mason earle

former professional rock climber #mecfs

[mason earle @masonearle4]

I was a healthy professional rock climber. life was good. Two years ago MECFS took my life away, and switched it to an unrecognizable, never ending nightmare #meawarenesshour

[mason earle @masonearle4]

A little while back I had a series of conversations with @annasale for the @deathsexmoney podcast. We talked about life with #mecfs And it felt good to tell my story. Link in bio. Poignant artwork by @cari_guevara

[mason earle @masonearle4]

@FndPortal I was dx’d with conversion disorder. It has not led to any effective treatment, and I strongly disagree with the dx, but I like to keep an open mind. Curious to try and understand the FND world a little better

[mason earle @masonearle4]

@the_tweedy I have CCI, and experience this as well. I can only lie/sleep on my side. Seems like this is true for a lot of CCI folks

[mason earle @masonearle4]

@karenlubell @jenbrea When I was told this about MECFS patients, I was glad to inform my doctor that I literally failed out of college 😂 means and privilege, however, are critical for complex patients to receive appropriate dx and treatment

[mason earle @masonearle4]

My old life, before I got sick, feels like a distant shore, now far beyond the horizon. The only familiar landmarks now are those I’ve come to know thru illness: constant discomfort, malaise, and a yearning to be free and healthy #meawarenesshour

[mason earle @masonearle4]

@jenbrea I have a conversion disorder dx. It has NOT lead to effective treatment (yet? I like to keep an open mind 🤷‍♂️). To be fair, neither has my MECFS dx, other than connecting me with like patients. a diagnosis that does not lead to effective treatment is not good enough

[mason earle @masonearle4]

ME/CFS is terrifying. It is a condition with so little hope. Hanging 2000 feet off the ground from my fingertips by comparison seems like a day at the spa, compared to a day in the life with ME. This needs to change #meawarenesshour

[mason earle @masonearle4]

@jenbrea Dr Bateman in SLC told me she has all her mecfs patients get an mri to rule out chiari. It’s unfortunate that CCI (sometimes) requires such specialized diagnostics, as run of the mill imaging has failed to dx many of us with cervical instability

[mason earle @masonearle4]

@AnilvanderZee 🙏🙏 hanging in there. As long as it takes!!

[mason earle @masonearle4]

I was a healthy professional rock climber. life was good. Two years ago MECFS took my life away, and switched it to an unrecognizable, never ending nightmare #meawarenesshour

[mason earle @masonearle4]

@welcomewords Very moving 🙏 I really feel this

[mason earle @masonearle4]

@jenbrea When my psych told me last year he thought I had Conversion Disorder, at least I knew I was in good company 😆

[Rosny Daniel @rosnydaniel]

My favorite classes in med school ranked: 1.) Anatomy 2.) Pharmacology 3.) Cardiology 4.) Neuro/psych 5.) How to lie to the masses to propagate mind control through vaccines and microchips 6.) Nephrology 7.) Infectious disease

[mason earle @masonearle4]

@jenbrea @BrandyZadrozny @oneunderscore__ @brianvastag Watching these awful conspiracy theories spread has been the scariest part of the pandemic for me 😢

[mason earle @masonearle4]

Dear Medical professionals of the world... Treating #mecfs with graded exercise therapy is like trying to fix a broken down car by driving it more

[mason earle @masonearle4]

@elonmusk So... social distancing is working? Amazing

[mason earle @masonearle4]

@_ukactive @CMO_England This is false. With Myalgic Encephalomyelitis for instance, even small amounts of exercise can cause devastating, and potentially irreversible worsening of symptoms. Prof Chris Whitty needs to go back to school

[mason earle @masonearle4]

#MEawarenesshour

[mason earle @masonearle4]

@livingwithmcas My me/cfs went into remission for three days after an upper cervical chiropractic manipulation. It felt like a miracle. It did not however, have any lasting benefits, but it’s how I learned that my neck was ground zero for my debilitating condition

[mason earle @masonearle4]

@Lizzyyx_82 @jenbrea @LKee_1111 @jeff_says_that @JourneyFog Wishing you the absolute best 🙏🙏🙏