kiraqa

I am a Mom to 4 amazing kids. One of them, Connor, who is 15, has Duchenne Muscular Dystrophy and Autism.

[Steve Chrzanowski @SteveChrz]

Really proud of this crew and everything they do for our Duchenne patients and families every week. Couldn’t ask for a better team @UMassChan.

And thanks to Fritz & Friends for the reminder — strength is more than muscle. 💪

#Duchenne #DMD

[Steve Chrzanowski @SteveChrz]

Our neuromuscular program at @UMassChan is growing, and we are hiring a Research Physical Therapist.

This role offers the chance to combine patient centered care with clinical research in a mission driven, team based environment.

Apply here: https://t.co/SHc7Zzl2eG

[kiraqa @kiraqa]

@MarkRober Connor was talking to @MakeAWish about possibly getting into the @GWR. I was hoping you could provide some insight into how difficult it might be? Connor has DMD and Autism and he just loves reading the books and has so many! He also loves @Ripleys.

[kiraqa @kiraqa]

@RoryDOConnor Congratulations!!

[kiraqa @kiraqa]

@DonDiablo Happy Happy Birthday!! Connor says he misses you!

[zaкovsкa @sanjazakovska]

Devs watching QA test the product

[kiraqa @kiraqa]

@dantdm Connor saved you! Lol

[kiraqa @kiraqa]

@dantdm Keely, Connor and Declan are fans!

[kiraqa @kiraqa]

@marshmellomusic You were genuine and kind. As a family we’re grateful we shared these memories with Connor who began us on this EDM journey. Autism and DMD gives many challenges for him but these moments are pure joy. Thank you again (2 yrs ago in Boston)! photo cred Ryan Hadji

[kiraqa @kiraqa]

@breedelstein Hugs!

[kiraqa @kiraqa]

@WMUR9 When will https://t.co/8k4xIgag6x be updated? It’s showing latest data as of 9 am yesterday.

[kiraqa @kiraqa]

@breedelstein I very much appreciate you keeping us informed. I will never understand the anti-media stuff. ❤️

[kiraqa @kiraqa]

Shocked I got a “DMCA takedown notice” for a twitter post from more than 3 years ago of my son with DMD and Autism enjoying a @BrunoMars song from @MarkRonson at an MDA Christmas party. Way to sweep him into a bucket of people that abuse this kind of thing. Unreal!

[kiraqa @kiraqa]

@DoveCameron Keely loves you! She loves you as Liv and Maddie and said you are amazing as Mal!! ❤️ She would like to know if it was hard to learn all the steps and sing in front of people (since she can only sing in the shower)? This was her 9th bday party!

[kiraqa @kiraqa]

@Zedd Enjoy! Wish we could be there!

[kiraqa @kiraqa]

@DonDiablo @GabbyJDavid Love it!

[kiraqa @kiraqa]

@DonDiablo @memoireboston Connor would love to see you!!!

[kiraqa @kiraqa]

@iBluestone Connor says hi!

[kiraqa @kiraqa]

@DonDiablo You are amazing!

[kiraqa @kiraqa]

@steveaoki I love this so much! Happy Birthday!