Michele Creed

[Michele Creed @mcreedmills]

@AndrewofSussex Well done Andrew for never giving up and achieving the outcome of families being able to access Child Trust Savings for their disabled young person.

[Michele Creed @mcreedmills]

@k_runswick_cole We used Renaissance Legal, Brighton based but work countrywide x

[Michele Creed @mcreedmills]

@ohhanxiety Edna

[Andy Creed @cyberistia]

We are going to provide you with a personal AI health coach.

Entirely for free.

All you have to do is get healthier. 💪

[Michele Creed @mcreedmills]

My daughter now 21 and has been weekly boarding at a college since 2022, we requested a 4th year from Sept, which has been refused because she cannot work at a higher level than Entry Level 1, she is severally mentally delayed, this level is appropriate for her, we will appeal!

[Nikki Fox - BBC News & Watchdog Presenter @FoxNikkiFox]

I’m sorry to ask a personal question but I’m just wondering whether anyone on here is disabled, 22 years old or younger, actively looking for work but struggling to get a job. If you’re happy to chat, please email me - [email protected].
Thank you so much xxxx

[Sharron Davies HoL MBE @sharrond62]

If you support single sex spaces for women that include bathrooms, changing rooms & sports please Rt & like. I firmly believe biological females have that right, to personal dignity & fair sport in the Uk but across the whole world. I’m prepared to stand up & be counted. Are you?

[Andy Creed @cyberistia]

🚀 We’re Hiring! 🚀

Bullet AI is looking for top-tier developers to join our team and push the boundaries of AI innovation. If you’re passionate about cutting-edge AI, scalable systems, and making a real impact, we want to hear from you.

Join us in shaping the future.

If you’ve got what it takes DM me

[Michele Creed @mcreedmills]

I became a deputy to access my daughter’s Child Trust Fund. This is the 3rd year of submitting the yearly online report, it has got nothing to do with her CTF now in a savings account as it’s not being spent. All receipts/statements are for her benefits account. Makes no sense.

[Michele Creed @mcreedmills]

The film I made for Spinning Plates is one of the films shared here. It’s about how my adult daughter gets stared at by others who don’t understand what having a disability can look like.

[SpinningPlates_CarerMH @SpinPlatesCare]

We are delighted to be able to share the films and some resources we made as part of the project.

They are now available as part of #SocialCareTalk

You can access them here: https://t.co/46XOyrlILE

Thank you to @DIPEXofficial for all your support and for hosting.

[SpinningPlates_CarerMH @SpinPlatesCare]

We are so excited to see the project featured in @CommLivingMag_ this week, check it out here:

https://t.co/1sy0oYVCzO

[Andrew Turner @AndrewofSussex]

An encouraging response on the Child Trust Fund issue in Parliament today.👇
@samcarlisle @mumof3amigos @martinimarie @mcreedmills @AutyWarriorMum @1985Deanne @DupreeDeb @DCPcampaign @contactfamilies @myspecial3girls @Danwhite1972 @DSAInfo

[Andrew Turner @AndrewofSussex]

A ray of hope that thousands of disabled children may one day benefit from their savings. 👇
@alextomo @jessiehewitson @Emmabarnett @jimconey @George_Nixon97 @FoxNikkiFox @Cleggins82 @bbcdanw @FelicityHannah @MartinSLewis @MoneySavingExp @estheraddley

[Samuel West 💙💛 @exitthelemming]

If you’re lucky enough to have children who grow out of their pyjamas quickly, here’s a caring and kind way to pass them on (the pyjamas, not the children).

Please support @CHPyjamaCharity

[SEND Warrior Mum making a difference! @martinimarie]

This definitely sums up the journey as a Parent Carer!

What is a parent carer?
It's staying at home with our feet up all day,
While others work our wages they pay.
Its getting the offers, the discounts and deals,
All to help with our child's extra needs.
It's the DLA we get for no reason,
It's jumping the ques while others stand freezing.
It sounds so easy if these perceptions were true!
Here's a few truths I'll share with you...

It's the bruises we hide from the meltdown last night
From holding them until they had no more fight
Its the regimented life that we now live
For a family meal out what we wouldn't give
It's the sleep we don't get and the nights out we miss
It's the explanation to others about all of this
It's the fights that we face in every single way to get their needs met at the end of the day
Its the story you tell for the hundredth time to various people, you want to cry
It's the tears we hide because we're scared we're not coping
It's the smiles we paint on there's no use in moping
It's the splints we fit and the exercises we do physio, nurse and chef we are too.
It's the appointments to remember with doctors and dentist to be honest I'm not sure how were not all demented.
It's the progress reviews we sit through at school hearing their struggles it all seems so cruel
Its the stares in the playground, the parties they dont get asked to
It's explaining to them why on the 10th time they've asked you
It's buying the 12th pair of shoes in a term because our children destroy them when will they learn
It's fighting the system that's already broke
But carrying on with hope against hope
Its apologising first for what is to come the courage to go out when you'd rather stay home
It's educating teacher family and friend about the conditions and that they wont mend
It's the guilt that we feel that were not always enough and our children's siblings who have it rough
It's the schools changing routines that make our day and impacts our child in every way
It's wanting to work but not having the time it's the desperation to have something that's solely mine
It's the not giving up when the going gets tough
Its a appreciating the smooth and riding the rough
It's the smiles that they give you and the light in their eyes
It's the ' I love you's' that take us by surprise
It's the others you meet in this new way of life that gets you through the troubles and strife
It's the strength you didn't know you possessed it's the times you went on even when you were stressed
Its the love that you have for your child who is special that gets us through these tasks
but some understanding and empathy from others is not too much to ask!

The Author is unknown but whoever wrote this is amazing ❤💙
#ParentCarers #WhatMakesACarerCry

[Michele Creed @mcreedmills]

@mumof3amigos @sarasiobhan @DrMartinaSmith @k_runswick_cole Happy Birthday to you, hope to see you again at some point x

[Michele Creed @mcreedmills]

@mumof3amigos @sarasiobhan @DrMartinaSmith @k_runswick_cole I would love to have been there as I enjoyed being part of the project, but it was my husband’s 60th birthday today!

[Michele Creed @mcreedmills]

@mumof3amigos It was brilliant.

[SpinningPlates_CarerMH @SpinPlatesCare]

Please join us online on 5th November 2024 at 11:00-13:00 to find out more about the #NIHR funded Tired of Spinning Plates Project exploring the mental health of family carers of adults with learning disabilities

Sign up here: https://t.co/inBjeD0MZQ

@ESRC #ESRCFestival

[Rae :-) @Chuffin_ell]

Lots of:

Student accommodation being built bedrooms, shared kitchens, shared lounges

Retirement/supported living being built - individual flats, communal areas such as lounges, cafe

What about those with learning disabilities who are under 55 & want similar @AngelaRayner ?