Sir Cough alot

Husband, father, grandfather ❤️
President EU-PFF and patient Advocate ILD 🇪🇺 🇸🇯
Former Business Exec. 🇪🇺🇬🇧🇧🇻
Executive Board member 🇪🇺🇧🇻

[ERS publications @ERSpublications]

Breathe: Idiopathic pulmonary fibrosis and progressive pulmonary fibrosis are characterised by progressive fibrosis and share common pathophysiological pathways that have led to the study of promising new therapeutic targets. https://t.co/NXZc58HS9C

[Naftali Kaminski @KaminskiMed]

Finally out as reprint!!!
"Alveolar epithelial cell plasticity & injury memory in human pulmonary fibrosis".
Glad to share the results of our single cell nuc-seq & ATAC-seq analyses of human IPF & PCLS before peer review - see the key findings in 🧵👇🏽
https://t.co/ggvtGE3NMA

[Sir Cough alot @John_solheim]

@SAS there is nothing truly magical about SAS customer service by phone. Still on hold and waiting after 25 minutes :-(

[Muhammad Ayan @socialwithaayan]

Google Search is a hidden goldmine of information.

Sadly, 0.5% of people only know about Google hacks.

Here are 11 search hacks that will change your life forever:

[Sir Cough alot @John_solheim]

@roisinc1 @UL @ILFA_Ireland @gleeson_eilis @anmari_russell @caoimhebw Tank you for inviting me, these are really important events

[Naftali Kaminski @KaminskiMed]

So heartwarming to see the Great Prof Lindell give the inaugural Honorary Dan Rose Lecture at #ICLAF2024 - keeping the patients at the center!
#GreatICLAFTalks

[Juan I Enghelmayer 2022🇦🇷 @Juani1000]

Nice opening of #ICLAF2024 with ‘The Patient Journey,’ discussing how to improve clinical trials to make them more inclusive and diverse for our patients

[Argyris Tzouvelekis @atzouvelekis]

Applying AI to identify anti-fibrotic drug targets . Excellent input by Maria Molina Molina #ICLAF2024

[Prof Chris Scotton @Isteefer]

#ICLAF2024 kicks off with the most important session. The patient's journey...

[EU-PFF @EU_IPFF]

Dr Anne-Marie Russell, EU-PFF SAB Member, highlights oxygen therapy policy challenges including the lack of standardisation. This issue underscore the need for effective policies to ensure equitable access for all #PF patients. #BreathingLife #PFMonth #CurePF #OxygenAccess

[Sir Cough alot @John_solheim]

Det er spennende tider :-)

[LHL Lungefibrose 🫁 @LHL_ipf]

Vi gratulerer @Boehringer med at overordnede data fra fase III IPF-studien FIBRONEER viser at studiens primære endepunkt er oppnådd. Vi gleder oss til å lære mer om effektivitet og sikkerhetsdata og heier på alle aktiviteter som kan gi pasientene tilgang til bedre behandling.

[Liam Galvin @IPFthurles]

Full house for the "Why is Idiopathic Pulmonary Fibrosis not so Idiopathic" session at #ERSCongress - with two speakers from the @EU_IPFF Scientific Advisory Board plus @EU_IPFF president @John_solheim
#CurePF #PulmonaryFibrosis #PFMonth

[Sir Cough alot @John_solheim]

I am really looking forward to reading this. As my other alias Sir Cough-a-lot I can confirm that cough is a burdensome symptome.

[Mike Baldwin @mikey3982]

Please to see review on #cough in #ipf #pf published and the need to generate evidence in #PROs and economic evidence - impact on lives for this important characteristic https://t.co/r7k23Y1UEP

[EU-PFF @EU_IPFF]

John K. Solheim, EU-PFF President, addresses the #Stigma of using oxygen in public: "The gist of it is that you could either go out or stay home." We must confront the stigma and encourage #PulmonaryFibrosis patients to live fully #PFMonth #OxygenAccess #BreathingLife #CurePF

[LHL Lungefibrose 🫁 @LHL_ipf]

Thank you for highlighting an important area, occupation may matter more than previously believed

[FSMR - RespiFIL 🫁 @RespiFIL]

🔴 J3 [#ERSCongress] : assessment of ventilation in awake and sleeping children - étude nationale prospective sur la prise en charge des enfants atteints du syndrome/séquence de Pierre Robin #SPR par Lauriane Coutier

#SPRATON #AssoTremplin

[patientMpower @patientMpower]

Thought the US presidential debate was the hottest talk happening today?
No! The one you really don't want to miss is Marium Naqvi @RespPharmacist speaking at the hot topics session at #ERSCongress2024 on home monitoring for #ILD
🔥Hot Topics Session 517, starting at 15:30 today

[European Lung Foundation @EuropeanLung]

Earlier @EU_IPFF president @John_solheim shared his views in the session “Why is idiopathic pulmonary fibrosis not so idiopathic?”

As a member of our #pulmonaryfibrosis Patient Advisory Group (PAG), John is keen to advocate for others with lung conditions. #ERSCongress #PFMonth

[EU-PFF @EU_IPFF]

Liam Galvin, EU-PFF CEO, stresses the need for #HealthcareProfessionals to educate #PulmonaryFibrosis patients about oxygen therapy's benefits. Better awareness = better management. Let's ensure improved oxygen access & care for all. #BreathingLife #PFMonth #CurePF #OxygenAccess

[Sir Cough alot @John_solheim]

@anmari_russell @EU_IPFF @ActionPFsteve @IPFthurles @ild_inn Thank you Anne-Marie, I am also looking forward to continuing the partnership.