Bottsie Hicks

ME/CFS since 2007 ~ I miss my life

[Bottsie Hicks @BottsieHicks]

@sunsweptforest Same here...trying but I need to rest... Take care.
🙏🫶🫂

[Tess Falor, Ph.D. | Renegade Research @tessfalor]

Isn't this expected based on the work of @BhupeshPrusty and Bob Naviaux?

"In this study, we found that none of 25 patients with ME/CFS had peripheral blood evidence of a fully reactivated HHV-6 or HHV-7 infection, and only 8 of 20 (40%; 95% CI = 0.19–0.64) had evidence of partial reactivation measured by FISH analysis of HHV-6 small noncoding RNA U14 in whole blood. However, using an in vitro reporter cell assay, we showed that serum from ME/CFS patients contained an activity that produced mitochondrial fragmentation, decreased mitochondrial ATP production, and induced a powerful antiviral state."

https://t.co/fUtHuMiePL

[Bottsie Hicks @BottsieHicks]

@seanstidston @Ronaldw_Davis We'll see...

[Bottsie Hicks @BottsieHicks]

Very interesting preprint from @Ronaldw_Davis's Stanford group! It backs up Lipkin's (aka The Virus Hunter) study concerning viruses present in #MECFS patients.
Ron said several years ago he didn't think antivirals were going to be the answer. Looks like he was right...again. 🧩

[ME/CFS Science @mecfsskeptic]

1) New preprint from the Stanford group of Ron Davis.

They looked for 185 human viruses, and found traces of 17 viruses in patients or controls. "Surprisingly", the authors write "more viruses were found in the healthy controls than in the ME/CFS patients."

[Bottsie Hicks @BottsieHicks]

@seanstidston @TomKindlon Hope that Ron and his team are on the right track.

[Bottsie Hicks @BottsieHicks]

@32Sfc46582 @Ronaldw_Davis Yes, it seems to have multiple triggers...which causes a cascade of symptoms that can vary greatly. I'm agreeing more and more that we need to focus on the switch that needs to be reset. I don't feel symptom subsets will be as crucial if that can be done.

[Bottsie Hicks @BottsieHicks]

@32Sfc46582 @TomKindlon Not sure if this is for me or Tom... I attended but got discouraged at the end when they predicted 10 more yrs to find answers. I feel answers are closer than that. Ron is following body systems, not symptoms, which is what their focus seemed to be.

[Bottsie Hicks @BottsieHicks]

@32Sfc46582 @Ronaldw_Davis Not sure, Romain...not able to dive into this right now. I was wondering how long the ME/CFS patients had been ill. That might determine whether they were sick before Covid hit or after.
I needed this today~gives me hope again.
Ron can always be trusted to follow the science. 🧩

[Bottsie Hicks @BottsieHicks]

@CureLongCovid That's great! When you love what you do, it's a calling...not just a career or a job. 🫶🙌🫶

[ArianeK 💜 #Care4Complex (she/her) @arianek]

Next up: @DrRebeccaRyan!

Immediately talking about autonomic dysfunction, POTS, and MCAS, in the context of “functional” GI disorders - which she points out are NOT psychologically driven.

So excited for this one.

#ICanCME2025

[Bottsie Hicks @BottsieHicks]

@joshual_tm @exceedhergrasp1 @MEActNet

[Bottsie Hicks @BottsieHicks]

@I_need_a_razor 🙏🫶🫂

[Bottsie Hicks @BottsieHicks]

@FatigueMe92484 @tessfalor @doc4care @arta_semita @Naomi_D_Harvey Sorry, but I'm not able to read all of this atm. It would be difficult at any time, but right now I'm trying to recuperate from the ICanCME conference. I'll try in a couple of days.🤞🙏🤞

[Bottsie Hicks @BottsieHicks]

@tessfalor @CureLongCovid (Julie, perhaps your daughter?) @DrMaureenHanson @CenterRes @JackHadfield14 @atranscendedman @ngklimas @LBatemanMD @Rivkatweets
Contact Dr. Jarred Younger at University of Alabama Birmingham. :)

[Bottsie Hicks @BottsieHicks]

@NeurologistMom He is the reason Hillary Johnson @oslersweb called her expose' on ME/CFS "Osler's Web".

[Bottsie Hicks @BottsieHicks]

@32Sfc46582 @x3r0gx4 @minadjenkins @sunsopeningband Romain, after thinking about presentations in the conference, I'm more firmly convinced that @OpenMedF's team working on Phair/Davis Itaconate Shunt Theory and Naviaux's Cell Danger Theory are where we need to concentrate...reset the switch that's causing the cascade of symptoms.

[Bottsie Hicks @BottsieHicks]

@minadjenkins @sunsopeningband 💪🙏💙🫂