A disease’s impact can’t be measured simply by the number of patients diagnosed. In honor of #RareCancerDay, PBTF’s director of advocacy @mhenryjr shares the true impact of #pediatricbraincancer in this essay about his daughter Blair’s last birthday: https://t.co/sd3xUxWGuy
NIH grants are already getting stuck under extra political review, as I reported a few weeks ago. Imagine requiring a board of political appointees to reach a unanimous decision on each grant would slow things down even more. https://t.co/W2Gp4IdX0X
Join us for Virtual Days of Action on 9/22–23, PBTF advocates will meet with Members of Congress to advocate for 2 bills and protected research funding that shape these kids' futures. No experience needed. Registration closes September 8.
Register today: https://t.co/WiZHOdRe4b
What a callous and ghoulish way to frame advocacy efforts for critically ill children. Yep, those scary childhood cancer non-profits ask families and patients to come advocate on behalf of their community. Definitely the biggest lobbying concern in DC!
Fun fact: Lobbyist groups use sick children to get meetings with politicians and manipulate the public. Democrats hate Fetterman, this is an obvious coordinated hit piece irrelevant to the realities of legislating. Andrew knows this.
@KFILE That program kept my family from going bankrupt during my daughter's brain cancer fight. Unfortunately, Fetterman has been consistently the hardest legislator to schedule childhood cancer advocate meetings with over the past five years.
In a few days, September turns the world gold. Hope isn't something we wait for — it's what a community builds together. This #ChildhoodCancerAwarenessMonth, stand with every kid facing a brain tumor. Wear gold. Share their story. Give.
I am hopeful that immunotherapy will help speed progress against pediatric brain tumors. An @theNCI-supported phase 1 trial of a new multi-antigen T-cell therapy shows it is safe and, for some children, can lead to years of disease-free survival. https://t.co/u9q1dSnhS3
I extend my heartfelt congratulations to all Americans on the occasion of the 250th anniversary of the signing of the Declaration of Independence. This anniversary stands as an invitation not only to celebrate the nation’s remarkable journey, but also to reflect upon the responsibilities that the sons and daughters of this country bear to one another, and to the generations who will inherit the nation that is being shaped today. https://t.co/jIio4BBg9v
I asked FDA Commissioner Marty Makary if the promising new signs about the mRNA-based vaccine for pancreatic cancer made HHS reconsider its decision to cancel half a billion dollars' worth of federal funding for mRNA vaccine projects.
the Accelerating Kids’ Access to Care Act: Thx again to tireless grassroots advocates +strong bipartisan cosponsorship from nearly half the Senate, our bill crossed the finish line in February +Pres Trump signed it into law
My Accelerating Kids Access to Care Act is now LAW This life saving legislation will simplify the process to get care 4 kids w complex medical conditions The last thing parents need 2do is fight red tape 2 get their kids the care they badly need Rep Miller Meeks led in the House
Bold of Lindsey Graham to hold pediatric cancer bills hostage in order to fight for a provision that only he seemingly cares about (the ability to sue for taxpayer money)
The House passed the Mikaela Naylon Give Kids a Chance Act & Accelerating Kids’ Access to Care Act! This is a major step toward ensuring every child facing cancer can access the care they need. It's time to urge your Senators to support these vital bills: https://t.co/vlJVbRbuuA
The House is voting on a spending deal that could change everything for kids with brain cancer. This deal includes the Mikaela Naylon Give Kids a Chance Act & Accelerating Kids' Access to Care Act. Tell your rep to support both bills: https://t.co/vlJVbRbuuA