Jo Campbell MNDAssoc

Area Support Co-ordinator for @mndassoc covering Devon & Cornwall Views are my own #worldfreefromMND #MND

[Jo Campbell MNDAssoc @jo_mndassoc]

So excited to see @MNDAPeninsula launch today, this will be the page to follow to get the updates on all things relating to #MND in the Peninsula (Devon & Cornwall) region

[MND Campaigns @mndcampaigns]

Leading MND clinicians have called on the Secretary of State for Health and Social Care to include people living with MND who are classed as clinically extremely vulnerable in the Spring Booster vaccine rollout. Read their letter here: https://t.co/3mR4BTNE5c

[DiAMoND Study @DiAMoNDstudy_]

If you have #MND and are considering a feeding tube, please take a look at our decision aid at https://t.co/v5jyF12JzT & let us know what you think of it. Carers' and health professionals' views also wanted
@mndassoc

@mariecurieuk

[Sally Nugent @sallynugent]

Pic of the day #TheExtraMile

[Racing4Charity @Racing4_Charity]

🔊DRIVER ANNOUNCEMENT🔊

@JakeHillDriver completes the @autosport team for #Karting4MND @thruxtonracing next Thursday (26th) 👏🏼

Jake will join the race to raise funds for @mndassoc
ahead of the @BTCC weekend with @MBMotorsport_

Over to Jake 📹

#MND #charity #karting

[MND Campaigns @mndcampaigns]

81,000 people are supporting our petition with @MNDScotland & @MNDoddie5 asking the Gov't to increase its funding into urgent #MND research. Together, we're #United2EndMND🧪

Share the petition link & help us reach our target of 100,000 names 👇🏾
https://t.co/fPqc2A0uTj

[Jo Campbell MNDAssoc @jo_mndassoc]

It's 19 months since the Govt promised to review benefits for terminally ill people.

Since then, as many as 5,000 people may have died waiting for benefits. @SteveBarclay, please will you urgently approve @DWP's proposed changes? #Scrap6Months #MND https://t.co/CJFXhzTBDm

[MND Campaigns @mndcampaigns]

19 months after the Govt promised a review, terminally ill people are still waiting for the benefits system to be reformed. #MND

@SteveBarclay please will you approve changes proposed by @DWP & ensure terminally ill people aren't forgotten in the Budget on 3 March? #Scrap6Months

[MND Campaigns @mndcampaigns]

Good news!

We welcome the inclusion of unpaid carers in the new #COVID19 vaccination advice from the Joint Committee on Vaccination and Immunisation.

For #MND carers and the rest of the MND community this is a relief.

Read more about the guidance here https://t.co/R5PBzzMh91

[Jo Campbell MNDAssoc @jo_mndassoc]

Please cast your votes on what to call a decision aid to help people with #MND choose whether to have a gastrostomy tube

[DiAMoND Study @DiAMoNDstudy_]

What should we call our decision aid to help people with MND choose whether to have a gastrostomy tube? 💭Please cast your votes in the poll in the thread below 🗳️ The options are:

[Rachel @rachel_MND]

The Radio Racer's New Christmas Single ' On a Christmas Night' is being played on https://t.co/yJqJoeewvQ @iriches2 show tonight 8-10pm. All proceeds from the Amazon Music digital download go to @mndassoc Have a listen & download for 99p to support people with #MND #retweetplease

[Jo Campbell MNDAssoc @jo_mndassoc]

Email your councillor to help people with #MND live in safe and accessible homes. No one should feel trapped in one room or unable to leave the house because their home isn't accessible. #ActToAdapt
Act now: https://t.co/FJUjagUnD4

[MND Association @mndassoc]

Have you seen our #coronavirus hub?

We've collated all of our #COVID19 related information for people affected by motor neurone disease (#MND) including the latest from experts.

Check it out here 👉 https://t.co/jDQCzjZB91!

[Big Steps Of Hope @bigstepsofhope]

Anyone up for a @bigstepsofhope #Staycation walk to d'feet MND?

1⃣ Sign up online https://t.co/dhEbJtSBoo 👕🏅
2⃣ Go for a walk in your local area 👣
3⃣ Share your #Staycation photos with us 📸

100% of profits are donated to @mndassoc to support people affected by MND 💙🧡

[Jo Campbell MNDAssoc @jo_mndassoc]

.@JustinTomlinson It’s 1 year since the @DWP announced its benefits review for the terminally ill. Please publish the findings urgently #Scrap6Months #MND

[Jo Campbell MNDAssoc @jo_mndassoc]

#MND carers are under immense pressure to provide more care with no breaks and very little support during the #Covid19 crisis.

I've signed a letter calling on the Government to #supportMNDcarers now. Please sign the letter too.
https://t.co/1P6M6Yyir8

[Jo Campbell MNDAssoc @jo_mndassoc]

We are currently recruiting #volunteers to our Association Visitor role and other #support roles, thanks @volunteerglos for your help with this. #MND #makeadifference
https://t.co/42qD7oAkGC

[Volunteer Glos @volunteerglos]

#volunteer #Gloucestershire provide emotional support and advice to those with #MotorNeuroneDisease https://t.co/yF9CW0UuiF @MNDPatients

[Jo Campbell MNDAssoc @jo_mndassoc]

Great meeting with wonderful dedicated team of volunteers at our @MNDCornwall Branch yesterday. Good to have @NickGoldup1 & @chriswademnda come down to the south west & meet our dedicated volunteers and hear about their achievements and #collaboration plans for the coming year

[Nick Goldup @NickGoldup1]

A wonderful night meeting the @mndassoc Cornwall branch. Thank you for all the terrific work you do 👍

[Jo Campbell MNDAssoc @jo_mndassoc]

@MNDA_Glos are looking to recruit two #volunteers to join their Association Visitor team. If you enjoy listening and helping people this could be the role for you. Visit https://t.co/wNdf2XC9bz to find out more #MND

[MND Association @mndassoc]

In case you missed it, yesterday, @QueensAwardVS announced that our @MNDNorthWilts Group had received The Queen’s Award for Voluntary Service for supporting those affected by #MND.

Read more here https://t.co/pLPCKR4CMB #QAVS2019 #VolunteersWeek