Anne Melchior

[Engage Health Inc. @EngageHealthInc]

We’re proud to bring 25+ years of research experience, meaningful engagement, and actionable insights to the rare disease community. Have a research initiative on the horizon?
We’d love to connect [email protected] | [phone]

[Anne Melchior @MinnesotaRed]

Another major advancement for the mitochondrial community this year, and one that will make a profound difference for TK2d families. Congratulations to all who have been advocating, researching, and supporting this work. @UMDF @MitoAction

[United Mitochondrial Disease Foundation @UMDF]

HUGE NEWS! The FDA has approved UCB’s Kygevvi (doxecitine and doxribtimine) to treat the mitochondrial disease thymidine kinase 2 deficiency (TK2d). You can find the full prescribing details and announcement here: https://t.co/4XXSZxmD4Q

[Engage Health Inc. @EngageHealthInc]

We were proud to partner with @SmithSolve and the @AmNmFoundation on the Late-Onset Neuromuscular Disease Consortium (LONDC) on this study. To review the full study, link here: https://t.co/SXR9v4tq2m

[Anne Melchior @MinnesotaRed]

Looking forward to connecting next week with current and new colleagues at NORD & excited to share insights from our collaborative poster with Dyne Therapeutics and the Myotonic Dystrophy Foundation @MyotonicStrong

[Engage Health Inc. @EngageHealthInc]

We’re looking forward to joining the conversation at the NORD Rare Diseases & Orphan Products Breakthrough Summit®, taking place in Washington, D.C.! We’d love to connect with you. To schedule a time to meet, contact Anne at [email protected]
or call 651-994-0510.

[Anne Melchior @MinnesotaRed]

Looking forward to being at #nordsummit2025 in Washington, D.C.! Reach out if you’ll be there — I’d love to connect!

[Engage Health Inc. @EngageHealthInc]

We’re excited to announce that we will be attending the NORD Summit, taking place October 19–21, 2025, in Washington, D.C. They would welcome the opportunity to meet with you during the event. Contact Anne at [email protected] or call 651-994-0510.

[United Mitochondrial Disease Foundation @UMDF]

We're still celebrating the approval of Forzinity (elamipretide) for use in Barth syndrome patients, making it the first form of #mitochondrialdisease with an FDA-approved therapy. In case you missed UMDF's letter last week, you can read it here: https://t.co/yJWuJ56y5N

[Anne Melchior @MinnesotaRed]

We're grateful for the nomination from @HealthcareMN as 2024 Startup of the Year and would appreciate your support to vote for TeleRare Health! Vote here: https://t.co/DbdYupBuj9

[TeleRare Health @TeleRareHealth]

We're thrilled to announce that TeleRare Health has been nominated as a finalist for @Healthcaremn's 2024 Startup of the Year Award! ***VOTE to support TeleRare Health's mission and help us be named Startup of the Year: https://t.co/0CZzcOlJXb

[TeleRare Health @TeleRareHealth]

From all of us at TeleRare Health, we wish you a joyful holiday season filled with happiness and good health!
See how TeleRare Health can help you in the new year at https://t.co/x4ks3rjHY7
#telerarehealth #virtualclinic #telehealth4rare

[TeleRare Health @TeleRareHealth]

The holidays are hectic—getting answers for your health shouldn’t be. Schedule a consultation with TeleRare Health and start 2025 with clarity and confidence.
#telerarehealth #virtualclinic #telehealth4rare
Schedule an appointment today at https://t.co/oUj0pwnB1D

[TeleRare Health @TeleRareHealth]

Coming soon: TeleRare Health will start accepting commercial insurance, Medicaid, and Medicare! Follow us on FB, Instagram, LinkedIn, and X for updates! #telerarehealth #virtualclinic #telehealth4rare

Learn more at https://t.co/mBZNKYMiaK

[TeleRare Health @TeleRareHealth]

TeleRare Health is a virtual rare & genomic clinic with years of experience in rare disease research & patient advocacy. We provide specialized virtual care to the rare disease community. #telerarehealth #VirtualClinic #telehealth4rare
Learn more at https://t.co/mBZNKYMiaK

[Rare Disease Day @rarediseaseday]

🚨 IT'S RARE DISEASE DAY GLOBALLY! 🚨 Join us marking #RareDiseaseDay 2024! Spread awareness, share stories, and support those living with rare diseases. Together, we make a lasting impact! #ShareYourColours

[Engage Health Inc. @EngageHealthInc]

Feb 29 is #RareDiseaseDay
1.Spread the word share this post and use #RareDiseaseDay
2.Attend an event planned in our home state ofMinnesota
MNRareAdvocacyDay, March 5: https://t.co/LKoohTqnn9
MNRareDiseaseDay, March 7: https://t.co/mLk7PHWfea
#RareDiseaseDay #RarestDayoftheYear

[Anne Melchior @MinnesotaRed]

Thanks @Eagangirlsbball and @kat_simonsen26 !

[EGBB 💙🏀💚 @Eagangirlsbball]

Please join us in the fight against cancer at our home game tomorrow night! We are partnering again this year with the American Cancer Society/Coaches vs Cancer to BOX OUT CANCER. 💚💙

#coachesvscancer

[MNBobcats @MnBobcats]

2 huge FTs with 4 seconds left by @kat_simonsen26 to seal the upset victory for @Eagangirlsbball #RollCats

[Anne Melchior @MinnesotaRed]

Underway with the first full day at @WORLDSymposia with the @EngageHealthInc team

[Engage Health Inc. @EngageHealthInc]

We can't wait to reconnect with all our friends! Reach out by emailing Anne at [email protected] or calling the office at 651-994-0510. @WORLDSymposia #RareDisease #WORLDSymposium2024

[Anne Melchior @MinnesotaRed]

Excited to join the @EngageHealthInc team at @WORLDSymposia next week. Reach out if you’d like to connect in San Diego!

[Engage Health Inc. @EngageHealthInc]

The Engage Health team, including Pres & CEO Patti Engel, Skyler, and Anne, will participate & present research. Reach out if you will be attending & connect with our team by emailing Anne at [email protected] or call the office at 651-994-0510. #worldsymposium2024

[United Mitochondrial Disease Foundation @UMDF]

In our April Advocacy Update, learn more about how the debt limit may affect Medicaid eligibility and what to expect when the Public Health Emergency (PHE) ends on May 11. Read it all here: https://t.co/uuHRTaALJS

[United Mitochondrial Disease Foundation @UMDF]

Dr. Mishra (UMDF grant winner 2015) and other members from the Genetic and Metabolic Disease Program at @CRI_UTSW have been repeat supporters of Energy for Life Walk/Run Dallas-Fort Worth. Going the extra mile for their local mito patient community-thank you, Team UTSW-CRI GMDP!

[United Mitochondrial Disease Foundation @UMDF]

Join Faye and the team at @crewfitnesshou for one of three "Row for a Reason" classes this Saturday, 4/15! Sign up early using the MINDBODY app. You, too, can make Energy for Life Walkathon Houston a success! Register today and walk with us on 4/22: https://t.co/SFwhvNxScJ