MECFA

Working to help Middle East Cystic Fibrosis patients live longer healthier lives.

Follow us to learn how we make a difference.

[MECFA @mecfassoc]

As part of our campaign efforts to win access for every CF patient everywhere, we want to learn more about the potential global demand for affordable CFTR modulators.
https://t.co/niUnKbXj49

#cysticfibrosis #CF #mecfa #CFTR #modulators #RightToBreathe #breathe

[MECFA @mecfassoc]

MECFA supports CF patients in Tunisia

https://t.co/UNrRgjPapv

#mecfa #CF #cysticfibrosis #patients

[MECFA @mecfassoc]

🌟🎉 Exciting news! Congratulations to Dr. Bülent Karadağ for winning The Philip Hopewell Prize for Global Respiratory Health Research in 2024! 🏆 Their impactful work is making a difference in communities worldwide. 🌏🎊
Click the link to learn more: https://t.co/tsTnq63U09

[MECFA @mecfassoc]

South Africans take on big pharma for access to ‘miracle’ cystic fibrosis drug

https://t.co/TtZKlmLFC3

[MECFA @mecfassoc]

MECFA launches campaign to help people with CF in Gaza and the West Bank, Palestine https://t.co/LF96Swxt5S

[MECFA @mecfassoc]

To help CF sufferers in Gaza and the West Bank, Palestine, we are collecting money to buy medication and nutritional supplements that could save their lives. Patients entangled in the continuing war will receive 100% of all donations.
https://t.co/v3jOOHbyI9
#CF #mecfa #gaza

[MECFA @mecfassoc]

Ministry of Health unveils national electronic registry for cystic fibrosis patients
🎉 Exciting news! The Ministry of Health just launched a national electronic registry for cystic fibrosis patients
#HealthCare #CysticFibrosis #StayInformed #mecfa #CF
https://t.co/KvY4Ir4NgP

[MECFA @mecfassoc]

Sweat testing with Dr. Emin Tahir Akı of UTSAT within bootcamp!

[MECFA @mecfassoc]

Bootcamp started with the attendance of Azerbaijan, Kazakhstan, Thailand and Algeria at Marmara Eğitim Araştırma Hastanesi.

[MECFA @mecfassoc]

Boston Childrens Hospitals CF team of experts and specialists from University of Utah, Arkansas and Ohio visit the CF Center at King Abdullah Hospital in Jordan to begin Quality Improvement training.
https://t.co/sYhu93UsuU
#CysticFibrosis #FightCF #MECFA #Jordan #KAUH

[Gregory Sawicki MD MPH 👨‍⚕️🌈 @GregSawickiMD]

So proud of my colleagues at the CF programs @BostonChildrens and @BrighamWomens on their ongoing work to support CF care in Jordan. Big thanks to @CF_Foundation and @mecfassoc for supporting these efforts!

[MECFA @mecfassoc]

MECFA launches Quality Improvement work in Jordan led by Prof Ahmet Uluer and his team of experts from Harvard Boston Children's Hospital, University of Utah, Arkansas and Ohio.
https://t.co/sYhu93UsuU
#CysticFibrosis #FightCF #MECFA

[MECFA @mecfassoc]

A huge thank you to everyone who donated to the #BostonToJordan #GivingBreathCampaign. We have raised $4602 and purchased 60 nebulizers for peopel with CF in Jordan.
https://t.co/NXivIUC9jM
#CysticFibrosis #BostonToJordan #FightCF #Nebulizers #ThankYou

[MECFA @mecfassoc]

Thank you to the Boston CF Center team for hosting a fundraising event tonight! They have set a goal to raise enough to purchase 424 nebulizers for CF patients in Jordan. Join them and Give Breath today!
https://t.co/NXivIUC9jM
#CysticFibrosis #GiveBreath #BostonToJordan

[MECFA @mecfassoc]

Join the Harvard Boston CF Center team as they raise funds to donate nebulizers to CF patients in Jordan. Donate today and Give Breath because Giving Breath is Giving Life
https://t.co/EDWhHf7LOL
#CysticFibrosis #nebulizers #BostonToJordan #GiveBreath #Breathe

[MECFA @mecfassoc]

Join the #GivingBreathCampaign and help us donate nebulizers to CF patients in Jordan.
https://t.co/NXivIUC9jM
#GiveBreath #bostontojordan #CysticFIbrosis #Fundraising

[MECFA @mecfassoc]

Check out my blog post
#newblogpost https://t.co/6826nP0yBJ

[MECFA @mecfassoc]

MECFA works to establish CF centers in Jordan
#newblogpost #CysticFibrosis #Jordan #MECFA https://t.co/qYHKU89p7a

[MECFA @mecfassoc]

Caregivers, Patients With Cystic Fibrosis, Primary Ciliary Dyskinesia at Elevated Risk of Mental Illness https://t.co/TazpikkyTQ

[MECFA @mecfassoc]

Pulmonary exacerbations worse after unplanned pregnancy
#newblogpost #mecfa #cfnews #cysticfibrosis #pregnancy https://t.co/0Ndj9XCv4l