Regional charity offering support & advice to people with ME in the North East & North Cumbria. CharityNo.1147821
tel:0191 3892222
email: [email protected]
Here in the UK it looks like we're about three months ahead of the normal progression of the Flu A season.
For each of the last three winters, Covid has resurged when Flu has reached its summer levels... that may come sooner than expected this year.
Highlights from today's BBC Breakfast Interview with @BinitaKane and Sarah Boothby (@swastrosarah) about Severe #MECFS and doctors who have had no training not understanding/listening when they see severly ill patients with #MECFS
Thank you @BinitaKane for saying on @BBCBreakfast “We know a lot about ME” and the excellent description of #MyalgicEncephalomyelitis#ME
Thank you @swastrosarah for speaking about Maeve, to make the future different, better for people and families of people with #verysevereME
🚨New study now recruiting on vagus nerve stimulation for people with ME.
We are looking for 40 #pwME who live in NW England (UK) and have never tried vagus nerve stimulation.
All details can be found on our website here
https://t.co/lE5to4m1W0
Inceasingly feeling like Kemi Badenoch will be the next Tory leader. It's a phase they just have to go through, something they need to get out of their system.
For M.E. Awareness Week, I have written a poem. I wrote this poem when I was in a flare up and finally felt well enough to read it out yesterday. Please SHARE this.
Living with this disease at the moment is HARD. #pwME#MedTwitter#MEAwarenessHour
Can you help us with our research?! Please see the attached flyer for more information about the study, and for ease the survey can also be accessed here: https://t.co/nKJUfe1ekt #MECFS#ME#MEResearch
It’s the greatest medical scandal of the 21st Century. Intransigent doctors and gullible journalists have made the lives of ME/CFS patients a living hell.
A massive and shocking story in this week’s column.
https://t.co/apoW7uFGJS
Watch the excellent video by Dr Ben Miles - a research scientist by background who helps scientist turn real breakthroughs into start ups and helps people like the dragons invest in credible scientifically backed breakthroughs. @iamdrbenmiles
https://t.co/ssGif37hhx
A sobering but essential watch for anyone interested in how on earth so many millions of ppl with #ME#MECFS & now #LongCovid ended up so neglected, mistreated & gaslighted.
A must watch & share
The @DialoguesMECFS website is v useful resource to learn about this condition
Money’s the motive for calling ME a myth
‘We recognise that if ME/CFS remains defined as psychosocial, then it would be in the financial interests of both the DWP and the medical insurance companies.’
https://t.co/Yu8gLlDZpq
The F***ers are after the RSPB because they dare criticise their pollution for profit.
RT if you stand with the RSPB against these scum, they need throwing in the rivers they have filled with Sh*t.
If you are researching #MECFS or #LongCovid and don’t hang out in patient communities, you are not doing it well. Treating either, same. This has nothing to do with “patient voice” and everything to do with the fact that we have expertise the medical community does not.
New Episode of our #LongCOVID Video Series released today 💙
⚖️ #Pacing ⚖️
Click on link 👇 to watch video, listen to audio only, or read transcript (audio as text).
Thank you to all involved 🙏🏻💙
@fisiocamera
https://t.co/2ps03HiMCF