Louise Rickenbach

Physiotherapist. The views are my own. just in case…@lourick.bsky.social @[email protected]

[MND Association @mndassoc]

S U C C E S S 👏

We're delighted to share that the National Institute for Health & Care Excellence (NICE) has announced that it has reconsidered its routing decision for Tofersen, an effective drug for SOD1 #MND.

Over 15,000 of you signed our petition.

This is your victory.

[Louise Rickenbach @louiserickmnd]

@brian_bilston I did… a fabulous evening. You chose to read one of my favourites, In the Park, which was the first of your poems that I had encountered.

[Louise Rickenbach @louiserickmnd]

@brian_bilston I’m really looking forward to seeing you tonight in Southampton.

[Mark Rickenbach @DocRickKnowHow]

The Heartsink workshop yesterday is now published #woundedhealer24 in the British Medical Journal article ionline here https://t.co/Ej3aHE3aGV
It comes out in paper over the weekend. Includes handy advice

[NHS Million @NHSMillion]

URGENT REQUEST FOR HELP FROM NHS STAFF:

NHS England will cut funding for mental health support for hospital staff from tomorrow

Please take 30 seconds to sign this open letter to Amanda Pritchard if you agree they should reconsider👇

https://t.co/vfODrdwZr0

Please RT too

[Emma_MacLennan @Emma_MacLennan]

Do see @AlfDubs’ blistering letter to @NICEComms on their inexplicable decision on the drug Tofersen, licenced for use in the US and EU. @MNDPatients will be denied this life-saving treatment in the UK. So damaging for all potential gene therapies! Do read 👇🏼

[Dr Steve Taylor @DrSteveTaylor]

GP appts (Doctor) are up 6.5% which should be applauded & rewarded
But the Government has cut GP Practice funding by 20% in real terms £/patient since 2016 & further 3% cut this year
GP Practice providing MORE Face to Face, on the day, telephone
NO MORE FUNDING
Blame MPs not GPs

[Dr Steve Taylor @DrSteveTaylor]

Unhappy with your GP?
General Practices get just 5.4% of NHS budget & having seen a funding reduction of 20% £/patient real terms since 2016
Number of GPs has fallen 7% yet 20% more appts are being done
Govt/NHSE reduced real terms funding again by 2% this year

Blame MPs not GPs

[James Allen 💙 @pr8jaa]

What a perfect way to celebrate the inaugural hospital pharmacy day with our oncology pharmacy team showcasing the role of aseptics in the care of our patients. Super proud of the team and all we do for our patients across all our pharmacy dept #HospitalPharmacyDay @UHSFT

[Chris McDermott @profcjmcdermott]

As a national group of MND healthcare professionals, patients and MND charities we have written to NICE requesting an urgent review of their decision about Tofersen. @NICEComms #MND @UKMNDRI @UK_mnd_CSG @mndassoc https://t.co/rrJ9mjce8h

[Chartered Society of Physiotherapy (CSP) @thecsp]

Brilliant advice from @consultantPT in this great piece about knee pain by @timjonze 👏👏

https://t.co/8my6RJsuyS

[Louise Rickenbach @louiserickmnd]

@IanSpindley @RobGMacfarlane @NeilSalter4 @Right_2Roam I think so…
https://t.co/wFZHcGhkdl)

[Louise Rickenbach @louiserickmnd]

@SW_Help @SW_Help What would be the best way to now get to Coventry ( was due to get on at Winchester)?

[The BMJ @bmj_latest]

Some say that continuity of care and fast access are incompatible.

But Denis Pereira Gray and colleagues argue that a renewed focus on continuity could help reduce the pressures facing general practice and the #NHS
https://t.co/nEGk1ADbJu

[Beacon CHC @BeaconCHC]

Eligibility for #NHSContinuingHealthcare is based upon the concept of a primary health need - a concept for which there is no clear definition and which does not appear in legislation. Download a copy of our free Navigational Toolkit to find out more https://t.co/ShJrv4k8M1 #CHC https://t.co/473vW9naS2

[MND Association @mndassoc]

Turning the Tide

A documentary highlighting pioneering MND research by a team at @UCL funded by the MND Association, @LifeArc1 and @MNDoddie5 Foundation.

Jo and Lucy, living with #MND, share an honest insight into how the disease has impacted their lives.

🔬 #TurningTheTide

[Prof Nisreen Alwan 🌻 @Dr2NisreenAlwan]

Speak to anyone visiting the UK & they’ll tell you that multiculturalism is one of its greatest features. Speak to anyone who knows history & they’ll tell you that multiculturalism is key to progress & innovation. Multiculturalism hasn’t failed in the UK. Politics has.

[RNLI @RNLI]

#FloatToLive saved Evan's life. It could save yours too. 👇

#RNLI #WaterSafety #DrowningPrevention

[Dr Liz O'Riordan @Liz_ORiordan]

🧵The 1 Life Lesson I'll Never Forget

When I was going through chemotherapy, I learned a life lesson I'll never forget.

Many people asked me how they could help, and I struggled to tell them what to do.