Juliet Moritz

Biology. Public Health. Bioethics. Genetics and Genomics. Patient and Stakeholder Engagement.

[Juliet Moritz @julietmpro]

@HeatherShultza1 That should be a hefty project with all the subtypes!

[Juliet Moritz @julietmpro]

So excited to be back!#worldsymposium2020
#raredisease
@premierresearch

[Juliet Moritz @julietmpro]

@ahmedhankir I knew a child whose mother had passed. She kept being sent home from school with stomachaches. I told her that sometimes when our heart hurts if feels like our tummy hurts. We burned a note to her mom in a candle so het words went “up to heaven” in the smoke.

[Juliet Moritz @julietmpro]

@RarePOV No one is ‘just a patient’. No one is ‘just a caregiver’. @PPALSorg #patientadvocacy @premierresearch

[Juliet Moritz @julietmpro]

Stephanie Fischer @RarePOV speaking to the @PPALSorg PACT class on public policy for industry. “Consider ways to amplify what the advocacy is doing on shared priorities.” #patientadvocacy @premierresearch

[Juliet Moritz @julietmpro]

@premierresearch #Philly

[Stephanie Fischer @RarePOV]

Great turnout of patient advocates from nonprofits & industry from Philadelphia at @PPALSorg this year! Very cool that all of us focus on #RareDisease.

[Juliet Moritz @julietmpro]

Join the conversation! Chris from @SmithSolve talks about trends in #PatientAdvocacy at @PPALSorg 2019. #PPALS2019 @premierresearch

[Juliet Moritz @julietmpro]

Always happy to connect with like-minded folks to talk about advocacy and industry interactions! @RarePOV @premierresearch #PatientAdvocacy @PPALSorg

[Stephanie Fischer @RarePOV]

Starting day 2 of @PPALSorg at @SanfordCoRDS with @julietmpro of @premierresearch. Topics today include best practices in interactions with nonprofits, young adults in leadership & board roles, reimbursement & access, social media challenges + more!

[Juliet Moritz @julietmpro]

Jean Campbell welcoming the @PPALSorg class of 2019 to Day 2. It’s all about the patients! @premierresearch #builtforbiotech #PatientAdvocacy

[Juliet Moritz @julietmpro]

Morning panel looking to the future of cell and gene therapies. Every member of the panel spoke about the importance of engaging with patients and advocates and the need to “bring advocacy closer earlier, sooner”. #patientengagement @premierresearch #MED19

[Juliet Moritz @julietmpro]

Presentation by Dr. Guido Rasi, Executive Director of the EMA, speaking about how the EMA is working to support the develop ATMPs. His message was to engage early and take advantage of scientific advice offered by EMA. #med19 ⁦@premierresearch⁩

[Juliet Moritz @julietmpro]

Always learning and expanding our knowledge of cutting edge topics that impact our clients’ businesses, focusing on helping them bring life-changing therapies to the patients who need them. Key message from opening session: Engage early!! #MED19 #ATMPs @premierresearch

[Juliet Moritz @julietmpro]

That’s a wrap. Thank you #WODCUS for the opportunity to speak and to be educated, for connections and inspiration! #RareDisease @premierresearch

[Stephanie Fischer @RarePOV]

Thanks to legislation signed into law last September, people with cancer are supposed to be able to pause student loan payments without accruing interest. But @usedgov hasn’t finalized the application & loan holders are not offering relief to patients https://t.co/E1oAEMCbjl

[Juliet Moritz @julietmpro]

@PPALSorg Can’t wait!

[Juliet Moritz @julietmpro]

Wow! Definitely room to improve but you can't fix what you don't acknowledge so this is really helpful information. #listentopatients

[Jan Oldenburg ☮️ @janoldenburg]

Fascinating outcomes from this @nejmcatalyst report sponsored by @UofUHealth. Even though 98% of the 544 doctors/administrators surveyed agree or strongly agree that "listening to the patient voice improves care," patients are still interrupted in 11 seconds on average.

[Global Genes @GlobalGenes]

Help us identify 2019 RARE Champions of Hope by nominating an individual, organization or collaboration in your #raredisease community that has made an impact in advocacy, medical care & treatment, or science & technology. Learn more & submit nomination at https://t.co/6xR7KTl7XS

[Juliet Moritz @julietmpro]

Always learning to ensure we can be the best partner for our clients and more importantly, their patients. #patientengagement #stakeholderengagement @premierresearch

[Juliet Moritz @julietmpro]

@GlobalGenes Love this idea!! #raredisease

[Taylor's Tale @taylorstale]

Thanks so much for having us! #MarchOnRare