kerry fox

Artist, Art Activism, Parent Carer, #UnpaidCarer, PhD Student- Mother Carers @klfox.bsky.social

[kerry fox @lumpybird]

How Many Forms Did You Fill Out Today? #MotherCarers #UnpaidCarers installed, the overwhelming weight of bureaucracy, What #UnpaidCarers do all day …. @YorkExplore for #SushSnipRipExhibition starts this Friday if you’re in York come along !

[kerry fox @lumpybird]

The CoP are notoriously slow - why are legal bods & Opg still scratching heads and trying to clarify the Lumb cases years on - can we really wait this long for clarification on DoLs? There are humans trapped in this bureaucracy

[kerry fox @lumpybird]

@SKinnock @MoJGovUK question- is it time that the CoP was reformed (&OPG) ? why were the LPS kicked down the road and where is the consultation re this ? surely time now given recent Supreme Court judgement. Will P's and families also have a voice? (nothing about us without us)

[kerry fox @lumpybird]

@SkyNews @skysarahjane no it really is not hard to believe maternity care has gone backwards 4 children born between 1987 &1999 big difference in care through those yrs my last child- clinical neg' resulting in brain injury - care just became non existent

[Holly Bunty @hollybunty]

“As policymakers look to improve the way services work together, the voices & experiences of unpaid #carers must be central to reform.
A truly joined-up system should reduce the pressures on carers, not rely on them to bridge the gaps."

#RunningOnEmpty 🪫 https://t.co/HSubt4dhx2

[Luba Macpherson @LubaMacpherson]

Thank you, that is helpful. I agree Stephen Kinnock @SKinnock is the relevant minister to press on this, especially given the Government’s proposed consultation on Liberty Protection Safeguards.

But my concern remains the same: everything often sounds good on paper: safeguards, consultation, best interests, person-centred care, wishes and feelings, but on the ground the reality can be very different.

Any new guidance after the Supreme Court judgment must not be written only for lawyers, councils and professionals. It must be tested against lived experience: P themselves, families, unpaid carers, advocates, and those who have actually lived under DoLS and Court of Protection orders for years.

Otherwise we will simply replace one failing system with another that looks better in policy documents but still fails the people it is supposed to protect.

https://t.co/QI6uVFabdX

[Barbara Rich @BarbaraRich_law]

@LubaMacpherson To be clear, Parliament wasn’t entirely inactive post-Cheshire West, as it did enact the 2019 MCA Amendment Act introducing revised liberty protection safeguards. But implementation of that has been delayed as explained here https://t.co/6NU1Bdm2Lk

[kerry fox @lumpybird]

@mencap_charity @DrOliverLewis Will you be pushing for LPS that were supposed to replace DoLs in 2022 ? - and the consultation Stephen Kinnock said would be during the 1st half of 2026?

[kerry fox @lumpybird]

@DrOliverLewis @maisielouwho dare I ask about the LPS - any update there and consultation that was supposed to be first half of this year -that seems to be on hold ( ok it has been on hold for years ) does this judgement have any impact on moving LPS forward /consultations ?

[kerry fox @lumpybird]

@caroldavismoody @lawsocgazette they have been faffing on for a while re changing DoLs to liberty protection safeguards - implementation has been repeatedly delayed (years)- suppose to have consultation in 1st half of this yr but again delayed.. maybe the charities can ask what's occurring

[kerry fox @lumpybird]

Any news of where or when the consultation on Liberty Protection Safeguards is due to take place - did we blink and miss it? Didn't Stephen Kinnock say would be first half of this year?

[kerry fox @lumpybird]

@3dancingfeet oh man you read my draft

[kerry fox @lumpybird]

@DrOliverLewis well past time there was a pubic consultation on DoLs and court of protection. When has there ever been any? maybe now time to consult with all P's and their families under the CoP we who have been silenced for so long - a lot of issues not just DoLs time to let voices be heard

[kerry fox @lumpybird]

@Capacitylaw It is long past time when we need to open a dialogue on the practice of DoLs

[Inclusion London @InclusionLondon]

'Nothing about us without us' is not just a slogan.

We're calling for Parliament to follow the Equality Act and start including people with learning difficulties when making laws that affect them.

🔗 Sign the petition: https://t.co/hVvOyvJeHI

[kerry fox @lumpybird]

Why does my local pharmacy have my email address? I have never given them it - yet here they are emailing me with a qr code to pick up script from machine ( never signed up for that service and i do not have nhs app) so how?

[kerry fox @lumpybird]

@Chuffin_ell found since transfer to adult services that everything stops no joined up medical care, son doesn't have rare gen' has CP & several related conditions -they like to lump everyone under a LD pathway & ignore what the actual medical needs are

[York Disability Week @YorkDisability]

'I've given up eating hot meals to pay energy bills to keep my son alive' https://t.co/fVPq34FsV5

[Dmdav @Dmdav1]

parental contributions to post-16 transport for young people with SEND are set to increase from £483 to £700 a year.
41% increase will be crippling,
This is not the support for SEND families that the Reform administration promised in their election campaigns #Derbyshire Reform

[kerry fox @lumpybird]

@BeckyWhin right there with you - wish someone would go turn that sun down a few dials

[kerry fox @lumpybird]

@retiredteacherp @Chuffin_ell Caring 24/7 in hospital not everyone has paid carer hours or the carers with the experience expertise re complex med conditions no where to sleep unless a floor or hard chair juggling own medical issues to we are human not superhuman or immortal