Mindy Cameron

[Mindy Cameron @mindycam]

@Breck_Worsham @themicrokid Yes. Coincidence.

[Mindy Cameron @mindycam]

@stales At least two hugely important Rare drug development incentives under threat: accelerated approval and orphan Drug tax credit. People don’t understand that without these, a lot of R and D goes away….these incentives work! #CTSM

[Mindy Cameron @mindycam]

@stales @Medidata Managing and living with rare disease takes a lot of energy, time, money, and grit. Caregivers and patients need more support and society needs to be educated #CTSM

[Mindy Cameron @mindycam]

@stales @Medidata Many rare disease patients are kids who can’t advocate for themselves. Parents, extended family, teachers, clergy, and POLITICIANS are among the many that can speak on their behalf. #CTSM

[Mindy Cameron @mindycam]

@stales Of the 300 million affected by #raredisease, 1/2 are children #ctsm

[Mindy Cameron @mindycam]

@stales When banded together people affected by “rare” are as powerful a group as any. RDD is demonstrating that this year #DTSM

[Mindy Cameron @mindycam]

@stales #ctsm thanks for the tweet tips!

[Mindy Cameron @mindycam]

@stales This year it is the need to protect hard won incentives for rare disease drug development

[Mindy Cameron @mindycam]

#CTSM amazing how far Rare Disease Day has come in the past decade!

[Mindy Cameron @mindycam]

@stales If anything can get me to tweet, it is Rare Disease Day. #idontnormallytweet #ctsm

[Project ALS @ProjectALSorg]

We're live from 8pm - 9pm EST with Alicia Staley for @Medidata's #RareDiseaseDay #TwitterChat! Tweet using #CTSM to ask questions and follow the conversation! #ShowYourStripes

[Mindy Cameron @mindycam]

Ray-Ban glasses special offer, only $ 24,99 only today! https://t.co/clA6j1WKGW

[Mindy Cameron @mindycam]

Spectrum: way to go not telling customers they would not be able to NFL playoffs. Worst service ever for highest price. Outta here!

[Mindy Cameron @mindycam]

Spectrum/Tribune Broadcasting loses another customer over no play off games. Bullshit!

[Mindy Cameron @mindycam]

#duchennemosaic #sarepta

[UF Powell Center @ufpowellcenter]

UF and GoFAR announce gene therapy program for Friedreich’s ataxia | UF Health, University of Florida Health https://t.co/ClG1UcKp6M

[Mindy Cameron @mindycam]

@CureFA_org Check out new FA program @UFPowellCenter !

[Mindy Cameron @mindycam]

@Friedreichsatax check out new FA program @UFPowellCenter

[Mindy Cameron @mindycam]

Exciting news in gene therapy! https://t.co/rElwApbZ49

[UF Powell Center @ufpowellcenter]

UF and GoFAR announce gene therapy program for Friedreich’s ataxia | UF Health, University of Florida Health https://t.co/ClG1UcKp6M