levana saxon

community-led research & strategy coach, TO Joker, ALS caregiver and mom

[levana saxon @levanta]

@G0ldkloud @isaiah_saxon_ No. He is part of the BrainGate trial at UC Davis.

[levana saxon @levanta]

My husband with ALS could not be understood by our daughter for 2 years. Now as a cyborg, he can be. Warning, you might cry. You might be inspired to help us keep our Casey alive. Give it a watch, and if you don't mind, please pass it on.

[Isaiah Saxon @isaiah_saxon_]

casey harrell is a climate activist who's been paralyzed by ALS. for years he couldn't talk to his daughter, but now he's the first human being on earth to communicate daily through a brain-computer interface that translates his thoughts into speech. i filmed their conversation.

[levana saxon @levanta]

Help keep the world's first and still only fully functional #BCI Speech #Nueroprosthesis user alive! For #science, also for my family. Thanks in advance for considering a donation, and for sharing broadly. https://t.co/orqRvcnFxc

[Grandad Homer @Jonjon111199]

#stockmarketcrash

[Alexandria Ocasio-Cortez @AOC]

Trump is holding all the nation’s hospitals and vital services hostage to seize power from Congress and hand it over to billionaires.

We must state the truth: this is a constitutional crisis. It’s a massive, illegal power grab that the House and Senate have a sworn duty to stop.

[maggie 🫀 @maggiekingdom]

OCHI fever is sweeping the nation!!!!

[Pop Base @PopBase]

Sade is set to release her first song in years as part of a benefit album to support transgender awareness and spotlight trans and non-binary artists.

Her song on the album is titled ‘Young Lion’ and will be dedicated to her trans son Izaak.

[levana saxon @levanta]

Some raw background of some of the ways that losing speech impacts ALS families, our family - and what this device has done for us.

[UC Davis Neurological Surgery @UCDneurosurgery]

Hear the new brain-computer interface in action with Casey Harrell in the latest episode of "Intention to Treat," a podcast by the NEJM Group: https://t.co/qfua2vZ2SY

#NeurosurgeryAwarenessMonth

[levana saxon @levanta]

@NS_Card Nicholas - you and your team have totally transformed our lives, in ways no article can describe (though doing a great job of attempting to). We can't thank you enough

[Nick Card @NS_Card]

Our new study is out today in the New England Journal of Medicine! We demonstrate a speech neuroprosthesis that decodes the attempted speech of a man with ALS into text with 97.5% accuracy, enabling him to communicate with his family, friends, and colleagues in his own home. 1/9

[levana saxon @levanta]

Help keep this Black own business open that is making ground-breaking health care accessible https://t.co/ZflbKEbCKi

[Manuel Aragorn, Non Fungible Tolkien Minority @Spacejunc]

I think the Queen would want us all to live the way she did, with free public housing, basic universal income, and full government health care.

[Stanford Woods Institute @StanfordWoods]

Replacing virtually all of the world's CO2-emitting energy sources with clean power would pay for itself with energy savings in 6 years, according to @Stanford study: https://t.co/vwqZ2pF2Nc @AKrauland @mzjacobson

[levana saxon @levanta]

@AutisticCallum_ @lizzo My husband has ALS with spasticity in all of his muscles, including his tongue, changing how he talks. Now everyone he meets treats him like he is cognitively impaired, invisible, or inferior. Ableism operates unconsciously and poisons everyone everywhere. And I love Lizzo

[Asset Manager Wake Up Call ⏰ @AM_WakeUpCall]

🚨 BLKsbigproblem is currently @VanguardSOS in honor of a new global campaign launching TODAY! 🚨

#VanguardSOS is a network of NGOs, finance experts, and grassroots activists pushing @Vanguard_Group to chart a new course away from climate catastrophe at: https://t.co/kTHXnOsyjX

[levana saxon @levanta]

@SethPoling10 Is anyone studying this? Super true for my pALS. His defining characteristics pre-ALS was how hard he worked and how hard he worked out. No one I’ve ever met comes close. He’s almost fully paralyzed and still working full time. Lou Gehrig never missed a day of work. What gives?

[Brian Wallach @bsw5020]

BREAKING NEWS: #ACTforALS has just passed the Senate and is on it’s way to @POTUS. Hope is real for ALS patients thanks to you. The impossible is possible. #NeverGiveUp

[levana saxon @levanta]

My husband was diagnosed with a terminal illness, his fight to live involves fighting for the whole world to live. His fight to access currently existing life saving drugs is a fight for everyone with ALS to get these drugs. I love you @notoriousveg

[Casey Harrell @notoriousveg]

So, this story came out today. @pgreenfielduk wrote about me, my campaigning and my fight against ALS. I am honored and I want to explain why this is important. A short thread:⬇️
https://t.co/MAg6Jv6M7u

[levana saxon @levanta]

Join me in supporting Haitian Bridge Alliance via @actblue https://t.co/GH4aUtYCRb

[levana saxon @levanta]

Our lives without home-based care are impossible. I’m an injured caregiver for my partially paralyzed husband with ALS. We have a 2 yr old. We need this!
https://t.co/L6ADaRkIAJ