Elaine Freemantle

Mum to Pans son who suddenly changed without notice!! Trying to get help to bring him back which is harder than you would expect!!! #pandaspans

[Elaine Freemantle @laineyfree16]

@SuellaBraverman They are just like giant pit bulls and much more lethal they must be banned!

[Kathryn Gillett @kathryn_gillett]

@DrNighatArif on @thismorning talking about #StrepA & the complications. Keep an eye out for the symptoms of this awful bacterial infection but also the horrendous complications that can occur #RheumaticFever & #PANDAS.

@PandasPans

https://t.co/h3pIk2Vb7V

[Sarah Hughes @SHughesDr]

Thank you @PandasPans for asking me to be a Trustee!
I only hope I can contribute to the charity as a Trustee in a meaningful way. Raising awareness of #PANS #PANDAS in the UK is so desperately needed to help all the families trying to manage these conditions.
@NurseDiane2020

[Helen - Twinkl CPD @HelenTwinklCPD]

👉 Have you heard of PANS/PANDAS?

SEND Digest has previously published an article for educators about supporting children who have #PansPandas. Now, with the help of @PandasPans, we have our PARENTS version.
@TwinklParents #TwinklDigest

https://t.co/D9CMGsGOyI

[Paula Scott @PaulaScottUK]

#Pans #Pandas severely affects children around the world. Awareness, research & support is urgently needed in the UK @NHSEngland @BBCCiN #NHS #ChildreninNeed

[Hope @hopestardust20]

When your 10 yr old daughter thks Santa for making her older sister better (it was on her list last yr) if #Pans #Pandas @PandasPans is suspected Abx should be trialled first. Penicillin for Impetigo in Jan helped within 2 weeks @thismorning @AlisonHammond #pansPandasHour

[Georgie Armstrong @georgiearms]

@sajidjavid @CGATist @ngklimas @SonyaChowdhury Way more needed for immune mediated neuro inflammatory conditions #PANS #PANDAS too! Thousands of children suffering. Many GPs & paediatricians have never heard of PP! Children left to suffer intolerable symptoms for years, and many suffer into adulthood https://t.co/NtCm4XnBj0

[Paula Scott @PaulaScottUK]

Could a child in your school or surgery have PANS or PANDAS? #edutwitter #Teachers @EveryDoctorUK @WeNurses @CAMHSNetwork @CAMHSNews @NELFT_EWMHS @NurseDiane2020 @PandasPans

[Dr Carrie Grant MBE (hc) 💙 @CarrieGrant1]

My child, in hospital earlier in the year, no camhs follow up or help, incident last evening, ambulanced, been with them in A&E since, I'm trying to sleep on floor, no beds available on ward for them, still waiting for #Camhs THE #MH SYSTEM IS BROKEN #autism

[Sonia S. @soniaserrano0]

@PandasPans @JaneBir31840744 Do we know if by CBT being less effective could also mean negative effect? @aylott_laura didn’t you say it was a negative effect for your son?

[Awareness @RuudGrethe]

Making a difference together #PansPandasHour
#PANS #PANDAS

[Sonia S. @soniaserrano0]

Here are some #SSRIs and #antipsychotics for your child’s neuro inflammatory disease. #PANS #PANDAS #pansoandashour @BPNA_org are you now listening?

[laura aylott @aylott_laura]

The @BPNA_org did not mention this in their recent statement these children need so much more than they are receiving #PANS #PANDAS #panspandashour @NHSEngland its time for a change

[Dritan Agalliu @DAgalliu]

I hope it became clear to everyone from our molecular and human genetic data presented at the webinar with @PANDASPPN that PANDAS/PANS is a neuroinflammatory disease. Thanks to @PANDASnetwork for supporting our research!