treatment.

It’s time to let the science speak for itself.

[Michael Moutsoulas @MMoutsoulas]

To my #ALS family, this is where my journey ends. After a month long battle with aspiration pneumonia, it's clear my lungs are not bouncing back. It's off to hospice care. I leave behind my beautiful wife and 3 kids. @DrCaliff_FDA I'm a proud dad. Just wanted more time. #NurOwn

[Brian Wallach @bsw5020]

We can’t control what life throws at us…

At 37, I was diagnosed with ALS. It’s currently 100% fatal.

I’m now 41, and yesterday I did a thing I never expected to do again: I skied, turning by leaning my body. After I cried tears of joy.

…but we can control how we respond.

[Jeff Madelone @JMadelone]

.@Malinowski Thank you for being an ALS champion! By supporting ACT for ALS, you are helping advance access to promising treatments and ALS research!

[Jeff Madelone @JMadelone]

.@SenatorMenendez Thank you for being an ALS champion! By supporting ACT for ALS, you are helping advance access to promising treatments and ALS research!

[Jeff Madelone @JMadelone]

.@SenBooker Thank you for being an ALS champion! By supporting ACT for ALS, you are helping advance access to promising treatments and ALS research!

[Jeff Madelone @JMadelone]

Please join us today, Saturday, June 26, 2021 at 5:00 PM for a remembrance of Jeff Madelone at the main diamond at Cantine Memorial Field, Washington Ave. in Saugerties, NY.

#ALSsucks #ThisIsALS #IAmALS #ProjectALS #HopeLovesCompany #EndALS #DrugsInBodies #FriendsofJeffMadelone

[Jeff Madelone @JMadelone]

https://t.co/q3WOstpSgX

#ALSsucks #ThisIsALS #IAmALS #ProjectALS #HopeLovesCompany #EndALS #DrugsInBodies #FriendsofJeffMadelone

[Jeff Madelone @JMadelone]

https://t.co/q3WOstpSgX

#ALSsucks #ThisIsALS #IAmALS #ProjectALS #HopeLovesCompany #EndALS #DrugsInBodies #FriendsofJeffMadelone

[Jeff Madelone @JMadelone]

Jeff is finally free from the confines of his body. He is now at peace and is shining down upon us.
Heaven - you are really lucky. You just gained one of the best souls this world has ever seen!
#ALSsucks #ThisIsALS #IAmALS #ProjectALS #HopeLovesCompany #EndALS #DrugsInBodies

[Stand Up 2 ALS @up_als]

Last night I choked back tears. After spending a couple of hours in the TX evening heat doing some yard work , my wife brought me inside via my PWC. She then spoon fed me a soft meal. After a bit , she brought me to our room.

[Jon Sciambi @GoGala__Games]

Hi everybody...you can support people living with ALS through @PMS4ALS by buying one of these shirts. https://t.co/67oapIjbhD*

[Sweeny Murti @SweenyMurti]

My friend Jeff Madelone with his daughter Grace and wife Megan. They are ready for @LG4Day. @JMadelone

This is ALS. This is who we fight for today and every day. #LouGehrigDay

[Megan Ackerley @meganmads]

Awesome job today @BoogSciambi Thank you for continuing to fight for your friend Tim Sheehy and all of us! #LouGehrigDay #4ALS

[Brian Wallach @bsw5020]

Tomorrow on #LouGehrigDay the first ever national TV ad about ALS airs.

First during @jaketapper’s show, then on @TeamCavuto and each game.

I am dying from the same disease that killed Lou. You can change that.

Please make this ad go viral and help @iamalsorg end Lou’s fight.

[Jeff Madelone @JMadelone]

Looking for thoughts, prayers, and good energy as Jeff undergoes a tracheostomy. This is a big step as continues his battle with ALS and will hopefully ease the stress of the breathing process enabling him to live more comfortably.

Please send all your good vibes his way!

[Jeff Madelone @JMadelone]

Every.....90....... Minutes 😥

[Steve Gleason - "Live Impossible" @SteveGleason]

Speaking of adversity & loss. RIP Patrick Quinn. Gratitude.

[Jeff Fortenberry @JeffFortenberry]

Today, we added our 100th cosponsor to the bipartisan ACT for ALS, which creates new pathways to deliver promising treatments for those who have suffered endlessly from this cruel, aggressive disease. @iamalsorg @alsassociation @MDAorg #ALS