May 28th Lily's Legends will be walking the #walktomakecfhistory in #Ottawa. Help us reach our goal of $9000 raised. donate here
https://t.co/JCuXik1DVc
Today is Rare Disease Day and it’s a day to raise awareness for the 300 Million people in the world with over 6000 rare diseases.
If you or a loved one have a rare disease write it in the comments and make it seen.
#RareDisease#RareDiseaseDay#RareDiseaseDay2023
Today is #RareDiseaseDay. Approximately 4300 🇨🇦 live with #cysticfibrosis. With life changing medicines for this disease on the market, 🇨🇦 needs a #rarediseasestrategy to get these into the hands of Canadians.
Proud of my sister for her quick thinking in a stressful situation! ❤️ All kids doing well thanks to Stepping Up’s great care and emergency protocols @ctvottawa#ottnews
Stopped by ‘Stepping UP Daycare’ this morning & all the kids are back & doing well. Thanked the owner, Lindsay, for making the right decisions & calling 911 to get emergency crews on scene.👏
A great reminder for all businesses to practice their emergency plans.#OttNews
May 29th Saunders Farm is hosting the Walk to Make CF History! Buy tickets here to join in the fun! 100% ticket sales go back to @CFCanada ://my.crowdchange.ca/8m6vqw
spreading awareness and raising funds for @CFCanada so that one day we see #aworldwithoutcf help us reach our goal of $6500 this year! For every 100$ I’m running 1km for 65km in May! 25km ✅ donate here https://t.co/Xq1gmvNNYW
May is Cystic Fibrosis Awareness month. This month our teams goal is $6500 for @CFCanada. I will be running 65km in May in honour of this goal. Please help us reach this goal and donate to our walk team if you can! #furthertogether for Lily and cf. https://t.co/Xq1gmvNNYW
Join me and go #FurtherTogether for cf. Write to your elected official to ask them to ensure miracle drug, Trikafta, is funded for every Canadian child over 6 and adult living with cystic fibrosis Lily and the young cfwarriors need access today https://t.co/Viqgc7z01V
💚April is organ donation awareness month. If you haven’t yet please go to https://t.co/eEbq00S7pV and register today. Your generosity could save 8 lives. 💚
Access to medication in Canada for our rare disease community needs to improve. I support the implementation of Canada's Rare Disease Drug Strategy https://t.co/uXZxkDqlrM #Canada4Rare#saverarelives#support via @raredisorders
Lily's Legends will be walking again for the 5th year in a row and in person for the 1st time in 2years! @saundersfarm is generously hosting this year and we are so excited! Help us reach our goal of #goingfurtherforcf and join us on May 29th or Donate! https://t.co/pFDxiZdf1w
Golden Fries is nominated again for Best Food Truck of the Year! They are an ongoing @CFCanada supporter to Ottawa Chapter! VOTE Now for the 2020 Ottawa Awards by Faces Magazine! https://t.co/wXGRao5WMP https://t.co/arf9o0oEtN
Great day at #Quest4CF Ottawa today raising money for @CFCanada! So much fun seeing our Questers creative costumes! You can donate to our team here! https://t.co/sRpq3wjQjk
Our costumes are ready for the QUEST tomorrow! Can't wait to see our questers on their hunt around Ottawa! Stay tuned for highlights! Donate to our team here and help us raise funds for a world without CF! Ottawa - Quest4CF https://t.co/YU9Mkl6GXX
Lily's Legends https://t.co/sRpq3wjQjk QUEST4CF Ottawa is coming Sunday! REGISTER or DONATE here! Halloween themed, treats, food, prizes and so much more! REGISTRATION CLOSES TOMORROW!!