Thank you to all the teens who joined us on Capitol Hill to make the voice of the #cysticfibrosis community heard. You are making a difference. #CFadvocacy
Our last meeting of the day was with Alyssa Innis, Rep Dwight Evan's, Legislative Correspondent. She was great. Thank you for your time and support of the FDA, NIH and Medicare!
@CF_Foundation@CFF_DelValley@RepDwightEvans#CFadvocacy h
Today, 70+ teens from across the country will advocate for people with #cysticfibrosis. Adequate, affordable health care is crucial to ensuring access to necessary CF treatments – proud of our young people for educating their members of Congress today. #CFAdvocacy
Meeting at Rep. Ryan Costello's office. He has been a great supporter! He couldn't be there because of an upcoming vote, but his staff was awesome. Thank you!
@CF_Foundation@CFF_DelValley @RepRyanCostello #CFadvocacy
Just met with Rep. Brady and Tierney Smith, his Deputy Chief Staff. Thank you for your time and support of Medicaid, NIH, and FDA.
@CF_Foundation@CFF_DelValley @RepBrady #CFadvocacy
Here are some of our fantastic PA volunteers in action! Thanks .@SenBobCasey for listening to your constituents advocate for adequate, affordable, accessible healthcare! #CFadvocacy https://t.co/eobCoKE1tE
Thank you to the office of .@RepRyanCostello for your committment to ensuring coverage in the ind. insurance market is affordable, available & adequately covers treatments people with cystic fibrosis need. @katblack1818#CFAdvocacy