marisa 💜

24. Creator, Dancer, Artist. #LongCovid since Jan 2022

[marisa 💜 @lcwithme]

My #LongCovid billboard is now up & running!!😆 So proud of myself! It’s located in Santa Clara, CA on highway 101 & is on east bound traffic (left side of road) for anyone who’s nearby & wants to see it. So far it has over 17k impressions🙏 1/

[elle carnitine 🍉 @elle_carnitine]

microdosing death by having post exertional malaise

[PolyBio @polybioRF]

It’s great to see the PolyBio-supported Long COVID tissue bank and LIINC collaborative featured in Men’s Health this week! Collaborating with Dr. Michael Peluso has driven forward PolyBio’s work and the Long COVID field at large. Check out the article 👇🏻

https://t.co/7TgHrxsAEv

[charlos @loscharlos]

"The third misconception is that people don't get #LongCovid anymore... we still see plenty of people who develop long COVID after their second, third, fourth, fifth, episode of COVID." — @MichaelPelusoMD https://t.co/dZA9Sph7Z1

[marisa 💜 @lcwithme]

This was not the life I imagined for myself. I just know this wasn’t supposed to happen to me. To us. We deserve better. We deserve approved treatments. #mecfs #longcovid #grief

[marisa 💜 @lcwithme]

@tracinnasv Did your EBV ever reactivate?

[marisa 💜 @lcwithme]

Valtrex is just making me feel so much worse & decline drastically. Can anyone share their experience please if they have taken it & if so for how long? #MECFS #LongCovid

[marisa 💜 @lcwithme]

@seanstidston Did your EBV ever reactivate?

[Steven Phillips, MD @StevePhillipsMD]

A healthy person has a thousand dreams. A sick person only has one.

[Pintu @Pintuu0]

Fr

[charlos @loscharlos]

“She contracted her third case of COVID-19 in the spring of 2025. Since then, she has been house-bound due to severe fatigue and heart issues related to the infection.

#LongCovid has not disappeared. People continue to develop the condition after new COVID infections.” — @WHO

[marisa 💜 @lcwithme]

Truth is I’m still disabled, I’m still not recovered, and I’m still living a nightmare four years later after getting a mild covid infection that drastically changed my life. #longcovidawareness #thisneedschange

[marisa 💜 @lcwithme]

It’s very hard to accept this reality even after 4 years. It’s just all happened too soon, too quick. And before I knew it, my life was never the same again. #grief #loss #mecfs #longcovid #chronicillness

[Juul @tiredjuul]

Ally who has been under treatment for 34 at the Spero clinic is writing for the first time again!

[marisa 💜 @lcwithme]

@alexandrite113 Congrats Amy!🫶

[marisa 💜 @lcwithme]

@linds_longcovid Girl same I feel you…😔🫂

[Melissa Challenor M.UrbDes @urbanmel]

1. People are surprised when they realise the things I say about my disabilities and how I live my life are true

Yes, I do live in my bed

Yes, I am in pain 24/7

Yes, I never wake up refreshed

Yes, ANYTHING I do causes PEM/PENE

Yes, I wake up and go to sleep with a headache

[marisa 💜 @lcwithme]

Not only did I not feel heard or seen but I didn’t think that someone with over 2 decades of experience wouldn’t know that severe/very severe or bedridden patients with ME/CFS can experience that. Has anyone else had a similar experience? 3/3

[marisa 💜 @lcwithme]

Who would know that a ME/CFS & Long Covid specialist would look at me crazy when I told them I experience paralysis. Say that’s too big of a word & then describe them as “neurological episodes”.🙃 #mecfs #longcovid #medicalgaslighting 1/3

[marisa 💜 @lcwithme]

They asked me to explain to what that means. I literally said I can’t move any parts or feel my body when that happens. They went on to say that when they think of paralysis they think of ppl w/ Bell’s palsy or are Paraplegic. 2/3