Aleta Gibbs

Mum of 4 👩🏻👱🏻‍♂️🐶🐶 (she/her) Animal lover Wannabe Chef 👩🏻‍🍳Cystic Fibrosis advocate Pro Vax 💉 Former Registered Nurse Primary Early Childhood Educator

[Strawfie Challenge @strawfie]

When he's six, little Vihaan would be given a cystic fibrosis drug called #Trikafta if he lived in the UK

But big pharma aren't interested in countries that can't/won't pay their extortionate prices

Please sign our PETITION for global access👇
https://t.co/5tk5wBHFVL

Pls RT

[Helen Kulas @HelenKKulas]

When will YOU stop??? As one of the said vulnerable (severe asthma), I was extraordinarily grateful for EVERY single sacrifice. Then we let it rip & I copped COVID. 3.5 months later, 5 admissions, physically broken. No mum should look like this alongside their 12 year old girl.

[Aleta Gibbs @leta70]

@SusannaMarinaP @TedWritesStuff @AlanBixter Ok thank you.

[Aleta Gibbs @leta70]

@SusannaMarinaP @TedWritesStuff @AlanBixter We have CF in our family so need to be cautious.

[Aleta Gibbs @leta70]

@DrEricLevi I hate it when people turn wearing a mask and being mindful of infection as “ you stay home be scared”. COVID is a real risk for some. My daughter has Cystic Fibrosis with bronchiectasis. I refuse to let ableist attitudes deter me from taking care of those at risk. N95 for me.

[Aleta Gibbs @leta70]

@DrEricLevi Listen to different chest sounds possibly associated with post nasal drip from sinus disease. The mucus from post nasal drip tends to be more central in the lungs. 🤷🏼‍♀️ Possibly?

[Aleta Gibbs @leta70]

We finally have Trikafta! 👏🏻

[YesToTrikafta @TrikaftaAus]

Trikafta will be funded in Australia!! A big thank you to the Government, @GregHuntMP and @VertexPharma, who together finalised the listing in just two months! #LifeChanging #WeGotAYesToTrikafta!! https://t.co/SjYhajzHsx

[Vertex Save Us @VertexSaveUs]

@VertexPharma Will this amazing day come for ALL #cysticfibrosis children, or only those lucky to be born in the richest nations? Not one Low or Middle Income Country has access to #Trikafta #Kaftrio due to excessive pricing. Shameful. #GlobalCFFamily #Trikafta4All #HumanRights

[Cystic Fibrosis Aust @CFAustralia]

Everyone knows its #TimeForTrikafta, but now our politicians need to step up to the plate. Help our Parliamentary Petition get to 40K signatures and join the fight for Trikafta!
https://t.co/DqmuLYtPFV

[Cystic Fibrosis Aust @CFAustralia]

Meg Draffin lives with CF and wants Australia to know about Trikafta. Catch her story on The Jim and Nath Show via the link below. Our thanks to everyone who speaks up about this important issue or amplifies CF voices.

https://t.co/fdHfIJe1TF

[REGINA SORENSEN 👩‍🦯 @BBreggie]

Thank you @JimWilsonMedia @GregHuntMP
we need Trikafta NOW!
@VertexPharma

https://t.co/wGXCKmStRa

[Aleta Gibbs @leta70]

@TomSharpe16 @chronicleflask Thank you! I look this up all the time before I write the word and you’ve cleared it up for me by pointing out “the”

[Aleta Gibbs @leta70]

@MagdaSzubanski Wordle 255 5/6

⬜⬜🟨⬜⬜
⬜🟨⬜⬜🟩
🟩🟩⬜⬜⬜
🟩🟩⬜⬜🟩
🟩🟩🟩🟩🟩

No way! You’re a legend.

[Aleta Gibbs @leta70]

This is what waiting for Trikafta looks like for Australians with Cystic Fibrosis The PBAC gave Trikafta a positive finding but @VertexPharma & the PBAC still haggle over price Coughing until you vomit,hospital admissions, loss of lung function #TrikaftaNow is needed @GregHuntMP

[Tanya Koorts @TanyaKoorts]

@VertexPharma I explained to Janco that @VertexPharma has medicine that does magic and he asks pretty please not to forget him and all his CF warrior brothers and sisters

[Aleta Gibbs @leta70]

@VertexPharma This is my daughter who coughs for hours on end until she’s vomiting who has been waiting for a price agreement for #Trikafta with the Australian PBAC. Not good enough Vertex I’m watching my daughter die while you haggle over $$$$ #TrikaftaNow

[Aleta Gibbs @leta70]

In Australia we still wait for #Trikafta We are years behind the other 25 countries who already have access A positive PBAC finding isn’t good enough We need it in our hands @VertexPharma @GregHuntMP @ScottMorrisonMP Make it happen #TrikaftaNow

[Maisie 🌻 @MaisieRB_x]

2 years ago today I took this photo, I just received my first dose of Kaftrio after spending 4 weeks fighting to stay alive. These two tiny little tablets saved my life, quite literally. Forever grateful ♥️

[Aleta Gibbs @leta70]

@cubbers @nrsaran @LondonAllergy It’s her narrative now. Perhaps she could have changed it so it’s positive on all counts. She has every right to be proud of her achievements. Teachers and education got her there. BTW teaching isn’t a female dominated profession either.