MGupta PhD (she/her) 🌻🦓

Behavioral & DEI Scientist. Accidental patient advocate: CPP, SpineMSK, mTBI, Migraine, Sjogrens, SFPN & more. Fmr fellow @AAAS_STPF @APA @NSF @NLC

[MGupta PhD (she/her) 🌻🦓 @mguptaphd]

Thank you to @US_Pain for including me in this year's inspirational Disparities issue! This interview was first of several steps I've been challenging myself to take in order to be a better ally to others (and myself). Stay tuned! #DisabilityPrideMonth https://t.co/OPjO8AwyDg

[MGupta PhD (she/her) 🌻🦓 @mguptaphd]

Your online complaint form doesn't work just like the rest of the vfs website and you charge $2.50/min to talk to customer service. You also threaten to blacklist applicants who complain about unlawful charges to their credit card companies.

[MGupta PhD (she/her) 🌻🦓 @mguptaphd]

@VFSGlobal @vfsglobalcare @ConsulateIndia - outsourcing OCI / visa to VFS global is a horrendous practice and has wasted months of my life

[MGupta PhD (she/her) 🌻🦓 @mguptaphd]

@VFSGlobal @vfsglobalcare I've wasted close to 2 months' time trying to process an OCI card for India off your non-functional website, including a non-functioning complaint form. Asking us to pay $2.50 / minute to speak to a live representative is horrendous @ConsulateIndia

[MGupta PhD (she/her) 🌻🦓 @mguptaphd]

@TheShoeLady33 @dysclinic Agreed. Ironically, the complex and chronically ill have to be able to pay out of pocket to see the right doctors these days, and most of us with no income and significant disability (Medicaid etc.) can't afford it!

[MGupta PhD (she/her) 🌻🦓 @mguptaphd]

With each year's #PainAwarenessMonth comes the bittersweet confirmation of another #CPP diagnosis women are too often dismissed and gaslight for. Thankful to still have healthcare in DC, where the choice for a hysterectomy was my own. #EndometriosisAwareness #WomensHealth

[Johns Hopkins Center for Health Equity @JHhealthequity]

CHE CAB member, Manisha Gupta, PhD, is using her personal experiences as a woman of color with multiple #ChronicIllnesses along with her background in social psychology to address implicit bias and discrimination in healthcare.

Learn more! 🔗 https://t.co/SfNUoZTBmK

[MGupta PhD (she/her) 🌻🦓 @mguptaphd]

Thank you to @US_Pain for including me in this year's inspirational Disparities issue! This interview was first of several steps I've been challenging myself to take in order to be a better ally to others (and myself). Stay tuned! #DisabilityPrideMonth https://t.co/OPjO8AwyDg

[Spencer Allan Brooks @SpencerSays]

omg the aurora borealis in dc is beautiful 😍 🤩

[Johns Hopkins Center for Health Equity @JHhealthequity]

CHE CAB member, Manisha Gupta, PhD, is using her personal experiences as a woman of color with multiple #ChronicIllnesses along with her background in social psychology to address implicit bias and discrimination in healthcare.

Learn more! 🔗 https://t.co/SfNUoZTBmK

[MGupta PhD (she/her) 🌻🦓 @mguptaphd]

It’s unfortunately been challenging to keep up with online advocacy when digital screens are one of your #Migraine and #mTBI triggers, but I’m still here and helping fight the good fight as I can! #HealthEquity #ImplictBias
#WomensHealth #RacialEquity
https://t.co/Ys9QvhfK8D

[MGupta PhD (she/her) 🌻🦓 @mguptaphd]

Thank you to @US_Pain for including me in this year's inspirational Disparities issue! This interview was first of several steps I've been challenging myself to take in order to be a better ally to others (and myself). Stay tuned! #DisabilityPrideMonth https://t.co/OPjO8AwyDg

[MGupta PhD (she/her) 🌻🦓 @mguptaphd]

@ibdgirl76 Yes

[MGupta PhD (she/her) 🌻🦓 @mguptaphd]

@jdibon And ironically, all the hard work you put into prepping for the visit so you seem prepared and informed (and hopefully are less likely to be gaslit) is often just interpreted as exhibiting “overly anxious” behavior 😂🙄

[MGupta PhD (she/her) 🌻🦓 @mguptaphd]

@purplemamabear Ah I just saw the one day NIH day agenda when I googled. Where can I find the full week activities?

[MGupta PhD (she/her) 🌻🦓 @mguptaphd]

That ironic, bittersweet moment of excitement, relief and accomplishment when you see #XX “hysterical woman” diagnosis finally validated and documented in your medical chart as the serious, disabling physical condition it is.

#NEISVoid #CPP #ItsNotAllInYourHead #TightLipped

[MGupta PhD (she/her) 🌻🦓 @mguptaphd]

@DrSeanMackey @PAINthejournal @S_Haroutounian Would love it if there were more identifiable ways for patients with relevant research backgrounds to become involved in these collaborative / PAR projects!

[S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic @dysclinic]

Many patients with psychiatric diagnoses in my practice have neuropsychiatric manifestations of systemic disease. Treat the underlying systemic disease, and the neuropsychiatric manifestations get better. #NeuroTwitter

[MGupta PhD (she/her) 🌻🦓 @mguptaphd]

Has anyone experienced a “decidual cast” before? (google at your own risk). 😬

Incredibly sad that it often takes this kind of physical “proof” to have women’s debilitating menstrual / pelvic pain believed.

#NEISVoid #CPP
@TightLippedOrg

[MGupta PhD (she/her) 🌻🦓 @mguptaphd]

@dysclinic What also drives me crazy about the claims of solely practicing “evidence-based” medicine is the lack of acknowledgment that the data we DO have is predominately conducted with Caucasian / white male samples, and/or otherwise still subject to biases. No data is perfect.

[S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic @dysclinic]

I often see very sick and functionally impaired patients with #Dysautonomia, #MECFS and #LongCovid whose doctors tell them that their condition is "benign." I've always found this word problematic when it comes to complex and disabling #chronicillness. Yes, it's great that the patient is not dying anytime soon, but if you're 25 and can't leave the house or bed, we can't say "it's benign."

Physicians have long communicated with patients from the position of their own health and power, using terms that make sense to physicians. Hopefully, with changing times and combating stigma of #Disability, physicians can find a better and more reasonable language to communicate with patients, incorporating the patient's perspective and lived experience.

#MedEd #BelievePatients #PatientCare

[MGupta PhD (she/her) 🌻🦓 @mguptaphd]

@beth_morton @bennessb Yes, under the same definition of disability you cited. The dizziness, vision disturbances, cognitive dysfunction, etc. during a migraine attack can prevent me from r understanding and communicating effectively with others, amongst other impairments.