kvkdev

Dreamer. Believer. Doer. Even against all odds .Father of a Hunter syndrome son. Techie by prof.

[RARE Revolution Magazine® @RareRevolutionM]

#ICYMI Bob Stevens argues that traditional rare disease trials are often unethical, urging global regulators to urgently adopt biomarker-validated endpoints to accelerate the development of life-saving treatments for desperate patients

https://t.co/9WHzG6v0RI

[Andhra Nexus @AndhraNexus]

Interesting......

IBM is already set to install its quantum computer in Amaravati by the end of this year, and many companies are now coming forward to invest in Amaravati.

[Rare Diseases India Foundation @RDIFoundation]

Join us for International MPS Day 2026 & the Grand Launch of "SHAURYA: A Father's Promise - a moving story of hope, courage, and unconditional love that inspires beyond boundaries.
03 June 2026 | 03:00 PM - 05:00 PM
Sir Ganga Ram Hospital, New Delhi
Be a part of this meaningful

[Andhra Nexus @AndhraNexus]

🚨 AP requested the Centre to grant approvals for Vizag and Vijayawada Metro rail projects at the earliest.

▫️Minister Narayana met Union Minister Manohar Lal Khattar in Delhi
▫️RITES proposed a 13 km double-decker corridor for Vizag Metro
▫️Report submitted to the Centre

[National Organization for Rare Disorders (NORD) @RareDiseases]

If you hear one quote from the 2026 NORD #RareDisease Scientific Symposium, let it be this:

"Less than 5% of rare diseases have an #FDA-approved treatment. We want to get that number up to about 25%.” - #NIH NCATS Dep. Dir., Dr. Annica Wayman

Read our highlights recap and watch full recordings: https://t.co/rN07UOjIWL

[Ram Mohan Naidu Kinjarapu @RamMNK]

The real strength of Srikakulam lies in its beautiful coastline, untouched beaches, and the serenity of nature. Our coastal belt offers some of the most scenic experiences in Andhra Pradesh.

Come and experience the beauty, peace, and charm of Srikakulam yourself.

[Lokesh Nara @naralokesh]

The Gazette notification establishing the South Coast Railway Zone with headquarters at Visakhapatnam is a defining moment for Andhra Pradesh’s connectivity and economic growth.

Truly grateful to the Union Government, under the visionary leadership of Hon’ble Prime Minister Shri @narendramodi ji and Hon’ble Railway Minister Shri @AshwiniVaishnaw ji, for this historic notification. This move significantly strengthens Andhra Pradesh’s rail infrastructure and operational efficiency.

I’m delighted that a long-pending aspiration is now fulfilled. This milestone will boost regional development, enhance connectivity, and unlock fresh opportunities for our people. My sincere thanks to Hon’ble Chief Minister Shri @ncbn garu for his relentless efforts in making this a reality.

[National Organization for Rare Disorders (NORD) @RareDiseases]

Follow along live now through Friday as Eric runs the #Cocodona250 to raise money and awareness for the 1 in 10 Americans with a #RareDisease!

Track his 250-mile #ultramarathon journey across #Arizona here: https://t.co/dGqLZFcs35

You can also meet him at the finish line at Heritage Square in #Flagstaff!

[Andhra Nexus @AndhraNexus]

Sritech Data Ltd to set up a Cable Landing Station (CLS) in Vizag with an investment of ₹1,800 Cr.

🔹 Subsea cable connectivity from Singapore
🔹 Agreement signed with global telecom giant Orange Group
🔹 Project completion target: 36 months
🔹 Mission-critical infrastructure for hyperscale data centers
#AndhraPradesh

[kvkdev @kvkdev]

Do you remember when you joined X? I do! #MyXAnniversary

[REGENXBIO @REGENXBIO]

REGENXBIO has pioneered the field of AAV gene therapy and we're continuing to innovate how this important science can be safely delivered to patients. See the latest publication from our esteemed research team on next generation capsids: https://t.co/GR2aEiASUN

[REGENXBIO @REGENXBIO]

We are pleased to announce an exciting strategic partnership between REGENXBIO and Nippon Shinyaku for the development and commercialization of RGX-121 and RGX-111 for the treatment of MPS II and MPS I. #JPM2025 Learn more: https://t.co/nBpHvlZyup

[kvkdev @kvkdev]

@AmazonHelp Finally my refund is successful.

[kvkdev @kvkdev]

#amazonindia
@amazonIN I raised a return request over a month ago, yet despite multiple calls, the item hasn’t been picked up. I’m promised a resolution in 48 hours each time, but nothing changes. This is not customer obsession—please address this immediately.

[kvkdev @kvkdev]

@AmazonHelp @amazonIN Refund is another 13 days from the pickup #pathetic

[kvkdev @kvkdev]

@AmazonHelp @amazonIN Is there an update on my refund?

[Prasanna Shirol @Prasannashirol]

Happy to be part of a great event to support #SMA patients with life long medicine in #Bengaluru #Karnataka at #IGICH Hope same support for all #rarediseases by #govt @dineshgrao @S_PrakashPatil @ORDIndia Thanks to #CPCT trust