Karen Denmark

Maternity RN ‘til #mecfs arrived. #MEpedia. Tried #Ampligen. #Abilify is helping. USAF Nurse Corp vet. Mostly tweet ME CFS news. Joined Jan 2015

[Karen Denmark @kmdenmark]

@PneumaNeura Thank you so much 😊

[Karen Denmark @kmdenmark]

@pausedME I forgot. About the same time I started Abilify I also started medical cannabis for sleep. It’s not a panacea but it helped with better sleep. Perhaps it was both those things plus time.

[Karen Denmark @kmdenmark]

@pausedME I was bedridden for 12+ years and a couple years ago I slowly started to improve. I’m still recovering but I don’t need a wheelchair anymore. I’d say that I went from severe to moderate. Just wanted to give hope to others.

[Karen Denmark @kmdenmark]

@VNoelte12 @pausedME See my comments under Tim T and Canadian gymnerd. I wish I knew the secret so I help others but the only thing I can think of is starting Abilify about 3-4 yrs ago and time. Some get better after time spontaneously.

[Karen Denmark @kmdenmark]

@canadiangymnerd @pausedME See my answer under Tim T. I started Abilify about 3-4 yrs ago and that slowly helped. Other than that I haven’t a clue. Dr Lapp in NC said people often start feeling better after 6 years. For me it was twice that long.

[Karen Denmark @kmdenmark]

@tabler_tim @pausedME It was very slow improvement. I started feeling a bit better after I started taking Abilify but it took about 3-4 years. It still is a very slow and steady improvement. I wish I knew definitively so I could help others.

[Karen Denmark @kmdenmark]

@NG85522206 @pausedME My muscles got very weak but they are building up steadily. I only used the wheelchair for doctor visits and such. I would walk in my bedroom to the bath and back. Now the most I’ve walk so far was equivalent to a block or so. I find my back is the weaker than my legs.

[Karen Denmark @kmdenmark]

@AybeeinOH @pausedME Thank you

[Karen Denmark @kmdenmark]

@MECFS2011 @pausedME Thank you

[Mehdi Hasan @mehdirhasan]

Donald Trump pardoned six child sex abusers

[Karen Denmark @kmdenmark]

@renamemecfs I had aphasia at my worst. Now I can’t stop talking.

[Bottsie Hicks @BottsieHicks]

Seven years into my #MECFS journey, I got an appt. with Dr. Montoya's PA, who prescribed 800 mg Acyclovir 3/day (increasing dosage). I was warned of herxing...didn't. Started to see improvement the second week. I got 3.5 months of 'normal' then it just stopped working. No
1/x

[davidtuller @davidtuller1]

I spoke earlier today with @CGATistgeneticist Chris Ponting, a professor at the University of Edinburgh, about his recent piece for The Conversation regarding the plight of ME patients, medical misogyny, and related issues: https://t.co/r2rXFwBMEu

[Janet Dafoe @JanetDafoe]

Ron and I have made a video updating everyone about this work which should be out in about a week. It’s so hopeful! ❤️ 2/2

[Karen Denmark @kmdenmark]

@KSchnickelfritz You can add a neutral color to tie the colors together and stretch the amount of yarn further.

[Karen Denmark @kmdenmark]

@dsethlewis @reorigin_ It’s a grift. Save your money, time, and, most of all, your energy.

[Karen Denmark @kmdenmark]

@ThatEricAlper Skiing

[Karen Denmark @kmdenmark]

@ThatEricAlper Paul Simon

[Karen Denmark @kmdenmark]

@thejackhopkins 👍