I've fallen ill with myalgic encephalomyelitis over a decade ago. I try to create awareness through art, which can be challenging as I am mostly bedbound.
@maybememeries @me_perspective reduced Glutathion, Acetyl-L-Carnitine, Ubiquinol but my response is a not stable. It will work for a while and then lose its effectiveness. It works best for me, to pause for at least weeks after taking it for a while. My body seems to counteract meds and supplements otherwise.
@thebutoshop We have one, it loses grip quite often. Sometimes we hear it fall. And when I use it, I have to first check. Most times, I have to renew the vaccuum to be on the safe side. When it is barely holding on and I hold on to it, my fall would be much worse. Don't trust it blindly.
@DrDomStrike Ich hab seit C keinen HA mehr. Meiner war Mitbesitzer einer Gemeinschaftspraxis. Der alteingesessene Kollege und das Team haben ihn rausgemobbt weil er nicht Pro Impfung war. Seine Materialien wurden nicht nachgefüllt usw. Er ist dann gegangen. Ersatzpflege wanderte nach DK aus.
@Markus_Krall Ich nehme stark an beides. Klima hat sich immer gewandelt. Dennoch ist einiges was Menschen tun von Co2 Ausstoß bis hin zur Wetterbeeinflussung sicher ein Störfaktor. Aber wie groß dieser Faktor ist, sollte doch stärker in die Diskussion einfließen.
@UntergrundBonn Gute Wahl, wirklich beschissen! Mein Mann Ü70 pflegt mich. Ich bin zwar nicht "die Gesellschaft". Aber er tut noch deutlich mehr. Allerdings hat ein Mensch auch Wert wenn er all das nicht kann. Einfach weil er geboren ist.
@schweizok2 Ich kann mir den vermutlich nicht leisten, wenn der Künstler auch nur ansatzweise seine Arbeit vergüten lässt, was ich ihm natürlich gönne. Aber das ist ein wahrhaft wunderschönes Stück, dass sicher sehr angenehm in der Hand liegt.
@MarekSJF@me_perspective Improved for 1 years and 6 month. I got it because I developed Guillain Barré as well 6 month into start of ME, it was plasmapheresis, so I got donor plasma too. Side effects were quite severe, had two teatments; the second gave me an anaphylaxis. I wish Icould keep doing it.
@ezralevant It's horrendous... it takes a certain strength to get you heart broken multiple times a day, but I wonder what it takes those who become perpetrators to see it. We are going to have to deal with a world of traumatized people, for different reasons, but still...
@Angelasfreenews I have done my research about these exp. gene therapies, because I've developed many similar illnesses after a flu shot and a viral infection close after in 2005. Playing with our immune system is dangerous. I will pray for her and hope she will cope well, whatever happens.
@FreedomIsrael_ It very likely creates more variants faster. The virus "wants" to live and multiply, so that's what it does. No vaccine will change this.
@FreedomIsrael_ @drsamuelwhite_ Thank you so much. 🙏🏻Same happened to my GP. I am right now looking for a new one. Not an easy task being mid aged & bedbound, with one systemic illness and some more. This is not and has never been for the people or about health.
Lost 1/2 of my medical support system over it
These singers, fighting everyday to live with the debilitating disease of Myalgic Encephalomyelitis, (ME) offer their love, support, and friendship to everyone experiencing hardships. #MillionsMissing#chronicillness#singers https://t.co/hMptaqJJYF via @YouTube
We’re putting together a virtual choir piece for #MillionsMissing now! If you like to sing, please join us by recording a video of you singing the selected song! Deadline to submit is May 7th! Finished product to be streamed on May 12th.
Instructions: https://t.co/giM9IzGkRR
The last time I met Whitney, he told me about these six songs, songs he wanted to share with the whole community but especially with other patients, to inspire them and help give them the hope to hang on. Have a listen: https://t.co/reIY4xF7Oo @JanetDafoe