@jskeeling@EamonnHolmes@thismorning@RuthieeL https://t.co/YRhYtJw6oE beta alanine as treatment for aquagenic pruritis, please ask Niah to check out Facebook group, ‘Aquagenic Pruritis Support Group’
@jskeeling@EamonnHolmes@thismorning@RuthieeL Great fbook support group (aquagenic pruritis support group) has discovered treatment fir this condition. Many are 3 years into taking beta alanine as a total cure
@JustinOnWeb the route to treatment for our son has taken four years thus far. I cannot see how the Daily Mail stereotype of treat in haste, repent in leisure can possibly be true: 1 year CAMHS, followed by 2 years GIDS, followed by adult services - now 1 appointment per year.