Lea

All that I'm after is a life full of laughter ❤️

[Lea @leaf7790]

@cjriedy Right! This has given me an entirely new perspective & appreciation for people on oxygen

[Lea @leaf7790]

Showering with oxygen is definitely one of the most bizarre things #NotAFan #CysticFibrosis #CfProbs #CFirl #CureCF

[Lea @leaf7790]

Happy 2nd Lungiversary to my best friend & salty cyster 💖👯‍♀️💜 I can’t believe it has already been 2 years since you were given the ultimate gift of a second chance at life, the life you… https://t.co/19ZJtwRILY

[Lea @leaf7790]

When doctors tell you to get admitted so people can take care of you, when in reality I take better care of myself at home & now I’m in a place where they don’t draw labs on time, withhold/ delay treatment, & I have to micromanage everyone & everything to get what I need #CfProbs

[Lea @leaf7790]

Thankful & grateful really doesn’t do the way I’m feeling today justice 💜🦃🍁👯‍♀️|| A hospital is definitely not anyone’s ideal holiday situation. Being someone whose been living with a… https://t.co/j7b9TL3XFj

[Katie Fielding @KatieF]

Anyone else think we should start calling them pro-health days instead of sick days? Let's frame taking care of yourself in a positive way at the organizational level.

[Lea @leaf7790]

@shannonofre Legit homecare this round of IVs has been a nightmare. I don’t get it!

[Lea @leaf7790]

The saga of home IVs continues: so homecare forgets to send sterile water for me to mix the powdered IV med. When we call to report they say they can’t send it bc the Amazon buildings roof collapsed & they are closed & to get it from another pharmacy?? #WTF #ICantMakeThisShitUp

[Lea @leaf7790]

@D_Stally24 @G17Esiason Perfect!! I hope it works for you 🤗🤗

[Lea @leaf7790]

@shannonofre Right?! I’ve never had anything like that happen! It was definitely an interesting night 🙈

[Lea @leaf7790]

I have just about had it with trying to start home IVs... What homecare company 1. Delays care by 3 whole days 2. Calls your cell phone so many times at 2am that it turns your phone off of do not disturb 3. Delivers medications at 2am #ItsNotLikeImSickOrAnything #WhoNeedsSleep

[Lea @leaf7790]

@shannonofre It really is!! I feel like no matter how much you try to avoid it you still just end up getting exposed

[Lea @leaf7790]

There is just nothing better than getting on a 9 hour flight with the entire row behind you coughing up a lung & the woman infront of you clearly has lung disease & reclines her seat all the way back so she’s in ur lap coughing in your face🤢😷#LetsPrayIDidntGetAnything #CfProbs

[Lea @leaf7790]

When you end 3 weeks of IVs 100% sicker than when you started them #ICantWin #NeverEverDoingPlannedIVsAgain #CfProbs

[Gunnar Esiason @G17Esiason]

Alternative headline:

Maybe it wasn’t such a good idea to place an arbitrary value on patients

🤷🏼‍♂️

[Lea @leaf7790]

@ohlyap ❤️❤️ love you girl!

[Lea @leaf7790]

I need all the prayers & positive vibes I can get right now #SendThePositiveHealthyVibesThisWay

[Lea @leaf7790]

@etahjayneharris 😘😘😘