Ma Myosite

Partage d'infos sur les #myosites - I share informations about #myositis | #ScleroMyositis patient👩🏻‍🦼SRP+ PmScl+ Htap | #Handicap #HandicapInvisible

[Ma Myosite @mamyosite]

🗓28.02 : #RareDiseaseDay

✅ Les myosites sont des maladies rares, auto-immunes, musculaires et systémiques. Elles concernent adultes et enfants.

#myositis #inflammatorymyopathies #myosites #myopathiesinflammatoires #RDD

[Laurent ARNAUD @Lupusreference]

Today is RARE DISEASE DAY
Retweet 🔄 to raise awareness
of rare #autoimmune diseases
such as #Lupus

[Dr hanady manasfi @hanadymanasfi]

#myositis
#ERA

[Dr Ai Lyn Tan @DrAiLynTan]

Idiopathic inflammatory #myopathies

🔹#Dermatomyositis
🔹Amyopathic dermatomyositis
🔹#Antisynthetase syndrome
🔹Immune mediated necrotizing #myopathy
🔹Inclusion body #myositis
🔹#Polymyositis
🔹Overlap myositis

Review
👉🏽https://t.co/WUMIDzjfJy
via @DiseasePrimers

[Autoimmune List @AutoimmuneList]

Autoimmune diseases affect all parts of the human body, including muscles, skin, the nervous system, important glands, and the digestive system. ~ Autoimmune Registry #AutoimmuneAwarenessMonth

[Dutch Myositis Network @DutchMyositis]

Here's a thread with four nice pieces of #myositis research just published @rheumatology!

[Dutch Myositis Network @DutchMyositis]

One of our members will defend his PhD thesis on improving diagnosis & disease management in #myositis Wed March 23rd 4pm CET🥳

The best part: it's in English, you can get a digital copy, and you can join/rewatch it virtually too!

#DutchMyositisNetwork #MyositisNetwerkNederland

[Johan Lim @DrJohanLim]

It's finally happening @amsterdamumc @UvA_Amsterdam @AmsNeuroscience: I'm defending my #PhD thesis on improving diagnosis & disease management of #myositis!

Interested in a digital copy or virtually attending/rewatching it?
https://t.co/hbJ0mR0xIB

#AcademicTwitter #MedTwitter

[Ma Myosite @mamyosite]

@DrJohanLim @amsterdamumc @UvA_Amsterdam @AmsNeuroscience Congratulations 👏🏻

[Autoimmune List @AutoimmuneList]

"Autoimmune diseases constitute a difficult challenge for patients and doctors," says Professor Naoko Okiyama. "Not only are the diagnosis and treatment of autoimmune diseases clinically difficult, but it is often unclear why and how the diseases developed." UNIVERSITY OF TSUKUBA

[APF France handicap @apfhandicap]

C'est la #JourneeDesDroitsDesFemmes : la journée des droits de TOUTES les #femmes !

📢 N'oublions pas les femmes en situation de #handicap, qui subissent trop souvent stéréotypes, inégalités et violences. Elles témoignent dans notre plaidoyer dédié ➡️https://t.co/WveH0zregL

[Filière de santé FAI²R @contactfai2r]

📄 #Myosites : caractéristiques scannographiques des #pneumopathies interstitielles et de leur(s) association(s) avec les auto-anticorps spécifiques 👤 Résumé par Dr Alain MEYER ➡️ À lire sur : https://t.co/aQx6wRdbqe #myositis #maladiesrares #fsmr #FAI2Ralupourvous

[CSI Pharmacy @CSIpharmacy]

Many #AutoImmune diseases are rare: #myositis, #myasthenia, #CIDP, #AutoimmuneEncephalitis, #PANDAS, #pemphigus, #ImmuneThrombocytopenia, and more!

[Ma Myosite @mamyosite]

#Cinema : « Le film "Father Stu", revient sur l'histoire d'un homme qui en a inspiré beaucoup alors qu'il vivait avec une myosite à inclusions. »
#myosites #myositis #sIbm #InclusionBodyMyositis #films

[Cure IBM—Inclusion Body Myositis @CureIBM]

The movie, Father Stu, tells the story of a man who inspired many as he lived with the muscle disease, inclusion body myositis (IBM). Tickets now available.

[Myasthenia Gravis Foundation of America @MyastheniaOrg]

March is #AutoImmuneDiseaseAwarenessMonth! Let's raise awareness by lifting up our voices. This month we want to elevate your stories — comment below to let us know your triumphs and tribulations and let the world see the humans behind the movement. #ADAM #MGStrong

[Hôpital Pitié-Salpêtrière AP-HP @HopPitieSalpe]

#RareDiseaseDay | Création de la plateforme d'expertise #MaladiesRares @APHP . Sorbonne Université qui regroupe : 102 centres maladies rares dont 58 centres de références et 44 centres de compétences. @FilieresMR
A découvrir en vidéo 👇

[Myositis Support and Understanding (MSU) @MyositisSupport]

Watch recording of our 2022 #RareDiseaseDay webinar sponsored by @KezarBio, Poor Long-term Clinical Outcomes and Health-Related Quality of Life in #Dermatomyositis and #Polymyositis, presented by @docrota Dr. Rohit Aggarwal. Don't miss this one! https://t.co/jb6J0vWKKh #myositis

[Ma Myosite @mamyosite]

📖 2 études à lire :
🔹"Définition du syndrome de l'anti-synthétase : une revue systématique de la littérature".
🔹"Évolution du spectre clinique chez les patients non asiatiques positifs aux anti-MDA5".

#myosites #myositis #antisynthetase #MDA5 #antibody #myositisresearch

[Lorenzo Cavagna @Lollo7770]

Working hard for The classification criteria @GiovanniZanfra1 @docrota @filiciasak @CorteTamera @jorroser @davidfiorentino @ingrid_lundberg @TheMyositisAssc @PatriciaMattins @mamyosite @MyoDiscovery @Myositis_Canada @ern_reconnet https://t.co/g6ulxALlbe

[Rohit Aggarwal @docrota]

See our 1st publication on the path of development of Anti-Synthetase Syndrome classification criteria.

[Autoimmune List @AutoimmuneList]

#RareDiseaseDay2022 #RareDiseaseDay

[Filière de santé FAI²R @contactfai2r]

▶️ #PodcastFAI2R : Traitement des atteintes digestives, retour sur l’un des principaux chapitres du #PNDS #Sclérodermie avec le Pr Eric HACHULLA (10 min) Lecture directe 👉 https://t.co/PeN1VilXZv Tous les podcasts : https://t.co/lQhHOQjZV2 #SSc #maladiesrares #fsmr

[Lorenzo Cavagna @Lollo7770]

And not only…. Anti-Mda5 syndrome-dermatomyositis https://t.co/8uBPP3mvTQ