Meaning and Purpose

Living with a long-term condition can be challenging but, if you look after yourself and your condition, the impact can be lessened.

[Matthew Dobson @MattyDobson24]

I’m very proud to have written this blog with Stephanie Kilinc @livingwithltcs about the importance and benefits of participatory approaches in our research evaluating @mylifetool1. Read here: https://t.co/9dSsH1DNKH

[The Neurological Alliance @NeuroAlliance]

Why are we asking for a Neuro Taskforce? Scroll down this page to find out more about why we are calling on all UK governments to #BackThe1in6 and establish a Neuro Taskforce. 👇 Show your support by signing our petition.

https://t.co/Vp6LBi1Fut

#BackThe1in6

[The Neurological Alliance @NeuroAlliance]

In our UK wide survey, #MyNeuroSurvey most people with a neurological condition told us they are unable to access the mental wellbeing support they need to meet their needs. This must change. Sign the petition now and #BackThe1in6: https://t.co/WVG5na1s84

[Dr Graeme Flaherty-Jones @G_FlahertyJones]

Thrilled to be speaking at the IM National Brain Injury Conference with an excellent line up of talks. We will be looking at how to create psychologically safe communication for innovation. Remember...lions don't whistle, they roar!
https://t.co/HACVuRLqhi

[PHBWarrington @PhbWarrington]

If you're affected by #LongCovid & live in #Warrington or #Halton, join our Coffee Morning on 7th July, 10am - 11.30am. It's a chance to chat, socialise & meet others with experiences of the condition. To join email [email protected] or call 01925 240 064!

[Teesside Psychology @TeesPsych]

📢 New blog alert 📢 In this blog @livingwithltcs and @NA_TVDNY present MyLifeTool: A person-centred, holistic approach to the self-management of long-term conditions https://t.co/dFlFusZInj

[Meaning and Purpose @livingwithltcs]

@NikitaRachel_ @TeesPsych @Altpsychologist @DrMattWatson @Engage_DLD It has been an absolute pleasure to witness your journey over the past three years. I am sure this is only the beginning of great things!

[MyLifeTool @mylifetool1]

We have been working with @WDPcomms @PhbWarrington exploring what it means to self-manage #LongCovid. To take part in our research with @TeesPsych @NA_TVDNY @LJMUPsychology @PsychBGU exploring the experience of living with #LongCovid contact Steph Kilinc at [email protected]

[Meaning and Purpose @livingwithltcs]

@NikitaRachel_ Congratulations! Really well deserved.

[Meaning and Purpose @livingwithltcs]

@NikitaRachel_ @BPSScot @BPSOfficial @TeesPsych Congratulations. Its such an interesting and much needed study.

[MyLifeTool @mylifetool1]

There's still time to sign up for our project evaluating our #selfmanagement tool for people with any #chronicillness. Register at https://t.co/jgZNDlodhZ or email [email protected] @NIHR_ARC_NENC @cumpstonarchive @HeadwayTees #ChronicPain #diabetes #heartdisease #selfcare

[MyLifeTool @mylifetool1]

If you live in the North East of England or North Cumbria and are diagnosed with a long-term condition, we would like your help to evaluate MyLifeTool. Register interest at https://t.co/jgZNDlodhZ or contact Stephanie Kilinc at [email protected] @NIHR_ARC_NENC @mylifetool1

[The Neurological Alliance @NeuroAlliance]

IT'S HERE! Please share your experiences in our national survey of people with neurological conditions and help improve services for everybody living with a neurological condition in the UK https://t.co/e9rBDriX7m #MyNeuroSurvey

[Dr. Rebecca Poz (also on Blue Sky) @rebeccapoz]

Return on Investment and Value of Neuropsychology

Good to know that as well as clinical value - which is morally the priority - and incremental value it is economically beneficial to commission Neuropsychology services.
@NSFTtweets
@drdandalton
@NHSWSCCG
@IESCCG
@DONBPS
@DONPSI

[Meaning and Purpose @livingwithltcs]

@NikitaRachel_ @TeesPsych @BPSWestMids @NA_TVDNY Its been great working with @NikitaRachel_ on this project. It wouldn't have happened if she hadn't come forward with the idea. Next step, get the paper published. Its worth undergraduate #Psychology students thinking about the #bps assistantship next year. A great opportunity.

[Dr Vickie Rowland @vickierow91]

Hi everyone. I'm currently trying to recruit for my Health Psychology research project. I'm interested in multimorbidity (multiple long term conditions) especially cardiovascular disease and stroke. I am looking for support to help me recruit participants. 1/3

[Epilepsy Action @epilepsyaction]

"I wish people could see what else happens to me outside of the 20 seconds - 2 minutes when I have an absence seizure. I think people think that the seizures are the worst part of having epilepsy, and that it is the only thing we have to deal with."

👉 https://t.co/zziZFD79Ps

[Epilepsy Action @epilepsyaction]

"Dear Santa, all I want is a cure for epilepsy. If you can't do that I could use some extra awareness. Thank you!" 🎅💜

[MyLifeTool @mylifetool1]

@NA_TVDNY @TeesPsych @NikitaRachel96 and @Giles_Hudson put together this firework inspired video based on our latest activity sheet. Brilliant!