Sisters Caoimhe and Fiadh Ui Luing both have cystic fibrosis and both have been denied access to the life-changing drug, #Kafrio. We want @VertexPharma, @HSELive & @DonnellyStephen to see these children, know these children and resolve this promptly. https://t.co/NAEIkgekEs
I’ve been told @DonnellyStephen is here in @svuh I’m at #dialysis so cannot go to you but could you spare 5 mins to come talk to me about #cysticfibrosis kids being denied access to #kaftrio I’m living proof this drug works, can someone in St.Vincent’s arrange this? @cf_ireland
Today we leave for Biarritz for our first outbound team tour of 2022 and post Covid 🏉🙌🏽 Very exciting weekend ahead with @ulbohemianrfc ! Plenty of fun to be had so keep an eye on our socials to follow all the fun 😁🇫🇷 #RTI#teamtour#rugbytravelireland
All over here in Nenagh and we hold out for the win. FT score UL Bohs 19 Ballina/Killaloe 17. Congrats to both teams on giving the crowd here a hugely entertaining game with a nail biting finish!