Manny Duenas

Patient advocate. Founder of Sharing individual health stories to inform and empower all those living with illness.

[Manny Duenas @mannyfromguam]

Picked up by Forbes - please share - due to HIV antiretroviral therapy, from ‘95 and 2015, 9.5M deaths have been averted, and economic benefits are estimated at over $1T. Tens of millions of deaths and new infections may be averted with UNAIDS scale-up! https://t.co/4Ybub7GVHR

[HealthfulStories @HealthfulStori1]

Living with illness can be hard. Not being understood makes it harder. Loneliness that comes from not being seen certainly doesn’t help. That’s why we listen to your story. It helps to be heard, to be seen, to know that your journey might help someone else feel more understood and less alone.

@HealthfulHeroes

[HealthfulStories @HealthfulStori1]

Without major prevention or treatments, the number of Americans living with Alzheimer's dementia is projected to reach 13.8 million by 2060. Share your journey to raise awareness and help others at https://t.co/FLBIAiRshA or [email protected]. https://t.co/TJXFSqdffF

[HealthfulStories @HealthfulStori1]

We can all be heroes for someone we may never meet. Share your journey through illness so that others facing the same hard road can be helped by the information and inspiration you provide.

https://t.co/yKf9eGSnCF

[Manny Duenas @mannyfromguam]

@elonmusk We should recognize that the ultimate evolutionary advantage is intelligence… and if it’s not us, well…

[Manny Duenas @mannyfromguam]

@HealthfulStori1 +1 for Smoldering! My #invisibleillness smolders and shows up as severe #fatigue and #brainfog and #irritability and so much more… 🤍

[Manny Duenas @mannyfromguam]

@DrDimitrios 😔

[HealthfulStories @HealthfulStori1]

Today is the last day of Psoriasis Awareness Month. We want to schedule 10 interviews with people living with psoriasis to raise awareness and educate others. You can help us reach our goal - set up a conversation via [email protected] today! #Psoriasis #PsoriasisAwarenessMonth #PsoriaticArthritis #PatientVoices #HealthfulHeroes

@HealthfulHeroes

[Andre Heeg, MD @andre_heeg]

“Brain fog” describes a real cognitive experience with several possible causes.

Poor sleep, medication, illness, mood, pain, irregular meals, dehydration and sustained cognitive load can contribute. Direct research remains limited, and validated ways to measure the symptom are still developing.

Establish the pattern. Record when it began, what changed, the time of day and any other symptoms.

Persistent, sudden or function-limiting symptoms deserve proper assessment.

[HealthfulStories @HealthfulStori1]

Pre-eclampsia: What Every Pregnant Person Should Know

What it is: Pre-eclampsia is a serious problem that can happen during pregnancy, usually after 20 weeks. Blood pressure goes too high, and it can start to hurt organs like the kidneys, liver, or brain. It can also stop the baby from growing well. It can happen even if you feel fine. It can also start in the first few weeks after the baby is born.

Because pre-eclampsia constricts blood vessels, it can severely reduce the blood flow to the placenta. This starves the baby of oxygen and vital nutrients, which can lead to poor growth, low birth weight, premature birth, or in severe, unmonitored cases, stillbirth.

Severe pre-eclampsia can cause:

Eclampsia: Seizures triggered by high blood pressure, which can lead to coma.

HELLP Syndrome: A rare, life-threatening liver and blood-clotting disorder.

Stroke: Caused by sudden, extreme spikes in blood pressure to the brain.

Permanent organ damage: Lasting injury to the kidneys or liver.

10 Facts and Warning Signs

https://t.co/nFS68Ph7XB is common. It happens in about 2 to 4 out of every 100 pregnancies. Some studies say up to 8 out of 100. Hundreds of thousands of American families are touched by this condition. It is not a rare medical oddity; it is one of the most frequent major complications of pregnancy. Statistically, it impacts roughly 6% of Black pregnancies compared to about 3.8% of white pregnancies. Black women are significantly more likely to experience severe, life-threatening complications (like stroke or kidney failure) and face a maternal mortality rate from pregnancy-related causes that is three to four times higher than that of white women, with pre-eclampsia acting as one of the leading drivers of that gap. 
https://t.co/1jJCSGXDoR can have it and feel okay. High blood pressure often has no symptoms. This is why every prenatal visit checks your blood pressure.
3.A bad headache that will not go away can be a warning sign, especially one that does not get better with rest or medicine.
4.Changes in your vision. Blurry sight, flashing lights, spots, or losing your sight for a moment.
5.Pain under your ribs or in the upper belly, usually on the right side. It may feel like bad heartburn that will not stop.
6.Sudden swelling in your face, hands, or feet, or fast weight gain over just a few days.
7.Trouble breathing or feeling like you cannot catch your breath when lying down.
8.Throwing up or feeling sick to your stomach late in pregnancy, when morning sickness should be over.
9.Some people have a higher chance of getting it: high blood pressure before pregnancy, diabetes, carrying extra weight, having pre-eclampsia in a past pregnancy, being pregnant with twins or more, or a first pregnancy.
10.The only real cure is having the baby. But there are things that lower the risk such as a low dose of baby aspirin for people at high risk, healthy eating, and gentle exercise. Your doctor decides if aspirin is right for you. Do not start it on your own.

What To Do

Do not wait. Do not talk yourself out of it.

•Call your doctor, midwife, or nurse today if you have any of these signs.
•Go to the emergency room or labor and delivery right away if you have a bad headache, vision changes, belly pain under your ribs, or trouble breathing.
•Say the word out loud: “I am worried about pre-eclampsia.” It helps your care team act faster.
•Keep going to your prenatal visits, even when you feel fine.
•Keep watching for these signs for six weeks after you give birth.

It is always better to call and be told you are fine than to stay home and be wrong.

#maternalhealth @HealthfulHeroes

[HealthfulStories @HealthfulStori1]

Share if you've known or been a caregiver, with some of the hardest jobs known, the most under-recignized heroism. @HealthfulHeroes

[HealthfulStories @HealthfulStori1]

Psoriasis is visible. The full experience often isn’t.

For Psoriasis Awareness Month, we’re going beyond the surface: what psoriasis is, what it can feel like, common misconceptions, triggers, and ways to better support someone living with it.

Swipe through. Save it. Share it with someone who could use it.

And if you live with psoriasis, your experience matters too. Share your story with @HealthfulHeroes - take a second to email us at [email protected] for a thoughtful, professional interview to increase awareness and advocate for others.

#Psoriasis #PsoriasisAwarenessMonth #PsoriaticArthritis #PatientVoices #HealthfulHeroes"

[HealthfulStories @HealthfulStori1]

We support the idea of more dedicated centers for complex chronic conditions. Who else is with us?

[HealthfulStories @HealthfulStori1]

Some of the most useful lessons about psoriasis come from living with it.

What’s one thing you wish you knew sooner?

Share it with Healthful Stories. Someone else may need to hear it.

#Psoriasis #PsoriasisAwarenessMonth #healthfulheroes

[Manny Duenas @mannyfromguam]

For #PsoriasisAwarenessMonth, our volunteer team @HealthfulHeroes is looking to interview 5 individuals living with #psoriasis to raise awareness and advocate for others. If you or a loved one are open to sharing, send me a DM or email [email protected]!

[Manny Duenas @mannyfromguam]

@DeryaTR_ @tessfalor Just to clarify, Phase 3 trials that read out today were conceived and designed many years before the advent of generative AI.

This is a win for #science and #patients and #humanity.

[Manny Duenas @mannyfromguam]

Just to clarify, Phase 3 trials that read out today were conceived and designed many years before the advent of generative AI.

This is a win for #science and #patients and #humanity.

[Jake Becraft @DrSynbio]

We are in the very first chapter of mRNA medicines.

Preventative vaccines -> therapeutic vaccines -> broadly applicable therapeutics.

Delivery remains a key (but solvable) bottleneck.

Big things coming…

[Manny Duenas @mannyfromguam]

There is no greater love than this, to give your life for a friend, for someone you may never meet.

[Manny Duenas @mannyfromguam]

Just to clarify, Phase 3 trials that read out today were conceived and designed many years before the advent of generative AI.

This is a win for #science and #patients and #humanity.

[Scientific American @sciam]

A combined drug made by pharma giants Merck and Moderna uses mRNA technology—the same tech as the COVID vaccines—to target a deadly and common form of skin cancer
https://t.co/QpUqjT2hsD

[Manny Duenas @mannyfromguam]

Just to clarify, Phase 3 trials that read out today were conceived and designed many years before the advent of generative AI.

This is a win for #science and #patients and #humanity.

[AIM Investments @AimInvestments]

🚨 BREAKTHROUGH IN CANCER

Moderna + Merck’s personalised mRNA cancer vaccine has succeeded in Phase 3 in melanoma.

🔥 49% lower risk of cancer recurrence or death

This could be a major breakthrough for personalised cancer treatment.

And this may just be the beginning for mRNA in oncology. 🧬🚀

[Manny Duenas @mannyfromguam]

Just to clarify, Phase 3 trials that read out today were conceived and designed many years before the advent of generative AI.

This is a win for #science and #patients and #humanity.

[Channel 4 News @Channel4News]

A new, experimental skin cancer vaccine by the US company Moderna has had positive results in a late-stage trial.

The mRNA vaccine, given to patients already diagnosed with melanoma, was given in conjunction with an immunotherapy drug and was shown to reduce the spread and recurrence of melanoma.

It boosted the share price of Moderna - famous for its COVID vaccine - by as much as 93%.

#News #Channel4News #C4News #Vaccine #Cancer #Health