MyEyeSite

MyEyeSite is a digital platform for people suffering with rare eye disease.

[MyEyeSite @meheyesite]

"MyEyeSite: Bringing ownership of eye health data into ‘focus’ for patients with inherited retinal diseases (IRD)"
https://t.co/bsYHgPBpNQ
Please read/review our latest research article.
@Rosie_EyeDoc @DSumodhee @npontikos @nicknettleton @MoorfieldsBRC @Moorfields @UCLeye @HDR_UK

[Eye2Gene @Eye2Gene]

Our preprint
https://t.co/Pz1ZrG73R8

[Nikolas Pontikos @npontikos]

Nice to see the work of @Rosie_EyeDoc @DSumodhee @_RodrigoYoung @nicknettleton and team online, with special thanks to patient co-authors Cath Hollyhead and Angus Patrick! Learn more about the project here: https://t.co/WlzdrwChya
https://t.co/3hfOLDXmlX

[Moorfields Eye Charity @EyeCharity]

👏 Congratulations to @npontikos on his NIHR Artificial Intelligence in Health and Care Award. We’re thrilled to see his continuing success having supported his research with a @eyecharity career development award.

#NHSAILab #AIAward @eye2gene

[Dr Rose Gilbert @Rosie_EyeDoc]

Come and see our poster on MyEyeSite #collaborativetechnology
development for inherited retinal diseases #IRD @meheyesite clinical care & research at #ARVO2021 @MoorfieldsBRC @Moorfields @UCLeye @npontikos @DSumodhee #jocammack #andrewrwebster @loftdigital #uxdesign

[Health Data Research UK (HDR UK) @HDR_UK]

Huge thanks for allowing us to showcase our platform to the community. Encourage all involved to check out the Innovation Gateway and register. We're just at the start of our journey to unify the UK's health datasets #HealthDataTogether

https://t.co/0GTaVmqzhi

[Retina UK @RetinaUK]

Find out more about the new MyEyeSite app and how it will give people living with rare eye conditions ownership of their own digital medical data: https://t.co/lgrXq1sEP8

[MyEyeSite @meheyesite]

Joined-up care:
https://t.co/3YPZYIziFQ

[Smoke Free App @thesmokefreeapp]

From one of our expert team: Stopping smoking is the best thing you can do for yourself and your family! I’m here to support you every step of the way. It can be daunting and your journey might have its ups and downs but you have what it takes to successfully stop smoking! 1/2

[Dr Lola Solebo 💙👶🏾👁️👩🏾‍💻 @lolaeyedoc]

These vids about #Uveitis have been co-created by children with uveitis & their families - we think they are amazing (biased much?!)
https://t.co/wzCGPXduJm
https://t.co/IqZQ4uopnd
https://t.co/04SsHrjiSw
⁦⁦@GreatOrmondSt⁩ ⁦@NIHRresearch⁩ ⁦@OliviasVision⁩

[MyEyeSite @meheyesite]

Personal Genomes: Accessing, Sharing, and Interpretation
https://t.co/O3O9XHRU28

[MyEyeSite @meheyesite]

The MyEyeSite team is delighted to announce that Innovate UK will be funding the next phase of MyEyeSite!
https://t.co/u7bAEyYbDl

[MyEyeSite @meheyesite]

We believe that enabling people with rare eye disease to collect, manage and share their own health data, will lead to better health outcomes, more efficient health services, and accelerated scientific research and clinical trials of potential therapies.
https://t.co/8nloEKU94t

[NIHR Biomedical Research Centre: Moorfields @MoorfieldsBRC]

Late last year we supported an event discussing health tech and data ran by the @UCLeye @Moorfields @Dr_RosieGilbert @meheyesite team. Find out more about it https://t.co/g7iQVnNzlV

[MyEyeSite @meheyesite]

Nice article illustrating why platforms like MyEyeSite are more and more needed in the #NHS : https://t.co/duNHO8vNH4

[MyEyeSite @meheyesite]

If you have an inherited retinal disease, please help us by completing our short survey:
https://t.co/OCvAhDAdAf

We also now have a Facebook page: https://t.co/JO7CR0wELo

[MyEyeSite @meheyesite]

Looking forward to meeting you all at the MyEyeSite Project Launch: "Involving You in Your Hospital Data" on the 15th of June at Bloomsbury :)

Please register here: https://t.co/ovgu7qzZrJ

[Retina UK @RetinaUK]

One to follow: @meheyesite, exciting new project to give people living with sight loss control of their clinical data. Find out more at their information day in London on 15 June: https://t.co/0YV27YxswF