Minimuhh

Mira Mølkjær, vision impaired philanthropist diagnosed with #BCD. #TheMinimuhhStory #VisionImpaired #BiettisCrystallineDystrophy #KarmaSansFrontieres

[Invincible Vision @Invisionbcd]

In this race against time we learn just how precious each moment where we see our loved ones really is 🧡 Thank you Mira for sharing your story!

#invinciblevision #biettis #biettiscrystallinedystrophy #eyedisease #internationalwomensmonth #womensmonth #womenshealth #mothers

[Invincible Vision @Invisionbcd]

While facing our fear of going blind to Bietti’s Crystalline Dystrophy, we learn our true strength as individuals and as a global community of BCD patients, families, and friends 🧡 Thank you to Laurel!
#biettiscrystallinedystrophy #biettis #eyedisease #womenshealth #womensmonth

[Invincible Vision @Invisionbcd]

Emily’s story is not uncommon, majority of BCD patients have initially gotten a misdiagnosis; retina specialists agree that many more are likely living with a misdiagnosis.
Would you share our posts to make a difference for people like Emily?
Learn more👉 https://t.co/C3IOgRcVex

[Invincible Vision @Invisionbcd]

What might the crystals look like in a person’s eyes if they have #Biettis Crystalline Dystrophy (BCD)?

BCD is often misdiagnosed as #Retinitis Pigmentosa, #Choroideremia, #Stargardt Disease, dominant forms of RPE65, Late-Onset Retinal Degeneration, etc.
https://t.co/ALP5lj3mDW

[Invincible Vision @Invisionbcd]

@rarediseaseday Rare Disease Day is so important in raising awareness for diseases like BCD. It brings hope to all rare disease patients♥️

[Invincible Vision @Invisionbcd]

Help over 100,000 people around the world who live with #BCD #fightblindness

For more info visit: https://t.co/kBBQeyxOBt

#biettis #biettiscrystallinedystrophy #rareeyedisease #eyedisease #RareDiseaseDay #RareDiseaseDay2021 #stargardt #retinitispigmentosa #eyehealth #hope

[Invincible Vision @Invisionbcd]

As #RareDiseaseDay is approaching we want to raise awareness for #BCD. #BiettisCrystallineDystrophy is a #rare, often #misdiagnosed, #disease causing #blindness in over 100,000 people globally. Please share this post to help our cause and help more people get diagnosed correctly

[Invincible Vision @Invisionbcd]

#crystals on the #retina is the significant symptom of #biettiscrystallinedystophy ✨
#bcd #raredisease #Ophthalmology #aao #visionimpaired

[Invincible Vision @Invisionbcd]

#Hope is one our driving principles at #invinciblevision

It is important to plant trees and more important to plant trees that one is not sure that they would enjoy the shade of someday.

#BiettisCrystallineDystrophy
#RareDisease
#genetherapy #opthalmology

[Invincible Vision @Invisionbcd]

#symptoms of #bcd :
- #crystals in the #cornea
- yellow, shiny deposits on the #retina
- progressive #atrophy of the retina, #choriocapillaries and #choroid
- progressive night #blindness and visual field constriction

#biettiscrystallnedystophy
#opthamology #raredisease

[Invincible Vision @Invisionbcd]

#invinciblevision is a community for #bcd patients and their relatives. Get connected and inspired by other patients and their stories. Talking to someone who can actually relate to your situation, makes a big difference! #BiettisCrystallineDystrophy #visionimpaired #RareDisease

[Invincible Vision @Invisionbcd]

#BiettisCrystallineDystophy is an #AutosomalRecessive eye disease, deteriorating the vision. Most characteristic symptom is crystals in the retina. #raredisease #bcd #retinitispigmentosa #goingblind #genetherapy #opthamology @AAOjournal @aao_ophth

[Minimuhh @minimuhh]

Enjoyed celebrating my niece’s birthday today🎂🇩🇰
Now my eyes are exhausted, vision extra blurry and head is buzzing. Living with #BCD is a challenge!
#visionimpaired #biettiscrystallinedystophy #goingblind #invinciblevisionorg

[Invincible Vision @Invisionbcd]

It’s estimated there are more than 100,000 #BCD patients globally. BCD has been reported to be 3% of #RP. https://t.co/v3EvFAoVng #BiettisCrystallineDystrophy #retinitispigmentosa #Ophthalmology @aao_ophth

[Invincible Vision @Invisionbcd]

‘Crystals in my eyes’ .. sounds beautiful and rare - true!! But also a symptom of #BiettisCrystallineDystrophy #BCD is a very rare blinding eye disease, often misdiagnosed.
#goingblind #retina #opthamologist #nocyee #bcdawareness #invinciblevisionorg

[Invincible Vision @Invisionbcd]

What is it like going blind.
#biettiscrystallinedystophy is a rare blinding eye disease, often misdiagnosed. #bcd is characterised by crystals in the retina.
#invinciblevisionorg #goingblind #visionimpaired #opthamologist

[Invincible Vision @Invisionbcd]

Are you an RP patient? Do you have crystals in the retina? If so, you may have Bietti’s Crystalline Dystrophy (BCD). BCD is an autosomal recessive #RetinitisPigmentosa (RP) caused by mutations in the CYP4V2 gene. Potential treatments are being developed for BCD @ReflectionBio

[Invincible Vision @Invisionbcd]

BCD is a rare mis/underdiagnosed disease that causes night blindness, distorted vision, light sensitivity, reduced acuity & contrast sensitivity, blind spots, impaired color vision and finally legal blindness.

#youarenotalone #rareeyedisease #share4rare #eye #eurordis #hope

[Minimuhh @minimuhh]

https://t.co/hrT59OQTeV
a non-profit organisation for BCD patients. BCD is a very rare eye disease, causing legally blindness. It’s estimated to affect at least 100.000 patients globally. #bcd #biettiscrystallinedystrophy #visionimpaired #goingblind #MakeADifference

[Minimuhh @minimuhh]

Drop-in at #Crossfit Kuching💪🏽
Being nearly blind, it can be pretty intimidating to train new places, where I don’t know the surroundings. However, it went pretty ok, despite lackbof vision😎
#theminimuhhstory #visionimpaired #bcd #biettiscrystallinedystrophy