We fight for health equality for Australians with ME/CFS. We’re an independent group, not affiliated with any other group. Formerly #MEAction Network Australia.
⏰ ME/CFS isn't something you 'get over' quickly.
For many, Severe ME means decades of profound disability, isolation, and lost life opportunities. We need research, recognition, and respect.
#SevereMEDay#SevereME#HiddenButHere#BeTheLight#ResearchME
Snap Protest to mark ME/CFS and Fibromyalgia Awareness Month
1pm Saturday 17 May 2025 State Library, Melbourne
If you are unable to be there due to chronic illness, you can write a short message to be read out at the protest. Please send it to [email protected]
Today is #InternationalMECFSAwarenessDay
We remind the Prime Minister that, on election night, he promised that there would be No One Left Behind.
Help us ask him to give a #FairGoForME by leaving a comment on his FB page!
https://t.co/lcWv5dwrtM?
CALL TO ACTION - FEDERAL ELECTION!
If you live in a marginal seat, your vote could decide the election! Help us get a #FairGoForME!
Let us know if you live in a marginal electorate!
#mecfs#longCOVID
If you live in a marginal seat, your voice is crucial! Help us get a #FairGoForME!
Like and follow your local candidates. Leave a comment asking what they will do for #MECFS and #longCOVID.
Remind them their commitments will decide your vote!
https://t.co/7rEJTpu5SI
Election candidates must commit to change for the #MECFS & #longCOVID community. Ask for their election commitments today!
Leave a comment on this post sharing why you need more from the next government & tag your local candidates.
Tell them you want a #FairGoForME!
@ClagueNjc36@PhysiosForME HRM is widely used in the ME community and so it would be useful for those of us with cognitive impairment to continue with a familiar term
Join us to call on politicians to give a #FairGoToME this election! Follow your election candidates on social media and let them know that their #mecfs and #longCOVID policy will decide your vote!
Make the 2025 election count for ME/CFS and long COVID sufferers! Follow and engage with candidates on Facebook. Demand research funding, clinical education, and disability support. Visit [ https://t.co/VYSszSzX3Q] to find your electorate and https://t.co/WmsiX0c1Pk
🗣️The federal Health Minister Mark Butler will speak at the Parliamentary Friends of #MECFS meeting 18th Nov
👩🏻💻 Pls join event via zoom to ⬆️ attendee numbers
🗳️ Politicians notice numbers
🛌Cameras can be off to allow resting
Click on link to join zoom
https://t.co/VNGnoei6Ow
🚨New Publication Alert🚨
Dr Natalie Eaton-Fitch and NCNED researchers share novel advancements in understanding the immune mechanisms behind #MECFS and #longCOVID in a recent article published in JCI Insight.
📖 Read the full article here: https://t.co/vAreqtxKYy
@JCI_insight
Our worlds have become even smaller. The most severe of us continue to be neglected by governments about issues that threaten our lives, including COVID and cutting essential NDIS funding. Please support us by writing to MPs to ask they care about the most vulnerable in society.
Our worlds have become even smaller. The most severe of us continue to be neglected by governments about issues that threaten our lives, including COVID and cutting essential NDIS funding. Please support us by writing to MPs to ask they care about the most vulnerable in society.
On August 8 we acknowledge people living with #severeME
’Smaller Circles’ by @jeshyr and @AmbleSkuse details living with severe ME: https://t.co/N9Ls1DLI8T
Please note that the audio version may not be suitable for people with auditory disturbance.
#SevereMEDay
George Monbiot described the treatment of #MECFS as "one of the greatest medical scandals" & "this is about how the scientific and media establishment closed ranks around bad science, defending it from legitimate questioning and criticism." #GreatestMEdicalScandal
#MAYAWARENESS2024
Please support people with #MECFS by emailing your local Federal MP with the below template covering significant issues affecting the ME/CFS community.
https://t.co/EQ6vXmHgfC
#MAY12#WORLDMEDAY#AUSPOL
On #BlackDressDay we remember all those who have died of, and with, ME/CFS.
Support people with #MECFS to update the #NHMRC guidelines here: https://t.co/avQBudgOcJ
‘Forget Me Not’ by Alison Hunter
https://t.co/PsDLsmwAgR