Too many updates for 1 post! Congrats to Drs Crutcher, Dedic, and Chorny for publishing our project in @EpilepsyBehavi1 - How does misinformation impacts engagement on TikTok?
https://t.co/d89oc2PehP
Last Call to register for the Principles of Clinical Neurophysiology Courses (PCNP)! This live virtual event offers basic to intermediate instruction ahead of the #ACNS2026 Annual Meeting & Courses. Visit https://t.co/wuerCD8mCS to register before September 26!
NEW #OpenAccess article by Sammie Lai & Fernando N. Galan of @MayoClinic: A Rare and Treatable Cause for Generalized #Epilepsy: Biotinidase Deficiency: https://t.co/lXHJtqtpSF
@WileyNeuro @md_galan
This study provides a comprehensive analysis of factors associated with later initiation of #epilepsy surgery evaluation and its association with seizure freedom in a large pediatric cohort: https://t.co/hkD4R5WMhz
This study evaluates clinical and presurgical characteristics relating to surgical outcomes in early-life focal cortical dysplasia-related #epilepsy: https://t.co/rgNaK8p37V
NEW #OpenAccess visual diagnosis from Samuel Kamoroff, Harry Abram, & @md_galan of @Nemours@MayoClinic: Epilepsy of Infancy With Migrating Focal Seizures
https://t.co/7Hxbc3TUFA
@wileyneuro
NEW visual diagnosis: Samuel Kamoroff et al. of @Nemours@MayoClinic present a 5-year-old girl with difficult-to-treat #epilepsy with developmental implications. Watch the video: https://t.co/t0JYDqiksz
@WileyNeuro @md_galan
Celebrate a significant someone or occasion with an honorary or memorial gift in their name. Place your tribute in your comments when you donate:
https://t.co/vzrZcw6FVO
Congrats to Dr. Chorny on publishing in @EpiDisorders
Proud of our resident accomplishments! Consider using our publication and video when teaching students about breath holding.
@MayoFL_NeuroRes
https://t.co/MA14Kptho5
During National #Epilepsy Awareness Month, we want to share the inspiring story of Aubriana, a 16-year-old from Alabama who overcame epilepsy to pursue her dream of being a nurse:
Less than three years ago, Aurbiana began battling undiagnosed “medical episodes,” which she explained felt like an out-of-body experience. As the episodes continued, Aubriana’s care team in Alabama ran various tests and ordered lab work, all of which came back normal.
In August 2023, Aubriana suffered a grand mal seizure and two days later, had another one. Both times, Aubriana was taken to a local emergency room and underwent lab work and a CT scan. According to Aubriana’s mom, Shan, none of the tests showed evidence of a seizure.
Aubriana began seeing a neurologist in a neighboring city, who prescribed antiseizure medication and ordered an MRI. The results showed that Aubriana had a cerebral cavernous malformation (CCM).
In April 2024, Aubriana and her family made the nearly-five-hour trip to Jacksonville and met with Fernando Galan, MD, medical director of the Brunell Family Children’s Neuro-Diagnostic Center at Wolfson Children’s Hospital and a pediatric neurologist and epileptologist with Nemours Children’s Health.
“Aubriana’s condition is rare; only about 0.5% of every 100,000 people are diagnosed with cerebral cavernous malformations," Dr. Galan said. “Not all cavernomas cause epilepsy, but up to 20% of children with cavernomas will develop epilepsy, like Aubriana did.”
Ultimately, Dr. Galan determined Aubriana was a candidate for a right temporal lobectomy, during which the section of the brain where the seizures originate is removed.
After a week of recovery at Wolfson Children’s, Aubriana was able to go home and has been seizure-free since. Over the summer, she attended band camp and felt like herself again.
Shan said it’s hard to truly express the family’s gratitude for the providers at Wolfson Children’s.
“Everyone went above and beyond to make sure Aubriana was cared for and had what she needed."
Read the full story here: https://t.co/dzVLhlWmjh.