#MEActionNC

#MEAction state chapter for North Carolina (NC). Support Mtgs 1st Wed each month 12:30p-1:30p ET..

[#MEActionNC @MEActionNC]

We’re celebrating these wins at a
Virtual Blue Sunday Tea Party for ME on 5/17 @ 1PM ET.  All invited! Tea & cozy fun.   Join us! (Optional $5 donation, no box req’d, See $30 tea/treat box info below.)
#BlueSunday #mecfs #MEAction #MillionsMissing 2/3
https://t.co/YVAKvlDt9w

[Long Covid Advocacy 💙 @LongCovidAdvoc]

🤩 Let's celebrate all 23 second wave orgs who have signed the open letter to @rcpsych!
😍 ME/CFS San Diego
🎊 Bury & Bolton ME/CFS & Fibro Support Group
🎈 Long Covid Aoteroa (New Zealand)
🪅 Alianca Millions Missing
🎏 Long Covid Schweiz
🎖️ Cambridge ME & Long Covid Support

[@invest_in_me (Invest in ME Research) 🇪🇺 @Invest_in_ME]

International ME Conference Week begins 25 May

Save the dates also for 2027

https://t.co/SAxA1sconD

#mecfs #IMECW2027 #research

[Tom Kindlon @TomKindlon]

Delighted to get this coverage in the Sunday World, one of the newspapers with the largest readership in Ireland

#MEcfs #PwME

[Adam @ABrokenBattery]

George Monbiot describes the treatment of #MECFS as “The Greatest Medical Scandal of the 21st century”. Repost of the introduction to my 27-minute explainer video for #MEAwarenessMonth — now optimised for phones.

[#MEActionNC @MEActionNC]

This is tomorrow. Still time to register for the zoom social.

[#MEActionNC @MEActionNC]

We’re celebrating these wins at a
Virtual Blue Sunday Tea Party for ME on 5/17 @ 1PM ET.  All invited! Tea & cozy fun.   Join us! (Optional $5 donation, no box req’d, See $30 tea/treat box info below.)
#BlueSunday #mecfs #MEAction #MillionsMissing 2/3
https://t.co/YVAKvlDt9w

[#MEAction Network @MEActNet]

Blue Sunday ,The Tea Party for M.E., is tomorrow - May 17, 2026! Everyone is invited!
A huge thank you to Anna Redshaw for creating this event.

More info: https://t.co/YAXSvzfbSJ

@meactionNC invites everyone at 1 pm. https://t.co/kbdAyFuVEs

#BlueSunday202 #TeaPartyForME2026

[#MEAction Network @MEActNet]

Real wins. Real relationships. Real next steps.

Help us keep fighting for the healthcare our community deserves. We have a NEW $7,000 matching grant to help us fund our advocacy. Every $ will be matched from now UNTIL MONDAY.

Give here:
https://t.co/yhe1YCd9Ya

#MECFS

[#MEActionNC @MEActionNC]

Today is ME Awareness Day. We’re furious about the reality of life with this illness. ME/CFS is serious, a complex disease leaving 3/4 of victims disabled, yet patients are not recognized as “medically frail."

TY @NC_Governor @JoshStein_ & Raleigh Mayor Janet Cowell for...

[#MEAction Network @MEActNet]

The advocacy we’re rolling out is phenomenal & can only be done with your support! https://t.co/jTKhL2MLzf

#MEAction is meeting with HHS to fight for Medicaid & we’re meeting w/ NIH to discuss funding for the ME/CFS Research Roadmap. Then Congress alongside #NotJustFatigue!

[Solve ME/CFS Initiative @PlzSolveCFS]

This week, advocate Rebecca Groble shared information about ME/CFS at the Evanston Public Library in honor of World ME Month. Thank you, Rebecca, and health librarian Irene, for doing your part to educate people about this disease. Visibility matters!
#WorldMEDay #UnitedForME

[#MEActionNC @MEActionNC]

Thank you to all the individuals and organizations, doctors, nurses, researchers, family, allies, working to help those with ME live with more dignity, acceptance, and quality treatment and testing.

[#MEActionNC @MEActionNC]

A letter of support from @NC_Governor @JoshStein_ .

[#MEActionNC @MEActionNC]

Above all, my heart goes out to those who suffer from ME and their families. [❤️]

[#MEActionNC @MEActionNC]

NOW, THEREFORE, do I, Janet Cowell, Mayor of the City of Raleigh, North Carolina, do hereby proclaim
May 12th, 2026 as
ME AWARENESS DAY

[#MEActionNC @MEActionNC]

Today is ME Awareness Day. We’re furious about the reality of life with this illness. ME/CFS is serious, a complex disease leaving 3/4 of victims disabled, yet patients are not recognized as “medically frail."

TY @NC_Governor @JoshStein_ & Raleigh Mayor Janet Cowell for...

[#MEActionNC @MEActionNC]

WHEREAS, May 12 is internationally recognized as ME Awareness Day, honoring the strength and resilience of the ME community and highlighting the need for increased understanding, research investment, and comprehensive systems of care and support;