Lateefquraishi

[Lateefquraishi @lateef450]

@ORDIndia @PMOIndia @MoHFW_INDIA @biogen @SPINRAZA @ArvindKejriwal @TelanganaCMO Please help SMA affected children in India .
My Daughter Zunaira Quraishi SMA TYPE 2 is suffering and waiting for the treatment in India.
Help saving the life of SMA PATIENTS @curesmaindia @CureS

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Dreams that cannot be stopped by limitations! 💪 #SMA warrior Shafna wins the prestigious NMMS Scholarship 🏆

A proud moment for all of us !
https://t.co/mZRZUHoAqi

#Achievement #Motivation #KeralaNews #BraveHeart
#ScholarshipWinner

[Lateefquraishi @lateef450]

@curesmaindia @IndiaCoastGuard @cyberabadpolice @TelanganaCMO @MoHFW_INDIA @TelanganaDGP @DefenceMinIndia @SethSanjayMP @SpokespersonMoD @MIB_India @PIB_India @ani_digital Appreciate the support @coastguardind @IndiaCoastGuard

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

@IndiaCoastGuard @cyberabadpolice @TelanganaCMO @MoHFW_INDIA @TelanganaDGP @DefenceMinIndia @SethSanjayMP @SpokespersonMoD @MIB_India @PIB_India @ani_digital Heartfelt gratitude 2 @IndiaCoastGuard 4 coming forward 2 support ur cause of spreading awareness on early screening n prevention of #SpinalMuscularAtrophy thru #RunForSMA event on 10th Aug in #Hyderabad. V hope 2 have huge numbers n gathering 2 support,@curesmaindia 👍🙏.

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Dr.Radha Rama Devi, Senior Geneticist, Dr.Giriraj Chandak, expert on Rare Diseases, CCMB @chandakgrc & our SMArt Warriors Pratyush n Anushka for joining us in this event.
See you on 10 Aug 2025, 6AM in Gachibowli stadium to join the Run!!! #SMAAwareness #RunForCause #RunForSMA

[Tata Institute for Genetics and Society, India @TIGS_India]

@3RakeshMishra gave his remarks on the need to develop non invasive diagnostic methods for early detection of SMA. He also emphasised the need to conduct research in developing indigenous therapeutics for SMA.

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

@TIGS_India We at @curesmaindia are grateful to @TIGS_India n @3RakeshMishra ji @ShivranjniM for the collaboration. Indigenous research is d only way to bring affordability to the #Raredisease n #SpinalMuscularAtrophy ecosystem. We hope for some breakthroughs in the near future.

[Tata Institute for Genetics and Society, India @TIGS_India]

Recently, @curesmaindia organised #SMArtCON 2024, a 2 day conference involving various stakeholders to share insights on indigenous research in Spinal Muscular Atrophy, latest advancements such as new disease-modifying therapies and multidisciplinary supportive care for SMA.

🧵

[Lateefquraishi @lateef450]

@curesmaindia @Syniti Appreciate and Thanks to @Syniti for supporting cureSMA 🙂

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

We r honoured 2 have Mr Vijay Garud, Managing Director, @Syniti, n
Mr Srikanth, Director, HR, @Syniti join us in commemorating #RareDiseaseDay n supporting #SMArtWarriors
Tku @syniti 4 yr generous donation of medical equipment and motorised wheelchairs 2 SMA patients🙏.

[Shahnawaz @AlamDlp]

@curesmaindia @sardesairajdeep @Milan_reports Many many Thanks to @IndiaToday

[Adv Lalit Mokate @adv_mokate]

@curesmaindia @sardesairajdeep @Milan_reports #NarendraModi @CMOMaharashtra @mansukhmandviya plz see this 'rear diseases it's life threatening disease..inspit that Medicine is available..our children is dying..we are 5th largest economy in world and we have sacrificed our #smaworriers due to negligence of rare disease. 🙏

[Srilakshmi Nalam @srilakshminalam]

@curesmaindia @sardesairajdeep @Milan_reports Children with SMA, the most fatal rare disease are left without any help from govt in spite of an approved drug #Risdiplam. We are losing children at an alarming rate. #PMOIndia #NarendraModi you are the only saviour🙏

[TnPriya @RPriyaaa]

@curesmaindia @sardesairajdeep @Milan_reports am mother of 2 SMA kids.V have medicine for #SMA named #Risdiplam its not affordable sir delay treatment will loss many #SMApatients.Kindly take action on it.Thanks🙏 @sardesairajdeep sir for supporting us
@RareDiseasePatients
@curesmaindia #rights2live
#everylifeisprecious

[Mohsin Khan @MohsinK94336440]

@curesmaindia @sardesairajdeep @Milan_reports Pls intervene rare disease policy asap @MoHFW_INDIA @PMOIndia @nsitharaman as we are losing lives of #SMA patients bcoz highly expensive drug which can't afford and evryday as a parent struggling to save our kids life, inspite of drug #Risdiplam approval in india @curesmaindia

[Moumita_SMA_Mom @MoumitaG_17]

#RareDisease #constitutionalright #right2health #Right2Life #everylifeprecious #Treatment4All #treatmentaccess #BattleAgainstSMA #Curesmaindia

[manopriya @manopri07646295]

@alpanaS16 @curesmaindia @sardesairajdeep #RareDiseasePatients from @curesmaindia pls with the help of Little fund we can get medicine available in India #Risdiplam can save #SMA kids life. We r requesting our government to help us.#BattleAgainstSMA

[Alpana Sharma @alpanaS16]

Patient & parent @curesmaindia r livin r worst nightmare We hv been requestin 4 Govt intervention but r loosin precious live despite an approved therapy being available but not accessible #Risdiplam can save lives @sardesairajdeep thanks 4 being the voice of #RareDiseasePatients

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Patient & parent of @curesmaindia r livin r worst nightmare V've been requestin Govt 2 intervene as v r loosing precious lives despite n apprvd drug #Risdiplam available in India dat can save lives @sardesairajdeep n @Milan_reports tks 4 raising plight of #RareDisease patients

[Dr. Rohit Saxena 🇮🇳 ( Modi ka Pariwar ) @merohittsaxena]

@curesmaindia @Subhash44690696 @AlamDlp @PBusiness_1 @JoshiPralhad @LokSabhaSectt @loksabhaspeaker @Birlaoffice @ombirlakota @mpa_india @drharshvardhan @narendramodi @PMOIndia [email protected]

[Santoshi Korada @santoshi_korada]

@curesmaindia sir we very worried about our SMA community kids, please save their https://t.co/tT4T1X8Stp another kids life in dangerous . https://t.co/gnJCd42tIP