@faeriebites66 My friend recently with tonsillitis,yeah cos that's the same as fibro, vestibular migraine, pots, oa, heds, hip dysplasia, fibroids...๐
@DrScomaME_CFS I get the poisoned feeling, it's horrific, sounds dramatc but I honestly feel like I'm dying sometimes! I've not got lc or m.e, but had fibro, vestibular migraine, pots, oa & hsd for 13 years ๐ซ
@adamfare1996 I was getting one of my many only every 2 weeks up untill very recently, so annoying, now its 4 weekly which is better but there always some sort of mistake, something missing etc! It's never straight forward!
@fairyonlyangel Came here to see if this was a tweet straight after hearing her say that & it's literally the first one ๐๐คฃ I've been back n forth with my feelings on her but that pick me comment has done it! Yuk! ๐คฃ
@stirgussa Not quite the same but I was attacked by my ex while staying in family homes, at events, even my granny's funeral, but would go out the room & act completely normal as if I hadn't just been fighting for my life!
@JoannaNoBanana I forgot fibroids & suspect endo as I've had chocolate cysts & have symptoms for years but they won't do a lap, they just try to get me to get a marina coil but I refuse!
@sunsweptforest Yeah nsaids are a no for me as I get gastritis now from them ๐คข I've got some physio exercises, it's just finding the bloody energy & I'm obviously in a lot of other pain all over from fibro & yeah it's a tricky one ๐คฃ Thank you for using your limited energy to reply to me โค๏ธ
@sunsweptforest I've not been diagnosed with heds but joint hypermobility syndrome, which I think could actually be heds! They did say the early onset osteo, diagnosed 12 years ago at 33 was probably due to hypermobility. Did they do anything for your friends dysplasia? I've just been left ๐ฉ
@sunsweptforest Exercise defo doesn't help me, I've tried building up walking or a peddle bike so many times & I end up worse! I've got other illnesses too & osteoarthritis all over the place, my hip is really bad & hip displaysia, they say exercise helps, keep active..erm I can't mate! ๐คทโโ๏ธ๐คฃ
@sunsweptforest Thank you so much โค๏ธ Yes I do practice pacing most of the time although sometimes I think I'm better than I am & do too much! It's only recently I've realised the flu type symptoms (that never are an actual cold or flu) mean I'm about to flare up/crash!