LouiseW

Thyroid minded. National voices lived experience coach with Graves’ disease no thyroid gland and depression. needs T3 and DTE to stay alive, views are my own

[LouiseW @Louisethyroid]

@ThyroidTrust For us all to finally get the understanding care And hormones we need. Thyroidless after RAI. Would love a new thyroid try every approach this time before RAI 28 years long time waiting and learning how to get better 🌲🦋

[Addison's Disease Self-Help Group (ADSHG) @AddisonsUK]

The @AddisonsUK is proud to have signed this letter with 109 organisations, led by @NVTweeting, to @wesstreeting, sharing our key concerns as the new government seeks to fix a “broken” NHS.

The letter outlines key issues that need prioritising 👉 https://t.co/bCcJZ6UtGM

[Healthwatch Torbay @HWTorbay]

Share your views on pharmacy services!

The NHS in Devon is developing a community pharmacy strategy and wants to hear your views and experiences on current and future services.

Find out more and share your views here: https://t.co/9JnVFNkzrd https://t.co/vLg6LzqOUM

[LouiseW @Louisethyroid]

@ThyroidNow Happy birthday ❤️❤️hope you’ve had a great one Xx

[The BMJ @bmj_latest]

As The BMJ celebrates 10 years since the launch of its patient and public partnership strategy, we ask why more medical journals do not have a similar partnership with patients.

This #BMJInfographic shows four ways to encourage patients to get involved
🔗 https://t.co/48oJtS8iiS

[Patients Association @PatientsAssoc]

A quarter of respondents to our survey said that the Gvt should prioritise developing a strategy for social care, alongside a costed plan. It is crucial that the new Gvt takes action, to ensure that patients in social care get the support they need
@Skinnock @wesstreeting

[Patients Association @PatientsAssoc]

Good health should be a priority in all Gvt policies. Our research shows 7 out of 10 patients support this view. Health is influenced by factors like education, housing, environment, transportation, and employment. #HealthPolicy #SocialDeterminantsOfHealth https://t.co/O16vfugMv0

[The King's Fund @TheKingsFund]

💡 How are ICSs tackling workforce issues and developing system-wide strategies for staff recruitment, training, and retention?
🆕 Our new report, Realising the potential of integrated care systems, examines the progress being made and the challenges: https://t.co/70wcAH6eRJ

[Breast Cancer Now @BreastCancerNow]

Registration is open for our first ever panel event by South Asian women, for South Asian women, in Central London on Saturday 20 July, 10 am to 12pm.

Find out more and register your interest now.

https://t.co/as7kq8iYX6

[LouiseW @Louisethyroid]

@keymn1 @NVTweeting @RHMreflects @CharlotteAugst Keymn you have been an inspiration to me, co-production and Coaching it’s been amazing to learn and grow. I have been lucky to have known you over the last two years and thank you for all you patience care and understanding ❤️
It’s been a pleasure and given me skills and hope Xx

[Patients Association @PatientsAssoc]

Let's not confine celebrating co-production to just a week. Let's aim for a healthcare system where co-production is the standard, promotes an environment where everyone feels valued and included, and encourages transparency, and accountability.
https://t.co/8xS5eq3vU4

[Patients Association @PatientsAssoc]

📞Did you know we can raise your concerns about a health or care service with CQC anonymously? Just get in touch with our helpline and one of the team members will be able to help you.
It's free to call the helpline on 0800 345 7115.
#ShareForBetterCare

[Healthwatch Torbay @HWTorbay]

Healthwatch Torbay volunteers play a vital role in helping to ensure that we gather the issues that matter to help improve local health and social care services for our local community.

Find out more by visiting https://t.co/7MfKK5hYWW or calling us free on 0800 520 0640.

[Mary S @MaryS58459511]

Form of B12 Deficiency Affecting the Central Nervous System May Be New Autoimmune Disease https://t.co/JPA9HVVE1x https://t.co/JPA9HVVE1x

[Thyroid Federation @ThyroidFed]

July is Graves’ Disease Awareness Month, and we want to highlight that patients should receive detailed information about the disease and discuss with the doctor about treatment possibilities, based on symptoms, results, and related conditions.
#GravesDiseaseAwarenessMonth

[Ridha Arem, M.D. @ridhaarem]

Left untreated, #thyroid disease can have hidden long-term effects on your body. Here’s what you should know. #thyroidwellness #drridhaarem #thyroiddisease https://t.co/HGK153Yiri

[Compassion in Dying @AGoodDeath]

Important work from @NVTweeting on improving patient experience.

Our peer navigator work is mentioned in their Vision, you can read more about it here ⬇️

https://t.co/YafKDu8k7D

[Inflammatory Neuropathies UK @InflamNeuroUK]

We are passionate about improving diagnosis for people impacted by #GBS, #CIDP, #MMN and other conditions. Our members have reported lots of issues around diagnosis, which is why we are supporting the @NVTweeting vision for improving patient experience - https://t.co/IWAdtOngMU

[Clare Jacklin @Clare_NRAS]

NRAS is delighted to have contributed to this great work by National Voices. Early diagnosis is so important and can not only reduce patients' suffering but reduce long term implications for the health service, the UK workforce, the economy etc. etc. Far too many wait too long

[LouiseW @Louisethyroid]

@ridhaarem How I look when I’ve educated my Doctor and heading towards optimal thyroid blood results and healthy BMI taking Liothyronine and Amour and now able to use my patient experience to voice how poor my treatment has been for 30 years ❤️

[LouiseW @Louisethyroid]

@Tretchikoff1 @SandayLinda @Bianco_Lab For people who can’t produce their own T3 that is awful and discriminatory. We did not choose this disability. Allowing it to continue and not treat symptoms and blood results is negligence.