Lauren

[Lauren @laurenproffitt_]

@Leic_hospital @leicesterliz @LPTnhs This is well overdue! Please stop people with ME/CFS being referred for CBT and GET. Train staff/GPs to not belittle and shun those afflicted with this illness. https://t.co/S317OYxB7B

[#MEAction Network UK @MEActNetUK]

Incredibly passionate speech from Stephen Pound MP.

Watch as he demands the House devotes its intelligence and its resources to research, ultimately to resolve and cure this terrible condition.

#MEdebate #millionsmissing #pwME

[Lauren @laurenproffitt_]

@MiyaEllen @RedCollectiveUK Are you joking? He was on £220,000 a year and is allowed to retire on full Police pension. He’s hardly a pauper.

[Lauren @laurenproffitt_]

@veneskko @NetherBro87 You can rename them, just can’t change the appearance

[Lauren @laurenproffitt_]

@ClrBlwrs @ObserverUK @chloehadj I’ve had Drs tell me that I managed to brush my hair or put
lipstick on or a dress, I can’t be as ill as I say 🤦🏻‍♀️ or to exercise & push myself more…when that’s against NICE guidelines for my illness.

[Lauren @laurenproffitt_]

@lifeatthenest @cathdearth They also had property in France at the time so did have somewhere to live

[Lauren @laurenproffitt_]

@moselbucket99 @Clare_Draycott @LissaKEvans It’s the false hope with regards to Corticobasal Degeneration & that “Moth” miraculously improved after these long walks. If you read the article, they quote multiple neurologists who find the improvements unbelievable & impossible.

[Lauren @laurenproffitt_]

@CW4240094465278 @London_W4 The disabled person who the car is registered to has to be with you in the car, it’s not for some random to just use whenever they want. Enforcing the rule is the problem against those that use a family member’s care and badge illegally.

[Lauren @laurenproffitt_]

@bands_justin Especially when Michael said just before that, that he’s Jewish. So she’s exposing her own unconscious bias about Jewish people and Muslims.

[Lauren @laurenproffitt_]

@HarriPodd @sunflowerlaur_ But the constant “inspiration porn” is a bit annoying though. They don’t need to be saying he’s so inspirational all the time.

[Lauren @laurenproffitt_]

@CynicalBrit2023 @LBC @TomSwarbrick1 You only have to look at FB or Reddit to see the groups on how to fill in PIP forms to guarantee you get it. What to say to GPs for mental health for long term sick etc.
I get PIP & it was so difficult despite being disabled &housebound. Yet others seem to get everything easily

[Lauren @laurenproffitt_]

@bankofdad61 @vvatherton @LBC @TomSwarbrick1 I suppose he’s adding on child benefit, housing benefit, UC, etc so total combined benefits. Which is crazy bc I’m in my 30s & still have to live with my parents yet am disabled & housebound and not entitled to support other than PIP.

[Lauren @laurenproffitt_]

@PhoebsBo Can I ask what you mean by you have “the kind of ME” in which you rarely catch colds?

[Lauren @laurenproffitt_]

@DrNighatArif I wish my GP practice cared more about things like this. I’ve had period problems since my teens and the only advice is take the pill, lose weight or have a baby 🤦🏻‍♀️

[Lauren @laurenproffitt_]

@melaniedoak @KrissyBalls @MelissasOldNose I think she meant Louie’s son who has the same name

[Lauren @laurenproffitt_]

@AaronCa11 On the other hand,at least there are LC clinics being set up within 4 years. It took me many years for an M.E. diagnosis & a really long time to be referred-though only ever saw a mental health nurse. Waiting times were bad pre-pandemic but nhs still blames Covid for the backlog

[Lauren @laurenproffitt_]

@tinnershares @NursePandaRN @JohnLeFevre Maybe they’re confusing the Brontës with Austen.

[Lauren @laurenproffitt_]

@PhoebsBo @Katty1962 @MelJStride It also depends heavily on the assessor on the day. If they don’t personally understand the applicant’s illness, the scores/outcome don’t always reflect what is said or written or evidence from doctors. Why else are so many accepted on appeal rather than the assessor’s judgement

[Lauren @laurenproffitt_]

@SaraAna66550269 @EleriCake Yes, I have Botox injections in my masseter muscles for TMJ and I’ve seen a decrease in headaches. I have TOS too as well as ME so headaches are a massive part of my symptoms & it’s improved things when meds didnt

[Lauren @laurenproffitt_]

@Esp0sa @DrSdeG May I ask what the probiotic was called?

[Lauren @laurenproffitt_]

@DrSdeG @Blue0ranges But many of those not eligible for free prescriptions still find it hard to find the money for nearly £10 for each item prescribed

[Lauren @laurenproffitt_]

@Paula_JKnight I’ve experienced this too. Had positive ANA and symptoms of Lupus but Rheumatologist didn’t think it was worth exploring any further because ANA didn’t mean anything then spent the rest of the appt telling me to watch tai chi videos on YouTube & a BBC docu about painkillers 🫣