We are heading to 10 Downing Street to present the letter signed by the North's health leaders calling on the PM to draw on the region's expertise in #health to level up the #inequality in North-South #healthresearch funding #PowerUpTheNorth
Full letter 👉https://t.co/V2SOLTozFp
Honoured to be 1st guest of London's Informatics In the Pub community "How to run a National IT Fiasco- NPfIT and my part in its downfall." I'll buy you a beer if you turn up for the first "15 minutes of frankness" that typifies the IITP movement.
Great example how to quantify the degree to which 'dark patterns' dominate privacy consent interactions online (from @PrivoltaAds):
@Google GDPR consent
- opt-in takes: 1 click (2seconds)
- opt-out takes 17 clicks (72 seconds)
https://t.co/cL31OjPIU9
I'm very concerned about the sale of .org to a private company. If the Public Interest Registry ends up not being required to act in the public interest, it would be a travesty. We need an urgent explanation. #SaveDotOrg
.@GreatNorthCare I am sure there are shared common problems.
I have just found that if patient moves across border their nicely curated electronic GP record moves with ctrl+p methodology 🤦♂️🤦♂️🤦♂️
Wouldn't it be better if we didn't have to repeat our story to different health and social care staff? We need one integrated system that's connected safely and securely to the right healthcare professionals. Find out more in our animation on the National Digital Platform:
Every use of patients' data, including research & development, should be #consensual, #safe & #transparent.
Not clear what "open source environment" means but detailed, linked, individual-level health data CANNOT be made anonymous & is unlikely to be safe https://t.co/aLEJiiZrFd
And here's @smithsam's original paper on #SafeSettings for health data #research, modelled (at that point) on @ONS' approach to handling raw #census data:
https://t.co/KiEwEdVDtv
(Note, we were pushing for this in 2014, shortly after the #caredata & #HES scandals came to light.)
On the failure of #anonymisation:
https://t.co/23ccHEprB8
"even heavily sampled anonymized datasets are unlikely to satisfy modern standards for anonymization set forth by GDPR & seriously challenge the technical & legal adequacy of the de-identification release-and-forget model"
@Mark_A_Jones_@NHSDigAcademy hence my play on words since 2013 its the people and process redesign enabled with a sprinkling of coherent tech with logical workflow and a comprehensible UX