Manoj

[Manoj @manoj_vkumar]

@curesmaindia @VeenaGeorge03 @Arogyakeralam @MoHFW_INDIA @narendramodi @pinarayivijayan @youare45 @CMOKerala @CDSCO_INDIA_INF @ShashiTharoor @PMOIndia Thank you Kerala government for this initiative.

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

"Beyond what we thought, towards what we dreamed."

@curesmaindia extends its deepest gratitude to the Government of Kerala, and Hon. Health Minister Smt. Veena George @VeenaGeorge03
4 the historic decision to expand the the age limit for risdiplam to 25 years !!!

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Heartfelt Gratitude 2 d Govt of Kerala! 🙏
@curesmaindia expresses its deepest thks 2CM @pinarayivijayan FM @knbalagopalcpim &HM @VeenaGeorge03 4 d historic allocation of ₹30 Crore 4 Spinal Muscular Atrophy treatment #KeralaGovernment #SMAAwareness #HistoricBudget" @FinMinIndia

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Cure SMA India thanks @Syniti for distributing essential medical equipment to #SMA warriors in Hyderabad, symbolizing freedom & dignity. 🙏 Together, we are building a future where no child is held back by SMA 💜 #EmpoweringLives #SMAWarriors #HopeAndStrength

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

✨ Closing SMA Awareness Month with hope! Mr Sreejith's son's progress with #SMA drug #Risdiplam shows that with timely access & care, milestones are possible. Holding onto hope for a brighter future 🌈 #SMAAwareness #HopeForSMA #CureSMAIndia

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

SMArt Warrior Ruvanthika's inspiring speech at SMArt Con 2025 highlights the importance of treatment, therapy & support in managing #SMA. Her positivity & prayer for others' well-being touched everyone's heart 💜✨ #SMAWarrior #SMArtCon2025 #HopeForSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

✨ Meet Javeria, a 10-yr-old SMArt warrior with big dreams! 💜 Cure SMA India thanks Syniti for empowering SMA warriors with essential medical equipment, symbolizing freedom & dignity. 🙏 #SMABravery #CureSMAIndia #SMArtWarriors #SMABeingLimitless

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

🌟 Rajasekhar's inspiring journey from a small village to the stage, overcoming challenges & shining with confidence!His story highlights the importance of awareness support & guidance in unlocking opportunities for those with SMA. #SMARTCON2025 #SMAAwareness #DisabilityInclusion

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

✨ Dylan's Story ✨ 9-yr-old Dylan's treatment halted due to funding issues. SMA meds are life-changing but unaffordable. No child should lose strength due to cost. Sustainable access is key! 🌸💜 #CureSMAIndia #SMAAwareness #AccessToMedicines #HopeForSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Meet Diya,a 4-yr-old SMA warrior thriving thanks to breakthrough treatments & daily physiotherapy!Physiotherapy builds strength, improves movement & gains independence. Let's celebrate Diya's progress & raise awareness! 🌈💕 #SMAWarrior #PhysiotherapyMatters #CureSMA #SMAwareness

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Meet Deeksha, a SMArt warrior who inspires with her journey of hope & determination! 💪🌟 "Your spirit should never let you down. With willpower, you can always move forward." #SMArtCon2025 #SMAAwareness #NeverGiveUp #CureSMAIndia

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

🌸 Meet Pradeep Kumar, a father of 2 brave boys with #SMA! 💜 Ayansh's progress after gene therapy is inspiring, but Hemanth's journey highlights the need for accessible treatments. Together, we can make a difference! ✨ #SMAAwareness #CureSMAIndia #StrongerThanSMA (part 1)

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

✨ Irfan's scoliosis surgery journey is a testament to courage & resilience! 💙 From struggling with simple tasks to enjoying everyday moments, his story inspires hope & reminds us that every experience matters. 🙌 #SMAAwareness #LifeWithSMA #HopeStrengthLove

[Third World Network @3rdworldnetwork]

Instead of 8 months, 18 years.

That’s how long a patient with Spinal Muscular Atrophy could afford treatment if risdiplam were available as a generic.

Chetali Rao explains the legal & policy architecture that enabled such pricing.

Full video▶️https://t.co/6kep0jDjew

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

✨ Meet Revati, a brave SMA warrior from Pune! 💜 She's sharing her journey to raise awareness about SMA & inspire hope. Her story shows that access to treatment & research can change lives! 🌸 #SMAAwareness #CureSMA #SMAWarrior #HopeForSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

💜 Meet Layam, a brave little boy living with #SMA Type 2. His story reminds us that life with SMA is about resilience, love, and hope. Let's spread knowledge, compassion, and strength together! #SMAAwareness #CureSMA #HopeForSMA

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Grateful n honoured 2 have Shri Avinash Mohanty, CP Cyberabad @CPCyberabad unveiling d #RunForSMA poster & T-shirts n supporting #SpinalMuscularAtroph awareness. Many tks 2 Dr.G.Bhupal, Joint CP, Mr. Naved Alam Khan, CEO @SCSC_Cyberabad, Dr. Vipin Das, Co-lead, Health Forum SCSC,

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

August is #SMAwarenessMonth! Early diagnosis & treatment can be a game-changer for those with Spinal Muscular Atrophy. Let's raise awareness & support affected individuals! Join @CureSMAIndia in making a difference! #CureSMA #SMAwareness

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

Meet Pranjali, a #SMAWarrior! Despite Spinal Muscular Atrophy, she's found strength & joy in painting. "Art makes her feel alive!" Let's celebrate her resilience & creativity this #SMAwarenessMonth! 💕🎨 #CureSMA #SMArt

[Cure SMA Foundation of India 🇮🇳 @curesmaindia]

#SMA is a diagnosis,not a definition.Let's shift our perspective and see our children for who they are-unique individuals with endless potential! Let's encourage them to pursue their passions & celebrate their existence in all its beauty! #SMAwareness #CelebrateEveryChild