Millie Veitch

Newly Registered Children's Nurse | Phenylketonuria advocate | views are my own

[Millie Veitch @milliefsquires]

Can't believe it's been 4 months since I started my newly registered job at CAMHS. Not a single regret and 100% made the best decision for me, learnt so much and can't wait to learn more ☀️

[NSPKU @NSPKU]

#NSPKU would like to comment @BBC_HaveYourSay
Please DM
Ppl with #PKU #Phenylketonuria would be affected by a reduced postal service as they send dried bloodspots to laboratories
It's likely Newborn screening of all babies across the UK may be affected as well.....

[Millie Veitch @milliefsquires]

@V1Ct0RriA Look up pressed flower photo frames on Etsy! This might be what I do with mine ☺️

[Millie Veitch @milliefsquires]

I did it!! 🎉🍾
A hard 3 years, but worth every second for this

[Millie Veitch @milliefsquires]

I am so so happy to say I have been offered a band 5-6 development post as a camhs practitioner. Absolutely over the moon 🎉🎉

[Millie Veitch @milliefsquires]

Amazing day at #uodsept20
So lovely to see everyone, next step is officially qualifying as a children's nurse and graduation! 🎉

[Millie Veitch @milliefsquires]

12 exchanges and phe levels are 246! Need to bump them to over 400 for #sapropterin trial so daily food and drink diary for a few days, another blood test and my dietician will see what changes need to be made ☺️ #pku #phenylketonuria

[Millie Veitch @milliefsquires]

Today I said yes! 💍

[Millie Veitch @milliefsquires]

Today I got completely signed off from my final placement and found out I will be graduating with a 1st in children's nursing!
Just some more placement hours to complete and I'll be a registered nurse 🥳
#nearlyNRN

[Millie Veitch @milliefsquires]

My cheat sheet for Monday is ready and prepared! It's been a fair few years since I've been strict but all part of the #sapropterin trial! #pku #metabolic

[Millie Veitch @milliefsquires]

Blood result off diet was 801 which is surprisingly low considering what I ate the day before! Potentially sorted out prescription issue after supermarket pharmacies refused to deal with my scripts, but looking to start diet next week to begin #sapropterin process 🥰 #pku

[Millie Veitch @milliefsquires]

Never been so excited to do an off diet sample! This will be my last one off diet before beginning the sapropterin process! Still a little while off getting the actual drug yet though, next step is stable levels around 600

[Millie Veitch @milliefsquires]

Today I saw my cousin take her last breath. Gone way too soon. I wish I could go back to tell her how much she meant to me, but life is too short for regrets and happy memories live on forever, RIP Vicky x

[Millie Veitch @milliefsquires]

I did it!! ❤️🎉 After years of saying I never could or would, I proved myself wrong

[Galen Medical Nutrition @GalenMetabolics]

We are excited to announce the launch of our 2023 Medical Nutrition Scholarship Award to support people with metabolic disorders accessing further education and career development. 🎉💻📚

Find out more about how you can win our prize worth €4,000 today: https://t.co/iZXaCuaT70

[Kate Learoyd @PKUFamily]

The dietary treatment for pku is sometimes described as a vegan diet. No, no, no 🫤Misleading and also means people don’t understand why the diet is so hard to manage long term. @NSPKU

[Millie Veitch @milliefsquires]

Saw my partners parents last night and watched TV with them. Realised I will never experience that feeling with my own parents, but instead of feeling sad, I feel happy I’ve met such amazing people who make me feel like I belong for the first time without conditions 💖

[All On The Board @allontheboard]

Today is Rare Disease Day and it’s a day to raise awareness for the 300 Million people in the world with over 6000 rare diseases.
If you or a loved one have a rare disease write it in the comments and make it seen.

#RareDisease #RareDiseaseDay #RareDiseaseDay2023

[Metabolic Support @MetabSupport]

The UK Newborn Screening programme needs urgent revision to keep up with other Western countries, many of whom screen for more diseases and have a more streamlined up to date system, which gives a far more positive outlook for children affected by these associated conditions.

[Millie Veitch @milliefsquires]

@OrmerodChloe @NSPKU @macdonj https://t.co/w4oVrwYuZh just ignore the decorating bit and there’s a recipe for plain cookies! Have fun baking