Jeff Perro 🇨🇦♿

husband, living w ALS, women’s health advocate, self directed investor, XAC user, Bernese rule!

[Sarah Nauser @SarahNauser]

Imagine having cancer, knowing there is chemo available, but because it hasn't helped 100% of the patients it was given to, you don't even get a chance to try it. Doesn't seem right does it? Welcome to #ALS and the fight for #NUROWN We deserve better!

[Norman MacIsaac @NormanMacIsaac]

#ALS Caucus 🇨🇦 : Can we match this? CAD $84 million for ALS research! @HMcPhersonMP @jyduclos @Francis_Drouin @ToddDohertyMP @MHGaudreauBQ @JenicaAtwin @CarolHughesMP @JudySgroMP @SteveGMedia @temerityTM @ALSCanada @SLA_ALS_Quebec @HudonGerant #MND #EndALS

[Michael Booker @MickBooker]

Today, in an amazing victory for the Unite to End MND and the Sunday Express Fund the Fight to Cure MND campaigns, Boris Johnson has told us he’s given the go ahead for £50 million funding to research a cure for Motor Neurone Disease - like @DoddieWeir5 we are over the moon!

[Tammy Moore @temerityTM]

People with ALS can’t wait for lengthy drug reviews and access negotiations - each day is loss - loss of function and loss of life. Canada must do better. @GovCanHealth @ALSCanada

[Norman MacIsaac @NormanMacIsaac]

The failure to grant priority review status to AMX-0035 (Relyvrio) was a betrayal of the #ALS community in Canada and internationally.#MND #EndALS #ALSbetrayal @ALSCanada @SLA_ALS_Quebec @SteveGMedia @ALSAction @MHudonsports @Francis_Drouin @HMcPhersonMP

https://t.co/eui6ml5xlL

[Greg Gowe @GregGowe]

If 1,000 Canadians were trapped deep in a cave with rising waters and diminishing oxygen, how much would we spend to keep them alive and rescue them?

$10M? $25M? $50M? More?

Every year 1,000 Canadians ARE trapped in a cave like this. It’s called ALS. We must fund ALS.

[Greg Gowe @GregGowe]

The right to die by assisted suicide has made it to Canada’s top court twice (1993 & 2015).

BOTH cases were brought by someone with ALS.

We have invested so much in Canada on assisted suicide laws and infrastructure.

And so little on ALS research and treatment development.

[Norman MacIsaac @NormanMacIsaac]

MPs and #ALS community agree on need to get treatments like @AmylyxPharma’s AMX0035 to patients faster! @MHGaudreauBQ @Francis_Drouin @JenicaAtwin @ToddDohertyMP @HMcPhersonMP @ALSCanada @SLA_ALS_Quebec @kelsieswrites @SteveGMedia @eliasmakos @PattyHajdu https://t.co/1QtNsPDMBn

[ALS Action Canada @ALSAction]

This was the headline from 2016. Canadian families are still waiting for action to be taken. #ItsTime for Canada to join the global movement to #EndALS

@JustinTrudeau @PattyHajdu

Trudeau urges support for ALS research as Commons honours Belanger https://t.co/Via0pP65iA

[Steven Gallagher @SteveGMedia]

Big thank you to @CBCHamilton @CBCNews for sharing this story online and on the World Report that brings attention to the issues of access to promising therapies for the ALS community. https://t.co/nMDcUrZsWI #EndALS

[ALS Action Canada @ALSAction]

#BREAKING: ~1,000 Canadians died of ALS in 2020 and another
~1,000 Canadians received a new diagnosis.

These numbers are the same as last year and the years before that.

2020 also marks yet another year that Canada’s governments took no meaningful action to combat ALS.

[ALS Action Canada @ALSAction]

The ALS patient community in Canada will not be quiet anymore. Even on Christmas Eve. Watch the news clip about @NormanMacIsaac and the need for an accelerated treatment approval process here.
https://t.co/lacnCHBMla

[Jan Mattingly @mattwoman]

“Rolling review” and “interim expedited approval”: used by HC to approve the vaccine based on “solid evidence”. “Solid evidence” also now exists for amylyx to treat ALS: let’s go HC - you are on a roll and can do the same thing for ALS

[Jeff Perro 🇨🇦♿ @jperro0]

FDA Approval for Life-Saving Nurown for ALS Patients - Sign the Petition! https://t.co/pZWEb9Koc8 via @CdnChange

[Jeff Perro 🇨🇦♿ @jperro0]

@Cylebo thank you for everything you have done to help pALS. Have a great day! #nurown

[UN Women @UN_Women]

💻Respect women online.
💼Respect women at work.
🏠 Respect women at home.
🏫Respect women at school.
🏛️Respect women in politics.
🚗Respect women on the road.
🚶‍♀️Respect women in the streets.
🚈Respect women on public transport.

Respect women EVERYWHERE.

#orangetheworld #16days

[Norman MacIsaac @NormanMacIsaac]

Je vous invite à partager ce Tweet, @chari_t_01 @Francis_Drouin @desmarais_adam @CarolHughesMP @JenicaAtwin @PatriceRoyTJ @Berard66 @SLA_ALS_Quebec @guyalepage @richardveenstra @JdelCSanchez @TheNeuro_MNI @LetsRollEddy @HMcPhersonMP @MarcSerreMP @LanthierChantal @Berard66 #SLA

[Brian Wallach @bsw5020]

There was a 1st survivor of HIV.
There was a 1st survivor of polio.
There was a 1st survivor of then terminal cancers.

There will be a 1st survivor of ALS.

Pass. It. On.

[Danielle Scroggs @DanielleCTRS]

Lap tray setup using the #XboxAdaptiveController as well as joysticks and switches from @WFEngaged. Base of the tray has a cushion on it and was $28. #A11Y #SoEveryoneCanGame #XAC #xbox #AdaptiveGaming