ME Advocacy Network Australia (MEANA)

We fight for health equality for Australians with ME/CFS. We’re an independent group, not affiliated with any other group. Formerly #MEAction Network Australia.

[World ME Alliance @WorldMEAlliance]

⏰ ME/CFS isn't something you 'get over' quickly.

For many, Severe ME means decades of profound disability, isolation, and lost life opportunities. We need research, recognition, and respect.

#SevereMEDay #SevereME #HiddenButHere #BeTheLight #ResearchME

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

@FionaPWME Yes, apologies for not explaining well

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

Snap Protest to mark ME/CFS and Fibromyalgia Awareness Month

1pm Saturday 17 May 2025 State Library, Melbourne

If you are unable to be there due to chronic illness, you can write a short message to be read out at the protest. Please send it to [email protected]

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

@FionaPWME Legislation to introduce them is being debated in Victoria

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

Today is #InternationalMECFSAwarenessDay

We remind the Prime Minister that, on election night, he promised that there would be No One Left Behind.

Help us ask him to give a #FairGoForME by leaving a comment on his FB page!

https://t.co/lcWv5dwrtM?

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

CALL TO ACTION - FEDERAL ELECTION!

If you live in a marginal seat, your vote could decide the election! Help us get a #FairGoForME!

Let us know if you live in a marginal electorate!
#mecfs #longCOVID

[Emerge Australia @EmergeAus]

If you live in a marginal seat, your voice is crucial! Help us get a #FairGoForME!

Like and follow your local candidates. Leave a comment asking what they will do for #MECFS and #longCOVID.

Remind them their commitments will decide your vote!

https://t.co/7rEJTpu5SI

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

Election candidates must commit to change for the #MECFS & #longCOVID community. Ask for their election commitments today!

Leave a comment on this post sharing why you need more from the next government & tag your local candidates.

Tell them you want a #FairGoForME!

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

@ClagueNjc36 @PhysiosForME HRM is widely used in the ME community and so it would be useful for those of us with cognitive impairment to continue with a familiar term

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

Join us to call on politicians to give a #FairGoToME this election! Follow your election candidates on social media and let them know that their #mecfs and #longCOVID policy will decide your vote!

[Emerge Australia @EmergeAus]

Make the 2025 election count for ME/CFS and long COVID sufferers! Follow and engage with candidates on Facebook. Demand research funding, clinical education, and disability support. Visit [ https://t.co/VYSszSzX3Q] to find your electorate and https://t.co/WmsiX0c1Pk

[Jenny Meagher @JennMeagher]

🗣️The federal Health Minister Mark Butler will speak at the Parliamentary Friends of #MECFS meeting 18th Nov

👩🏻‍💻 Pls join event via zoom to ⬆️ attendee numbers
🗳️ Politicians notice numbers
🛌Cameras can be off to allow resting

Click on link to join zoom
https://t.co/VNGnoei6Ow

[NCNED @NCNEDResearch]

🚨New Publication Alert🚨

Dr Natalie Eaton-Fitch and NCNED researchers share novel advancements in understanding the immune mechanisms behind #MECFS and #longCOVID in a recent article published in JCI Insight.

📖 Read the full article here: https://t.co/vAreqtxKYy

@JCI_insight

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

#SevereMEday
#SevereME
#MyalgicEncephalomyelitis
#MECFS

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

Our worlds have become even smaller. The most severe of us continue to be neglected by governments about issues that threaten our lives, including COVID and cutting essential NDIS funding. Please support us by writing to MPs to ask they care about the most vulnerable in society.

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

Our worlds have become even smaller. The most severe of us continue to be neglected by governments about issues that threaten our lives, including COVID and cutting essential NDIS funding. Please support us by writing to MPs to ask they care about the most vulnerable in society.

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

On August 8 we acknowledge people living with #severeME

’Smaller Circles’ by @jeshyr and @AmbleSkuse details living with severe ME: https://t.co/N9Ls1DLI8T

Please note that the audio version may not be suitable for people with auditory disturbance.
#SevereMEDay

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

#GreatestMEdicalScandal

#JohnVsJonVsME

#BlackDressDay

[BlackDressDay @BlackDressDay1]

@MEAdvNetAu

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

@davidtuller1

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

#GreatestMEdicalScandal

#JohnVsJonVsME

[Adam @ABrokenBattery]

George Monbiot described the treatment of #MECFS as "one of the greatest medical scandals" & "this is about how the scientific and media establishment closed ranks around bad science, defending it from legitimate questioning and criticism." #GreatestMEdicalScandal

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

#GreatestMEdicalScandal

#JohnVsJonVsME

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

#MAYAWARENESS2024

Please support people with #MECFS by emailing your local Federal MP with the below template covering significant issues affecting the ME/CFS community.

https://t.co/EQ6vXmHgfC

#MAY12
#WORLDMEDAY
#AUSPOL

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

#GreatestMEdicalScandal

#JohnVsJonVsME

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

On #WorldMEDay please recognise people with #MECFS

@AlboMP
@billshortenmp
@Mark_Butler_MP
@AmandaRishworth
@SenatorJordon
@gedkearney
@KyleaTink
@stevegeorganas
@SenKatyG
@michrajah

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

#GreatestMEdicalScandal

#JohnVsJonVsME

#BlackDressDay

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

#BlackDressDay 2024, now 31 years since Alison wrote ‘Forget Me Not’

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

#BlackDressDay 2024, now 31 years since Alison wrote ‘Forget Me Not’

[ME Advocacy Network Australia (MEANA) @MEAdvNetAu]

On #BlackDressDay we remember all those who have died of, and with, ME/CFS.

Support people with #MECFS to update the #NHMRC guidelines here: https://t.co/avQBudgOcJ

‘Forget Me Not’ by Alison Hunter
https://t.co/PsDLsmwAgR