Latuch

[🔬 Guty Schnauzer @guty2370]

👁️ ¿Y si una lágrima y un examen del ojo pudieran ayudar a diagnosticar la COVID persistente?

Un nuevo estudio de la Universidad de Linköping (Suecia), encontró alteraciones inmunológicas y nerviosas en personas con síntomas oculares persistentes tras una COVID-19 leve.
🧵

[Picapi @picapiruli]

Ministra, no es usted quien debería informar de esto y no vender o permitir que la oposición afirme que los que cogen una baja es a causa del absentismo?
@Monica_Garcia_G

[Latuch @la_tuch_que]

@gattaca2titan Ánimo y mucha suerte

[antonio gonzalez @poetricus2]

"Un estudio revela que el 83% de los afectados de covid persistente necesitó una baja de más de un año.

La investigación realizada en Andalucía también constata que el 23% de estas personas sufrió recaídas que obligaron a nuevas bajas".

https://t.co/GQ2NE02kr8

[Long Covid Euskal Kolektiboa. @Euskalkolektibo]

@mimundodisautonomo

[🔬 Guty Schnauzer @guty2370]

🧬 Nuevas pistas sobre el EM/SFC.

Un estudio acaba de analizar las proteínas transportadas por las vesículas extracelulares de pacientes con EM/SFC.

¿El resultado? 🧵

[🔬 Guty Schnauzer @guty2370]

@longcovidlabs compartió un estudio que abre una vía muy interesante.

Un fármaco para la demencia se muestra prometedor para los síntomas persistentes de la COVID-19, según un estudio liderado por Japón.

#LongCovid

Va hilo 🧵
Agradezco RT

[Denis - The COVID info guy - @BigBadDenis]

A new study finds the dementia drug Donepezil helps treat Long COVID fatigue and depression. The virus triggers a protein that drops brain acetylcholine; Donepezil restores it to clear brain inflammation and symptoms.

https://t.co/RKaTjOq2f0

[Cindi Leacock @cin8di]

One of the cornerstones of my recovery from ME/CFS has been CO₂ breathing. I hope this helpls you as much as it does me all day every day.
I rarely talk about it because it sounds too simple, but it has been one of the most consistently helpful tools I have used.
Most people think oxygen is the whole story. It isn't.
Carbon dioxide (CO₂) plays a critical role in regulating blood flow, oxygen delivery to tissues, autonomic nervous system balance, and the body's response to stress. When we chronically overbreathe, sigh frequently, breathe through the mouth, or remain stuck in a fight-or-flight state, CO₂ levels can fall below optimal levels.
Low CO₂ can contribute to:
• Reduced oxygen delivery to tissues (the Bohr Effect)
• Vasoconstriction and reduced blood flow
• Increased sympathetic nervous system activation
• Feelings of air hunger
• Dizziness and lightheadedness
• Poor exercise tolerance
• Heightened anxiety and nervous system instability
As I recovered, I practiced gentle CO₂ breathing daily.
My method was simple:
Breathe through the nose whenever possible.
Breathe slowly and quietly.
Focus on making the breath smaller, not bigger.
Allow a mild feeling of "wanting a little more air."
Never force, strain, or create distress.
Practice for a few minutes several times a day.
The goal is not oxygen deprivation.
The goal is gradually improving CO₂ tolerance and teaching the nervous system that it is safe to remain calm.
Over time I noticed:
• Calmer nervous system function
• Less internal "wired" feeling
• Better autonomic stability
• Improved tolerance for activity
• More relaxed breathing patterns
• Better ability to remain in a parasympathetic state
• Improved resilience during recovery
I am definitely not claiming CO₂ breathing cures ME/CFS!
But for me, it became one of several foundational practices that helped create the physiological conditions for healing.
The key is gentle repetition over months, not heroic effort.
As with everything in ME/CFS recovery:
Small.
Calm.
Consistent.
Carbon dioxide (CO₂) plays a critical role in regulating blood flow, oxygen delivery to tissues, the balance of the autonomic nervous system, and the body's response to stress. When we chronically overbreathe, sigh frequently, breathe through the mouth, or remain stuck in a fight-or-flight state, CO₂ levels can fall below optimal levels.

[DENTRO_MADRID🥑🥝🍌🥦🥬🍇 @CER_OF_AUT]

👉Si tienes #covidpersistente o cualquier otra enfermedad crónica, y has tenido que sufrir al INSS en tus valoraciones para pedir la incapacidad, y te la han denegado aludiendo que estás sano porque todavía tienes piernas, ojos y brazos en el lugar correspondiente en tu cuerpo, firma y difunde la petición adjunta que va dirigida @DefensorPuebloE

👉Si no sufres covid persistente ni ninguna enfermedad crónica, pero tienes amigos o conocidos que ´si, ayúdanos a recoger firmas y difunde. No te llevará más de un minuto. Gracias!

🚨Por si no lo sabes, el INSS, como protocolo, está denegando cualquier petición de incapacidad, perjudicando la salud de las personas con covid persistente , haciéndoles incorporarse al puesto de trabajo, promoviendo el empeoramiento de los síntomas de esos enfermos.
Esta actitud desde la administración es negligente y se está mirando para otro lado, haciendo que miles de pacientes se encuentren en un limbo social, por la mala praxis del inss, sin recursos y sin ayudas.

https://t.co/k8F8cv49k4

[Manuel Ruiz @manruipa]

No estoy de acuerdo.

La historia de la medicina está llena de enfermedades que se etiquetaron como “psicosomáticas” hasta que se descubrió su base orgánica. Que las experiencias adversas puedan tener efectos biológicos no justifica usar eso como explicación principal cuando aún no entendemos bien una enfermedad.

El problema es precisamente ese: cuando no hay biomarcadores claros o tratamientos eficaces, muchas veces se vuelve a culpar al paciente o a su historia personal, en lugar de seguir investigando la fisiopatología real.

[Andrew Green @AndrewG76201347]

@WIRED Let me guess, brain retraining cures cancer, AIDS & Ebola as well? That’s the level of snake oil you are selling here.

[Manuel Ruiz @manruipa]

‼️⚠️Please read this until the end.

A widely shared article has presented a deeply misleading view of Long COVID, suggesting once again that cognitive behavioral therapy, exercise, and “mind-body” approaches may be the uncomfortable truth patients refuse to accept.

This needs to be challenged.

Not because the nervous system does not matter.
Not because psychological support cannot help.
But because confusing support with cure, physiology with psychology, and heterogeneity with “it might be in your head” is exactly how medicine has harmed post-infectious patients for decades.

There are articles about Long COVID that look like science journalism, but in reality they repackage, in modern language, a very old idea: if we do not fully understand a disease, maybe the problem is in the patient’s mind.

And that is not science. That is repeating history.

The article begins with a striking sentence:

“There isn’t a single approved pharmaceutical treatment, not even a test to verify the presence of the illness.”

This may sound forceful, but it is a very misleading way of presenting the problem.

The fact that there is still no drug specifically approved for Long COVID, or a single diagnostic test, does not mean that “nothing has been found.” It means that we are dealing with a heterogeneous disease, probably with several biological subgroups, and that medicine has not yet converted those findings into validated clinical tools.

“No single diagnostic biomarker” is not the same as “no biology.”

In just a few years, immunological, vascular, neurological, endocrine, and metabolic abnormalities have been described in subgroups of Long COVID patients: autonomic dysfunction, herpesvirus reactivations such as EBV/HHV-6, alterations in the cortisol axis, autoantibodies against GPCR receptors — including adrenergic and muscarinic receptors — persistent viral antigens, endothelial damage, muscle abnormalities after exertion, mitochondrial dysfunction, persistent inflammation, and differential immune changes.

Is everything settled? No.

Does that mean it is psychological? Also no.

Science does not work like that. Multiple sclerosis did not stop existing before we had MRI. Many autoimmune diseases do not show up in routine blood tests. If a complete blood count, a basic biochemistry panel, or an X-ray comes back “normal, normal, normal,” that does not prove the absence of disease. It only proves that you are looking with inadequate tools.

One of the article’s most serious mistakes is this: it confuses the absence of a simple clinical test with the absence of organic disease.

And that mistake has caused harm for decades.

The article also says:

“Almost $2 billion and half a decade of international effort have yielded little more than hypotheses about micro blood clots and spike proteins and mitochondrial dysfunction.”

No. That is not correct.

A hypothesis is a provisional explanation. But when you compare patients and controls and find significant differences in muscle tissue, metabolism, response to exertion, immune biomarkers, viral antigens, autoantibodies, or vascular dysfunction, you are no longer talking about “little more than hypotheses.” You are talking about lines of biomedical evidence that still need to be organized, replicated, stratified, and translated into treatments.

That is not scientific failure. That is research into a complex and new disease.

🔵Continued in the next post.👇🏻
(1/6)

[Burnt Out Cat (CovidSolidarity) @CovidSolidarit1]

Here’s some advice for Long Covid sufferers: NEVER speak to a researcher or journalist unless you know for a fact that they are sympathetic to your views. At the very least Google who they are and what they’ve written about in the past.

[💜Javichu @javichu73]

Las personas conocidas son solo la punta del iceberg de lo que está pasando...

El sufrimiento del covid persistente: una concejala de Xàbia que lo sufre se ve obligada a dimitir y pide investigación para las "enfermedades invisibles"

https://t.co/8fW7sR3nAA

[Manuel Ruiz @manruipa]

🩵I think this is the future.

Deep B-cell depletion + antivirals may be the first real curative strategy for ME/CFS and Long COVID — although some patients may still carry permanent sequelae from previous autoimmune damage.

[Burnt Out Cat (CovidSolidarity) @CovidSolidarit1]

POLL

If you have Long Covid, how do you feel physically compared to one year ago? (Overall).

[rbenlg @rbenLG]

Vivir siendo invisibles con #covidpersistente:
Es una enfermedad invisible, lo cual la sociedad ni entiende ni se esfuerza en comprender.
Y nosotros somos reales, padecemos y sufrimos continuamente, y no invisibles como realmente nos trata el sistema.

[Steve T @noxygen]

To people in the LC world, are there any studies that look at bone fracture abnormalities? Thank you in advance 🙏🏽🩵

[rbenlg @rbenLG]

Y pq no se hacen auditorías a los médicos como en la mayoría de empresas?
Es injustificable que no se renueven y que 6 años después aún haya sanitarios q cuando les dices q sufres #covidpersistente no sepan por dónde les da el aire.
#longcovid
https://t.co/l8WG29EiPj