I was officially diagnosed with #eds#pots#dysautonomia and 30 other diagnosis’s after a 32 yr diagnosis process. patient advo read my story/blog. link in bio
I want to start a charity for the #neisvoid community and anyone suffering from a condition that hasn’t been officially diagnosed yet. These people are literally in the void. No medical support, no financial support from not working or trying to get approved for SS.
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Because of the “constant stimulation “ it provides. And we both have ADHD and I’ve noticed it works the same way on me. So short informational videos on screen...this has been probably known for years but it’s something I just learned and so happy about. #adhdtwitter#adhd
Sooo you all!! I have discovered a trick to help both my daughter and myself pick up new information that is SO HELPFUL! Short informational videos such as ones you find on tiktok. I can’t even being to tell you how much info both me and my daughter has retained to help us better
Our lives. It’s crazy. Every single time I have to explain to my daughter not to do something because it’s unhealthy or not good for her or vice versa, she doesn’t retain any of the information. When I play a tiktok video relaying the same message on a screen, she picks it up
Healthcare Twitter please help this woman!! Her daughter died due to medical negligence
Check out Jennifer Berg's video! #TikTok https://t.co/fzPlkYhKgi
@tee_spoonie I’m so sorry. Gentle hugs. Unfortunately the most hurtful things said about my disability come from my brother. I relate and I’m so sorry you’re dealing with this pain.
@maydelynnj Doctor: the emergency room isn’t for pain relief. You’re going to have to go see your primary. (Five mins later comes back and stated I’m in kidney failure) 🙄🙄 cool dude
I can’t even grasp how humanity, on such a large scale is getting increasingly dummer. Having common sense I feel like is so rare. No one thinks about other people, only themselves. I’m seriously over people. On a mass scale.
@EhlersAintEasy I was a semi pro snowboarded before my EDS DX...some days exercise makes me feel good, other days it makes me feel terrible. There is no good answer for this unfortunately
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