Cystic Fibrosis Yukon, a small, volunteer run Non Profit- raising awareness and funds through recreation in #Yukon communities!! #CFYukon Founded: April 2012
It's wild to think that we are in our 12th fundraising year! We are a small, volunteer run non-profit, raising funds for #CF in Yukon communities! #CFY is the only #cysticfibrosis non-profit in the Yukon! #wearesmall#butwearemighty
Starting October 16, Yukoners will be able to get vaccinated against COVID-19 and flu. Visit https://t.co/R1KdktfX2W for more information. Read more: https://t.co/m8oi2W7sVt
RMH UNITED team supporters are growing 💛 Excited to have Russell Teibert of the Vancouver Whitecaps joining team RMH UNITED to show his support to the families of Ronald McDonald House BC & Yukon!
Learn more at https://t.co/Siijft7qoS
#RMHBC#40thAnniversary#SponsorOurTeam
Looking for some beautiful CF jewelry? The Bonnell Foundation has it! Our lung necklace is what I am wearing during a podcast taping. We have charms and earrings too! Link in bio! #CFjewelry#CF#bonnellfoundation
I won’t let cystic fibrosis define me or stop me from living my life to the full, says NI personal trainer | https://t.co/qmyEztWRHb https://t.co/23xpmhLcgJ
📡 New research from @UCSFChildrens in @JournalofCF
Ethnic Differences In Acquiring Staph. aureus in children and young adults with cystic fibrosis.
🔗https://t.co/IVAG8jr3PU
A Yukon-wide fire ban is coming into effect today due to high wildfire activity, lightning potential and hot and dry conditions forecast for the week.
https://t.co/qx4nTiyrOh
Beam #cysticfibrosis youth, developed in collaboration with Johns Hopkins CF center and @YogaForCF is FREE all summer long! Please spread the word and help CF families from around the world benefit from this awesome resource. Read more here https://t.co/OOsqPte4uW
Treatment with Trikafta was found on MRI scans to improve structural abnormalities in the lungs of CF patients and reduce mucus plugging. https://t.co/1kqHYdJLNC #cysticfibrosis#cfwarrior#curecf#cysticfibrosislife
It’s #cfweek. The treatment burden is a big concern. 1st pic, G doing airway clearance physio. This is 2x daily when well, more when not.
2nd pic is Nebulised treatment. Once a day, timed to fit 2hrs b4 physio.
Every day is planned around this. Never a day off. @cftrust
This is what having CF looks like daily. It may be mostly invisible to other people (until you hear/see us cough 😳) but it’s a tough full time battle. This is also what CF combined with a heart attack and stroke looks like, thank goodness for pill organisers! #CFWeek@cftrust 💜
@jasonpl@strawfie This is just amazing to hear! We are so happy for you! Glad to see that the people who are thriving on #kaftrio#trikafta are still fighting for the rest of people living with #cysticfibrosis to have affordable access!! We are in this fight together!
It's #CFWeek!!
Please share this article on how #Kaftrio can change lives - & then sign the petition so that patients in all countries can access this amazing #cysticfibrosis drug (known as #Trikafta in many countries)
https://t.co/5tk5wBHFVL
https://t.co/avWqAEsWzY @CFAware
Researchers have identified a new class of CFTR correctors for CF that enhance the potency of currently available CFTR modulator therapies. https://t.co/m7aC813DKk #cysticfibrosis#cfwarrior#curecf#cysticfibrosislife